2024-11-14T12:57:27-07:00 2023-12-31 271375413 BWK Rogers PC 431 South 7th Street Suite 2424 Minneapolis MN 55415 990 2023-01-01 200811343 KAREN WYCKOFF REIN IN SARCOMA KARE 7632051467 7401 Central Avenue NE Suite A Fridley MN 55432 Lachelle Semanko Executive Director 6513414150 2024-11-12 1 1 Melissa J Baraibar P02464922 6123325446 2024-11-12 2023 2024-10-15 13:58:12Z Rein in Sarcoma Mitch Atherton 7401 Central Ave NE Suite A Fridley MN 55432 684868 0 X reininsarcoma.org X 2004 MN Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers. 15 15 6 250 0 0 744809 589192 0 0 5868 21052 -34083 -3890 716594 606354 346000 61025 0 0 172222 289921 17688 0 108619 200844 203537 736754 554483 -20160 51871 1199056 1175955 90252 15280 1108804 1160675 Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers. 0 0 229453 61025 0 Rein in Sarcoma (RIS) was started by Karen Wyckoff, a 25-year-old Synovial Sarcoma patient. As she fought this rare cancer, she found that there were three things that she thought needed doing to increase the quality of life and odds of survival for all sarcoma patients. As she started the organization, she developed the mission as it still remains today: We are dedicated to educating the public and medical community about sarcoma, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancer. Finding Cures for Sarcoma Cancer: RIS has partnered with many top-notch research institutions including: University of Minnesota, Mayo Clinic, Children's Minnesota, University of Calgary, Case Western Reserve and University of Michigan. RIS has funded more than $2.5M in high impact and collaborative research. Eighty seven research funding awards have been made to date. Education: RIS has established and expanded its Sarcoma Scholar Program to educate Medical Students and Advanced Practice students about sarcoma. This program began in 2009 with 2 scholars participating from the University of Minnesota and has now grown to 14 scholars from across the country in 2024, participating from University of Minnesota, Mayo Clinic Alix School of Medicine, University of Florida, University of Michigan, University of Iowa, Winona State University, Medical School of Wisconsin and University of Wisconsin-Madison. Scholars educate their peers and public about sarcoma, complete sarcoma related projects, and go through a year-long sarcoma education program offered by RIS and sarcoma experts, specialists and mentors. In addition, RIS provides free Patient Education Sarcoma Guidebooks to newly diagnosed patients and their caregivers. Guidebooks are also sent to sarcoma centers across the nation for distribution and is available for free download on the RIS website. The 9th Edition Guidebook was completed in 2024. Other educational activities include RIS participation in annual sarcoma related conferences, presenting and tabling opportunities to increase education. RIS has a YouTube channel that houses patient stories and educational videos. Patient and Family Support: Each year, RIS holds a Party in the Park event which is free to sarcoma patients, family members and those who have lost a loved one to sarcoma. Other patient and family support activities include a Winter Gathering for patients to come together and learn about a new sarcoma topic and participate in a reflection activity. The annual RIS Remembers gathering brings together those who have lost a loved one to sarcoma, and offers a time to reflect and honor that loved one. RIS also provides peer to peer mentorship from other sarcoma survivors, Tote Bags of Hope filled with items for newly diagnosed and/or hospitalized patients, an active social media group for sarcoma patients and loved ones, Microgrants for patients in need of financial support during treatment and an in person monthly support group. Rein in Sarcoma is the largest and most well-known sarcoma foundation in the Midwest. 0 0 0 229453 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 9 0 1 6 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 15 15 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MN X X X The Organization 7632051467 7401 Central Avenue NE Suite A Fridley MN 55432 Lachelle Semanko Executive Director 40 0 X 83387 0 0 Janelle Calhoun Executive Director 40 0 X 31375 0 0 Scott Okuno MD Board Member 1 0 X 0 0 0 Colin Ryan Board Member 1 0 X 0 0 0 Maureen Anderson DNP Board Member 1 0 X 0 0 0 Laura Gagne Board Member 1 0 X 0 0 0 Jason Patalonis Board Member 1 0 X 0 0 0 Brendan Dillon Board Member 1 0 X 0 0 0 Stephanie Terezakis MD Board Member 1 0 X 0 0 0 Andrea Espejo Freire MD Board Member 1 0 X 0 0 0 Valerie Lopez Torres Board Member 1 0 X 0 0 0 John Charlson MD Board Member 1 0 X 0 0 0 Dr David Largaespada Board Member 1 0 X 0 0 0 Blake Hastings Board Member 1 0 X 0 0 0 Eric Lien President 2 0 X X 0 0 0 Conner O'Brien Vice President 2 0 X X 0 0 0 Mitch Atherton Treasurer 1 0 X X 0 0 0 Aaron Halbe Secretary 1 0 X X 0 0 0 114762 0 0 0 0 0 0 0 0 0 187392 0 0 401800 0 589192 0 0 0 0 0 21052 0 0 21052 0 0 0 0 0 0 0 0 0 0 0 0 72839 187392 76230 -3391 0 -3391 1785 2284 -499 0 0 -499 0 606354 0 0 17162 X 61000 61000 25 25 0 0 114762 45905 49042 19815 158612 46922 44812 66878 16547 4607 5681 6259 11247 0 11247 0 95052 39238 47937 7877 3041 3041 0 0 31006 17611 10636 2759 27682 0 27682 0 4000 2800 600 600 2984 0 2884 100 7707 7015 692 0 7641 0 7641 0 Bank & Other Fees 7449 0 7449 0 5728 1289 108 4331 554483 229453 216411 108619 623893 580569 507023 236645 11275 7687 0 718 56865 350336 1199056 1175955 40252 15280 50000 0 0 0 90252 15280 X 579337 587102 529467 573573 1108804 1160675 1199056 1175955 51871 0 0 0 0 0 X 0 0 0 X 574526 445627 960917 744809 589192 3315071 0 0 305 0 0 305 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 574526 445627 961222 744809 589192 3315376 0 0 30000 0 17061 47061 0 0 0 0 0 0 0 0 30000 0 17061 47061 3268315 545 77 1844 2770 21052 26288 0 0 0 0 0 0 545 77 1844 2770 21052 26288 0 0 0 0 0 0 0 0 0 0 0 0 575071 445704 963066 747579 610244 3341664 0.97805 0.98870 0.00787 0.00180 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Sunflower Soiree 163312 118278 45034 0 0 0 19153 0 18538 Golf Tournament 58470 40500 17970 0 539 9822 5744 0 57 2 38449 28614 9835 0 0 6519 0 15715 143 260231 187392 72839 0 539 16341 24897 15715 18738 76230 -3391 1 Children's Hospitals and Clinics 2525 Chicago Ave Minneapolis MN 55404 411814223 501(c)(3) 15000 0 Educate medical students about Sarcoma who in turn educate peers with long lasting impact. Mayo Clinic 400 South Broadway Ste 106 Rochester MN 55904 416011702 501(c)(3) 25000 0 Sarcoma Research University of Minnesota 200 Oak Street SE Minneapolis MN 55455 416042488 501(c)(3) 9000 0 Educate medical students about Sarcoma who in turn educate peers with long lasting impact. Mayo Foundation for Medical Education and Research 400 South Broadway Ste 106 Rochester MN 55904 411506440 501(c)(3) 6000 0 Educate medical students about Sarcoma who in turn educate peers with long lasting impact. 4 0 Schedule I, Part I, Line 2 Grants are administered and overseen through a Rein in Sarcoma research committee and the receiving foundation. Form 990, Part VI, Section A, Line 2 Maureen Anderson, Blake Hastings, and Colin Ryan have a family relationship. All are volunteer board member positions with no compensation or influence. Form 990, Part VI, Section B, Line 11b Upon completion of the Form 990 by the CPA firm, it is reviewed with the Finance Committee, who votes to approve our tax document and send it on to the Board of Directors for review before a meeting. The form is discussed at a quarterly Board meeting. The Board votes to approve upon any suggested edits being made. Form 990, Part VI, Section B, Line 12c At every first quarter Board meeting, RIS reviews the conflict of interest policy and sends it out to every Board member to review, sign, and return to the office digitally or via paper. During votes, if there is a conflict of interest, the voting member recuses themselves from that vote. Form 990, Part VI, Section B, Line 15 The Executive Director position is paid an annual salary that is aligned to the Nonprofit Salary and Benefits Survey published by Minnesota Council of Nonprofits. All other employees also have salaries aligned with the Nonprofit Salary and Benefits Publication. The ED performance and salary are reviewed by the Board of Directors annually. Form 990, Part VI, Section C, Line 19 The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. Additionally, the annual reports can be found on the organization's website. Form 990, Part IX, Line 11g Contracted Services $93,168