2024-10-15T12:40:26-04:00 2023-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2023-01-01 462133007 Association for Creatine Deficiencies ASSO 6965 El Camino Real 105-598 Carlsbad CA 92009 Daniel Coller Board Chair 6019422373 2024-10-14 true true John Mullins P01429307 2027706371 2024-10-15 2023 2024-10-15 13:58:12Z Daniel Coller 588192 false X www.creatineinfo.org X 2012 CA To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). 6 6 4 6 0 0 646962 574134 31078 5000 2487 21089 6571 699129 588192 171769 183000 0 129388 151548 0 39242 298483 268065 599640 602613 99489 -14421 685374 674679 25423 26722 659951 647957 To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). false false 493631 183000 5000 Providing accurate and up to date information through attendance at Medical & Scientific conferences, maintaining informational website, hosting CCDS conference and distributing recordings of talks to accelerate knowledge of creatine deficiencies and related research. Advocating for increased adoption of newborn screening. Supporting CCDS caregivers with webinars, opportunities to engage with researchers, and a structured virtual support group.Supporting research through fellowship grants and maintenance of a patient registry and natural history platform. Co-supporting research and patient communities through joint webinars, quarterly newsletters, online resources, etc. 493631 true true false false false false false false false false true false false false false true true false false false true true false false true false false true false false false false false false false false false false false false false false false false false false false true 8 0 true 4 true false false false false false true true false false false false false false X 6 6 false false false false false false false true true false false true false false false false false false X The Organization 6019422373 6965 El Camino Real 105-598 Carlsbad CA 92009 Heidi Wallis Executive Director 40.00 0.00 X 105000 0 0 Mikelle Law Director of Compliance 10.00 0.00 X 0 0 0 Kim Tuminello Director of Advocacy 10.00 0.00 X 0 0 0 Erin Coller Director of Comm 10.00 0.00 X 0 0 0 Randy Allen Vice Chair 10.00 0.00 X X 0 0 0 Daniel Coller Board Chair 10.00 0.00 X X 0 0 0 Celeste Graham Director of Education 5.00 0.00 X X 0 0 0 105000 0 0 1 false false false 40130 534004 16110 574134 Conference 900099 5000 5000 5000 2487 2487 40130 Other 900099 6571 6571 6571 588192 11571 0 2487 X 150000 150000 33000 33000 105000 74131 15366 15503 35766 25251 5234 5281 10782 7612 1578 1592 18943 18943 26428 20706 5688 34 128940 96921 31831 188 13182 1805 1200 10177 17100 9484 2625 4991 4262 1386 1530 1346 2100 2100 25548 23198 2276 74 9370 8940 374 56 2049 11 2038 Other 20143 20143 602613 493631 69740 39242 509760 385706 109689 148265 1153 3118 67905 67905 64772 69685 685374 674679 25423 26722 25423 26722 X 358386 480600 301565 167357 659951 647957 685374 674679 -14421 2427 0 X false true X true false X 128625 657356 338742 664962 574134 2363819 90 90 128625 657446 338742 664962 574134 2363909 2363909 2487 2487 2487 2487 2786 1531 21089 6571 31977 128625 660232 340273 686051 583192 2398373 0.98560 0.99220 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 67905 67905 67905 X 610235 2427 19616 22043 588192 588192 622229 19616 19616 602613 602613 Footnote for uncertain tax position under FIN 48 (Part X) The Association is a tax-exempt entity under Code Section 501(c)(3) of the Internal Revenue Code(the Code), and are exempt from federal income taxes on related income pursuant to Section 501(a) of the Code and is not considered to be a private foundation. In addition, the Association is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. Management has determined that the entity is not subject to unrelated business income tax and has not filed an Exempt Organization Business Income Tax Return (Form 990-T) with the IRS. Accordingly, no provision for income taxes is included in the financial statements. The Association has filed all of its known and required tax returns in a timely manner, including as permitted, allowed extensions. true North America Not the United States Program services Research 33000 33000 33000 North America Not the United States Research 22500 North America Not the United States Research 7500 2 false false false false false false Special Even 40130 40130 40130 40130 true University of Utah 201 Presidents Cir Salt Lake City UT 84112 876000525 501c3 140000 Uplifting Athletes 8 Atkinson Drive PO Box 574 Doylestown PA 18901 341986485 501c3 10000 2 Officer directors etc family relationship Part VI line 2 Erin Coller and Daniel Coller are married. Form 990 governing body review Part VI line 11 The IRS Form 990 is provided to all board members prior to filing. Governing documents etc available to public Part VI line 19 These documents are available upon request. List of other fees for services expenses Part IX line 11g Other Professional Fees $124,672Service Fees: $1,457Board Expenses: $2,811