Nonprofit · EIN 84-3288113
N-LOREM FOUNDATION
Tax-exempt · CARLSBAD, CA 92010
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $30,807,703 | $18,339,178 | $12,468,525 | $22,298,749 | $3,196,035 | $19,102,714 |
| December 31, 2024 | 990 | $11,008,892 | $15,803,117 | -$4,794,225 | $12,276,482 | $5,642,293 | $6,634,189 |
| December 31, 2023 | 990 | $6,864,176 | $14,216,401 | -$7,352,225 | $13,344,649 | $1,916,235 | $11,428,414 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $30,574,294
- Program service revenue
- $0
- Investment income
- $233,409
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $1,211,277
- Other salaries and wages
- $4,568,176
- Salaries, compensation and benefits (total)
- $6,564,628
- Professional fundraising fees
- $0
- Legal fees
- $322,056
- Accounting fees
- $177,929
- Occupancy
- $596,525
- Depreciation
- $342,083
- Program services (functional)
- $16,488,232
- Management and general (functional)
- $1,282,507
- Fundraising (functional)
- $568,439
Balance sheet and other
- Total assets, start of year
- $12,276,482
- Total assets, end of year
- $22,298,749
- Total liabilities, end of year
- $3,196,035
- Net assets, end of year
- $19,102,714
- Land, buildings and equipment
- $803,794
- Net assets without donor restrictions
- $11,941,916
- Net assets with donor restrictions
- $7,160,798
- Gross receipts
- $30,807,703
- Employees
- 33
- Volunteers
- 15
- Year formed
- 2019
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SARAH GLASS | COO | 40 | $487,199 | $14,619 |
| Julie Douville | VP ASO Disc & Dev | 40 | $353,113 | $16,721 |
| LAURY MIGNON | ExDir Clinical Dev | 40 | $336,405 | $28,469 |
| AMY WILLIFORD | VP FDN DEVELOPMENT | 40 | $295,060 | $19,135 |
| VIRGINIA SANKEY | VP of Finance Officer | 40 | $280,600 | $22,080 |
| KIMBERLY BUTLER | Sr. Dir. of Op Officer | 40 | $277,430 | $23,099 |
| Megan Knutsen | SR DIRECTOR | 40 | $249,166 | $13,567 |
| Konstantina Skourti-Stathaki | Exec Dir ASO Disc | 40 | $236,491 | $7,095 |
| JOSEPH GLEESON MD | CMO Trustee or director | 15 | $106,250 | $0 |
| STANLEY T CROOKE MD PHD | CHAIR/CEO Trustee or director, Officer | 0.15 | $0 | $0 |
| ROSANNE CROOKE PHD | Board Member Trustee or director | 0.15 | $0 | $0 |
| LYNNE PARSHALL ESQ | Treasurer Trustee or director, Officer | 0.15 | $0 | $0 |
| Richard S Geary PHD | Board Member Trustee or director | 0.15 | $0 | $0 |
| C FRANK BENNETT PHD | Board Member Trustee or director | 0.15 | $0 | $0 |
| GENE YEO PHD MBA | Board Member Trustee or director | 0.15 | $0 | $0 |
9 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JASON WOOD | Board Member Trustee or director | 0.15 | $0 |
| JOSEPH LOSCALZO PHD | Board Member Trustee or director | 0.15 | $0 |
| ALAN LOTVIN MD | Board Member Trustee or director | 0.15 | $0 |
| ANDREW W LO PHD | Board Member Trustee or director | 0.15 | $0 |
| AMY MCCOOE | Board Member Trustee or director | 0.15 | $0 |
| FRANK SASINOWSKI MS MPH JD | Board Member Trustee or director | 0.15 | $0 |
| PAUL COMPTON | Board Member Trustee or director | 0.15 | $0 |
| NEIL SHNEIDER MD PHD | Board Member Trustee or director | 0.15 | $0 |
| MICHAEL HAYDEN MBCHB PHD | Board Member Trustee or director | 0.15 | $0 |
990 for the year ended December 31, 2024: 23 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SARAH GLASS | COO | 40 | $467,078 | $14,016 |
| LAURY MIGNON | ExDir Clinical Dev | 40 | $326,239 | $26,556 |
| Julie Douville | Exec Dir ASO Disc | 40 | $337,063 | $4,550 |
| KIMBERLY BUTLER | Sr. Dir. of Op Officer | 40 | $266,757 | $21,872 |
| AMY WILLIFORD | SR DIR COMM/DONORS | 40 | $270,575 | $17,917 |
| Cedrik Ngongang | Sr Dir Medical Gen | 40 | $267,124 | $8,014 |
| Megan Knutsen | Dir Fdn & Prgm Mgt | 40 | $234,251 | $12,813 |
| VIRGINIA SANKEY | Exc Dir Finance Officer | 40 | $176,944 | $13,209 |
| JOSEPH GLEESON | CMO Trustee or director | 40 | $85,000 | $0 |
| STANLEY T CROOKE | CHAIR/CEO Trustee or director, Officer | 0.15 | $0 | $0 |
| ROSANNE CROOKE | Board Member Trustee or director | 0.15 | $0 | $0 |
| LYNNE PARSHALL | Board member Trustee or director | 0.15 | $0 | $0 |
| JOSEPH LOSCALZO | Board Member Trustee or director | 0.15 | $0 | $0 |
| C FRANK BENNETT | Board Member Trustee or director | 0.15 | $0 | $0 |
| GENE YEO | Board Member Trustee or director | 0.15 | $0 | $0 |
| JASON WOOD | Board Member Trustee or director | 0.15 | $0 | $0 |
| MICHAEL HAYDEN | Board Member Trustee or director | 0.15 | $0 | $0 |
| ALAN LOTVIN | Board Member Trustee or director | 0.15 | $0 | $0 |
| ANDREW W LO | Board Member Trustee or director | 0.15 | $0 | $0 |
| AMY MCCOOE | Board Member Trustee or director | 0.15 | $0 | $0 |
| FRANK SASINOWSKI | Board Member Trustee or director | 0.15 | $0 | $0 |
| PAUL COMPTON | Board Member Trustee or director | 0.15 | $0 | $0 |
| NEIL SHNEIDER | Board Member Trustee or director | 0.15 | $0 | $0 |
990 for the year ended December 31, 2023: 23 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SARAH GLASS | COO Officer | 40 | $420,833 | $10,238 |
| Laury Mignon | Executive Director, Clinical Develo | 40 | $312,435 | $17,124 |
| JULIE DOUVILLE | Executive Director, ASO Discovery | 40 | $279,974 | $30,024 |
| AMY WILLIFORD | Sr. Dir. of Communications | 40 | $240,975 | $14,856 |
| Cedrik Ngongang | Senior Director, M | 40 | $240,879 | $6,268 |
| KIMBERLY BUTLER | Sr. Dir. of Ope Officer | 40 | $199,828 | $15,553 |
| Megan Knutsen | Director, Foundati | 40 | $199,121 | $10,706 |
| RAM PURANAM | Senior Scientist | 40 | $158,576 | $16,712 |
| THUY NGUYEN | Associate Director | 40 | $162,364 | $9,343 |
| RIA THOMAS | Senior Scientist | 40 | $150,013 | $8,899 |
| JOSEPH GLEESON | CMO Trustee or director | 40 | $86,250 | $0 |
| STANLEY T CROOKE | Chair/CEO Trustee or director, Officer | 0.15 | $0 | $0 |
| MICHAEL HAYDEN | Board Member Trustee or director | 0.15 | $0 | $0 |
| ROSANNE CROOKE | Board Member Trustee or director | 0.15 | $0 | $0 |
| FRANK BENNETT | Board Member Trustee or director | 0.15 | $0 | $0 |
| LYNNE PARSHALL | Treasurer Trustee or director | 0.15 | $0 | $0 |
| JOSEPH LOSCALZO | Board Member Trustee or director | 0.15 | $0 | $0 |
| AMY MCCOOE | Board Member Trustee or director | 0.15 | $0 | $0 |
| JASON WOOD | Board Member Trustee or director | 0.15 | $0 | $0 |
| FRANK SASINOWSKI | Board Member Trustee or director | 0.15 | $0 | $0 |
| PAUL COMPTON | BOARD MEMBER Trustee or director | 0.15 | $0 | $0 |
| GENE YEO | Board Member Trustee or director | 0.15 | $0 | $0 |
| NEIL SHNEIDER | BOARD MEMBER Trustee or director | 0.15 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 2888 LOKER AVE E, CARLSBAD, CA 92010-6682
- In care of
- % PATRICK R ONEIL
- Principal officer (990 for 2025)
- STANLEY T CROOKE
- Signed the 990
- STANLEY T CROOKE, CHAIR/CEO
- Phone
- (760) 378-8001
- Website
- HTTPS://WWW.NLOREM.ORG
- Return prepared by
- West Rhode & Roberts
California records
California keeps its own records of charities and corporations. Search them by EIN 84-3288113 or by the name N-LOREM FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
N-LOREM'S MISSION IS CREATING INDIVIDUAL TREATMENTS FOR PATIENTS IN THE UNITED STATES WITH NANO-RARE DISEASES CAUSED BY GENETIC MUTATIONS THAT AFFECT APPROXIMATELY 30 PATIENTS IN THE WORLD.
Program accomplishments
- TO PROVIDE ADVANCED, EXPERIMENTAL RNA-TARGETED MEDICINES, FREE OF CHARGE FOR LIFE, TO PATIENTS LIVING WITH NANO-RARE DISEASES.Expenses $16,488,232
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 84-3288113
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2020
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $22,298,749
- Income (IRS master file)
- $30,807,703
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $30,807,703 | $18,339,178 | $22,298,749 | XML |
| 990 | December 2024 | $11,008,892 | $15,803,117 | $12,276,482 | XML |
| 990 | December 2023 | $6,864,176 | $14,216,401 | $13,344,649 | XML |
| 990 | December 2022 | $17,644,122 | $8,953,463 | $20,440,931 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-3288113).
Questions about N-LOREM FOUNDATION
- What is the EIN of N-LOREM FOUNDATION?
- The employer identification number (EIN) of N-LOREM FOUNDATION is 84-3288113.
- Is N-LOREM FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2020.
- Are donations to N-LOREM FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does N-LOREM FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of N-LOREM FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did N-LOREM FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of N-LOREM FOUNDATION?
- The 990 for the year ended December 31, 2025 names STANLEY T CROOKE.
- Who are the officers and directors of N-LOREM FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 24 people; 9 received compensation from the organization, the highest $487,199 (SARAH GLASS, COO).
- How much revenue does N-LOREM FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $30,807,703, expenses of $18,339,178 and total assets of $22,298,749 at year end.
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