Nonprofit · EIN 46-2133007
ASSOCIATION FOR CREATINE DEFICIENCIES
Tax-exempt · CARLSBAD, CA 92009
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $411,288 | $653,844 | -$242,556 | $418,617 | $10,372 | $408,245 |
| December 31, 2023 | 990 | $588,192 | $602,613 | -$14,421 | $674,679 | $26,722 | $647,957 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $353,871
- Program service revenue
- $47,133
- Investment income
- $4,708
- Other revenue
- $5,576
Expenses
- Grants and similar amounts paid
- $215,440
- Compensation of officers, directors and key employees
- $109,716
- Other salaries and wages
- $40,081
- Salaries, compensation and benefits (total)
- $161,645
- Professional fundraising fees
- $0
- Legal fees
- $250
- Accounting fees
- $27,246
- Occupancy
- $1,140
- Travel
- $12,560
- Depreciation
- $22,635
- Program services (functional)
- $535,706
- Management and general (functional)
- $76,400
- Fundraising (functional)
- $41,738
Balance sheet and other
- Total assets, start of year
- $674,679
- Total assets, end of year
- $418,617
- Total liabilities, end of year
- $10,372
- Net assets, end of year
- $408,245
- Land, buildings and equipment
- $45,270
- Publicly traded securities
- $77,237
- Net assets without donor restrictions
- $395,420
- Net assets with donor restrictions
- $12,825
- Gross receipts
- $411,288
- Employees
- 2
- Volunteers
- 7
- Year formed
- 2012
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Heidi Wallis | Executive Director Officer | 40 | $109,716 |
| Erin Coller | Director of Comm Trustee or director | 10 | $0 |
| Kim Tuminello | Director of Advocacy Trustee or director | 10 | $0 |
| Mikelle Law | Director of Compliance Trustee or director | 10 | $0 |
| Daniel Coller | Board Chair Trustee or director, Officer | 10 | $0 |
| Celeste Graham | Director of Education Trustee or director, Officer | 5 | $0 |
| Randy Allen | Vice Chair Trustee or director, Officer | 10 | $0 |
990 for the year ended December 31, 2023: 7 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Heidi Wallis | Executive Director Officer | 40 | $105,000 |
| Mikelle Law | Director of Compliance Trustee or director | 10 | $0 |
| Kim Tuminello | Director of Advocacy Trustee or director | 10 | $0 |
| Erin Coller | Director of Comm Trustee or director | 10 | $0 |
| Randy Allen | Vice Chair Trustee or director, Officer | 10 | $0 |
| Daniel Coller | Board Chair Trustee or director, Officer | 10 | $0 |
| Celeste Graham | Director of Education Trustee or director, Officer | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 6965 EL CAMINO REAL 105-598, CARLSBAD, CA 92009-4100
- In care of
- % DANIEL COLLER
- Mailing address (990-N for 2014)
- PO BOX 1007, ATLANTIC BEACH NC 28512
- Principal officer (990 for 2024)
- Daniel Coller, 6965 El Camino Real 105-598, Carlsbad, CA 92009
- Principal officer (990-N for 2014)
- KIMBERLY TUMINELLO, PO BOX 1007, ATLANTIC BEACH NC 28512
- Signed the 990
- DANIEL COLLER, Board Chair
- Phone
- (601) 942-2373
- Website
- www.creatineinfo.org
- Return prepared by
- Mullins PC
California records
California keeps its own records of charities and corporations. Search them by EIN 46-2133007 or by the name ASSOCIATION FOR CREATINE DEFICIENCIES.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
Program accomplishments
- Providing accurate and up to date information through attendance at Medical & Scientific conferences, maintaining informational website, hosting CCDS conference and distributing recordings of talks to accelerate knowledge of creatine deficiencies and related research. Advocating for increased adoption of newborn screening. Supporting CCDS caregivers with webinars, opportunities to engage with researchers, and a structured virtual support group. Supporting research through fellowship grants and maintenance of a patient registry and natural history platform. Co-supporting research and patient communities through joint webinars, quarterly newsletters, online resources, etc.Expenses $535,706 · grants $215,440 · revenue $47,133
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 46-2133007
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2013
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G99)
- Assets (IRS master file)
- $418,617
- Income (IRS master file)
- $411,288
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $411,288 | $653,844 | $418,617 | IRS |
| 990 | December 2023 | $588,192 | $602,613 | $674,679 | XML |
| 990 | December 2022 | $699,129 | $599,640 | $685,374 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
| 990-EZ | December 2017 | – | – | – | IRS |
| 990-N for 2014 Officer: KIMBERLY TUMINELLO | December 31, 2014 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-2133007).
Questions about ASSOCIATION FOR CREATINE DEFICIENCIES
- What is the EIN of ASSOCIATION FOR CREATINE DEFICIENCIES?
- The employer identification number (EIN) of ASSOCIATION FOR CREATINE DEFICIENCIES is 46-2133007.
- Is ASSOCIATION FOR CREATINE DEFICIENCIES tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2013.
- Are donations to ASSOCIATION FOR CREATINE DEFICIENCIES tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ASSOCIATION FOR CREATINE DEFICIENCIES file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ASSOCIATION FOR CREATINE DEFICIENCIES due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ASSOCIATION FOR CREATINE DEFICIENCIES last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of ASSOCIATION FOR CREATINE DEFICIENCIES?
- The 990 for the year ended December 31, 2024 names Daniel Coller.
- Who are the officers and directors of ASSOCIATION FOR CREATINE DEFICIENCIES?
- The 990 for the year ended December 31, 2024 lists 7 people; 1 received compensation from the organization, the highest $109,716 (Heidi Wallis, Executive Director).
- How much revenue does ASSOCIATION FOR CREATINE DEFICIENCIES have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $411,288, expenses of $653,844 and total assets of $418,617 at year end.
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All nonprofits in CARLSBAD · California · Voluntary health associations and medical disciplines