Nonprofit · EIN 20-0811343
KAREN WYCKOFF REIN IN SARCOMA
Tax-exempt · FRIDLEY, MN 55432
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $577,435 | $697,342 | -$119,907 | $1,093,636 | $55,531 | $1,038,105 |
| December 31, 2023 | 990 | $606,354 | $554,483 | $51,871 | $1,175,955 | $15,280 | $1,160,675 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $539,554
- Program service revenue
- $5,000
- Investment income
- $18,940
- Net gain from sales of assets
- $7,737
- Net income from fundraising events
- $11,072
- Net income from gaming
- $2,385
- Net income from sales of inventory
- $484
- Other revenue
- $13,941
Expenses
- Grants and similar amounts paid
- $209,783
- Compensation of officers, directors and key employees
- $121,105
- Other salaries and wages
- $228,672
- Salaries, compensation and benefits (total)
- $393,671
- Professional fundraising fees
- $0
- Accounting fees
- $4,862
- Occupancy
- $5,700
- Travel
- $5,373
- Program services (functional)
- $381,571
- Management and general (functional)
- $177,512
- Fundraising (functional)
- $138,259
Balance sheet and other
- Total assets, start of year
- $1,175,955
- Total assets, end of year
- $1,093,636
- Total liabilities, end of year
- $55,531
- Net assets, end of year
- $1,038,105
- Publicly traded securities
- $548,997
- Net assets without donor restrictions
- $508,608
- Net assets with donor restrictions
- $529,497
- Gross receipts
- $1,487,574
- Employees
- 4
- Volunteers
- 117
- Year formed
- 2004
- State of legal domicile
- MN
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Lachelle Semanko | Executive Director Officer | 40 | $115,385 | $5,720 |
| Scott Okuno MD | Board Member Trustee or director | 1 | $0 | $0 |
| Colin Ryan | Board Member Trustee or director | 1 | $0 | $0 |
| Maureen Anderson DNP | Board Member Trustee or director | 1 | $0 | $0 |
| Laura Gagne | Board Member Trustee or director | 1 | $0 | $0 |
| Jason Patalonis | Board Member Trustee or director | 1 | $0 | $0 |
| Brendan Dillon | Board Member Trustee or director | 1 | $0 | $0 |
| Stephanie Terezakis MD | Board Member Trustee or director | 1 | $0 | $0 |
| Andrea Espejo Freire MD | Board Member Trustee or director | 1 | $0 | $0 |
| John Charlson MD | Board Member Trustee or director | 1 | $0 | $0 |
| Dr David Largaespada | Board Member Trustee or director | 1 | $0 | $0 |
| Blake Hastings | Board Member Trustee or director | 1 | $0 | $0 |
| Eric Lien | President Trustee or director, Officer | 2 | $0 | $0 |
| Conner O'Brien | Vice President Trustee or director, Officer | 2 | $0 | $0 |
| Mitch Atherton | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
1 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Aaron Halbe | Secretary Trustee or director, Officer | 1 | $0 |
990 for the year ended December 31, 2023: 18 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Lachelle Semanko | Executive Director Officer | 40 | $83,387 |
| Janelle Calhoun | Executive Director Officer | 40 | $31,375 |
| Scott Okuno MD | Board Member Trustee or director | 1 | $0 |
| Colin Ryan | Board Member Trustee or director | 1 | $0 |
| Maureen Anderson DNP | Board Member Trustee or director | 1 | $0 |
| Laura Gagne | Board Member Trustee or director | 1 | $0 |
| Jason Patalonis | Board Member Trustee or director | 1 | $0 |
| Brendan Dillon | Board Member Trustee or director | 1 | $0 |
| Stephanie Terezakis MD | Board Member Trustee or director | 1 | $0 |
| Andrea Espejo Freire MD | Board Member Trustee or director | 1 | $0 |
| Valerie Lopez Torres | Board Member Trustee or director | 1 | $0 |
| John Charlson MD | Board Member Trustee or director | 1 | $0 |
| Dr David Largaespada | Board Member Trustee or director | 1 | $0 |
| Blake Hastings | Board Member Trustee or director | 1 | $0 |
| Eric Lien | President Trustee or director, Officer | 2 | $0 |
| Conner O'Brien | Vice President Trustee or director, Officer | 2 | $0 |
| Mitch Atherton | Treasurer Trustee or director, Officer | 1 | $0 |
| Aaron Halbe | Secretary Trustee or director, Officer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 7401 CENTRAL AVE NE STE 1, FRIDLEY, MN 55432-3572
- In care of
- % JANELLE CALHOUN
- Principal officer (990 for 2024)
- Mitch Atherton, 7401 Central Avenue NE A, Fridley, MN 55432
- Signed the 990
- Lachelle Semanko, Executive Director
- Phone
- (763) 205-1467
- Website
- reininsarcoma.org
- Return prepared by
- BWK Rogers PC
Mission
Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers.
Program accomplishments
- Rein in Sarcoma (RIS) was started in 2001 by Karen Wyckoff, a 25-year-old Synovial Sarcoma patient. As she fought this rare cancer, she thought there were things that needed doing to increase the quality of life and odds of survival for all sarcoma patients. As she started the organization, she developed the mission as it still remains today: We are dedicated to educating the public and medical community about sarcoma, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancer. Research for Sarcoma Cancer: RIS has partnered with many top-notch research institutions including: University of Minnesota, Mayo Clinic, Children's Minnesota, University of Calgary, Case Western Reserve, University of Michigan, and Aveni Foundation. RIS has funded seed money of more than $2.5M in high impact and collaborative research, which has generated more than $13M in additional support. Ninety-one research funding awards have been made to date. Education: RIS has established and expanded its Sarcoma Scholar Program to educate Medical Students and Advanced Practice students about sarcoma. This program began in 2009 with 2 scholars participating from the University of Minnesota and has now grown to 16 scholars from across the country in 2024, participating from University of Minnesota, Mayo Clinic Alix School of Medicine, University of Florida, University of Michigan, University of Iowa, Winona State University, Medical School of Wisconsin, and University of Wisconsin-Madison. Scholars educate their peers and public about sarcoma, complete sarcoma related projects, and go through a year-long sarcoma education program offered by RIS and sarcoma experts, specialists, and mentors. In addition, RIS provides free Patient Education Sarcoma Guidebooks to newly diagnosed patients and their caregivers. Guidebooks are also sent to sarcoma centers across the nation for distribution and are available for free download on the RIS website. The 9th Edition Guidebook was completed in 2024. Other educational activities include RIS participation in annual sarcoma related conferences, presenting and tabling opportunities to increase education. RIS has a YouTube channel that houses patient stories and educational videos. Patient and Family Support: Each year, RIS holds a Party in the Park event which is free to sarcoma patients, family members and those who have lost a loved one to sarcoma. Other patient and family support activities include peer to peer mentorship from other sarcoma survivors, Tote Bags of Hope filled with items for newly diagnosed and/or hospitalized patients, an active social media group for sarcoma patients and loved ones, Microgrants for patients in need of financial support during treatment and an in person monthly support group. Rein in Sarcoma is the largest and most well-known sarcoma foundation in the Midwest and continues to expand their services and reach nationwide.Expenses $381,571 · grants $209,783 · revenue $5,484
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 20-0811343
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2004
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H30)
- Assets (IRS master file)
- $1,093,636
- Income (IRS master file)
- $1,487,574
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $577,435 | $697,342 | $1,093,636 | XML |
| 990 | December 2023 | $606,354 | $554,483 | $1,175,955 | XML |
| 990 | December 2022 | $716,594 | $736,754 | $1,199,056 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 20-0811343).
Questions about KAREN WYCKOFF REIN IN SARCOMA
- What is the EIN of KAREN WYCKOFF REIN IN SARCOMA?
- The employer identification number (EIN) of KAREN WYCKOFF REIN IN SARCOMA is 20-0811343.
- Is KAREN WYCKOFF REIN IN SARCOMA tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2004.
- Are donations to KAREN WYCKOFF REIN IN SARCOMA tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does KAREN WYCKOFF REIN IN SARCOMA file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of KAREN WYCKOFF REIN IN SARCOMA due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did KAREN WYCKOFF REIN IN SARCOMA last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of KAREN WYCKOFF REIN IN SARCOMA?
- The 990 for the year ended December 31, 2024 names Mitch Atherton.
- Who are the officers and directors of KAREN WYCKOFF REIN IN SARCOMA?
- The 990 for the year ended December 31, 2024 lists 16 people; 1 received compensation from the organization, the highest $115,385 (Lachelle Semanko, Executive Director).
- How much revenue does KAREN WYCKOFF REIN IN SARCOMA have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $577,435, expenses of $697,342 and total assets of $1,093,636 at year end.
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