Nonprofit · EIN 91-6068857
THE BLEEDING DISORDER FOUNDATION OF WASHINGTON
Tax-exempt · SHORELINE, WA 98155
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $374,037 | $522,065 | -$148,028 | $256,878 | $16,497 | $240,381 |
| December 31, 2023 | 990 | $376,812 | $570,663 | -$193,851 | $413,904 | $15,581 | $398,323 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $351,970
- Program service revenue
- $0
- Investment income
- $10,067
- Other revenue
- $12,000
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $144,553
- Other salaries and wages
- $184,050
- Salaries, compensation and benefits (total)
- $362,700
- Professional fundraising fees
- $0
- Accounting fees
- $2,495
- Occupancy
- $7,356
- Program services (functional)
- $401,119
- Management and general (functional)
- $83,982
- Fundraising (functional)
- $36,964
Balance sheet and other
- Total assets, start of year
- $413,904
- Total assets, end of year
- $256,878
- Total liabilities, end of year
- $16,497
- Net assets, end of year
- $240,381
- Publicly traded securities
- $10,000
- Net assets without donor restrictions
- $187,434
- Net assets with donor restrictions
- $52,947
- Gross unrelated business income
- $12,000
- Gross receipts
- $374,037
- Employees
- 3
- Volunteers
- 22
- Year formed
- 1989
- State of legal domicile
- WA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Stephanie Simpson | Executive Dir. Officer | 40 | $160,000 | $6,000 |
| Allison Yena | President Trustee or director, Officer | 2 | $0 | $0 |
| Chyna Lockart | Vice President Trustee or director, Officer | 1 | $0 | $0 |
| Chris Bucholz | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Gautham Mudambi | Director Trustee or director | 1 | $0 | $0 |
| Laynee Newkirk | Director Trustee or director | 1 | $0 | $0 |
| Joseph Liberman | Director Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| STEPHANIE SIMPSON | EXECUTIVE DIRECTOR Officer | 40 | $130,000 | $6,000 |
| KATIE DAWDY | PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| ALLISON YENA | PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| CHYNA LOCKHART | VICE PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| CHRIS BUCHOLZ | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| ALLIE RITCHEY | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| GAUTHAM MUDAMBI | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| LAYNEE NEWKIRK | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| JOSEPH LIBERMAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 20126 BALLINGER WAY NE PMB 165, SHORELINE, WA 98155-1117
- Principal officer (990 for 2024)
- Allison Yena, 20126 Ballinger Way NE 165, Shoreline, WA 98155
- Signed the 990
- Allison Yena, President
- Phone
- (206) 533-1660
- Website
- www.bdfwa.org
- Return prepared by
- JACOBSON LAWRENCE & ASSOCIATES PLLC
Mission
The Bleeding Disorder Foundation of Washington mission: The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases.
Program accomplishments
- Educate those living with bleeding disorders and how to manage their complicated healthcare condition of bleeding disorder. Bleeding disorders are lifelong conditions that require education at each stage of life. With advancements in science the BDFW has had to revamp and update all our educate material to meet the needs of the community. This is creating education for each subset of age and gender while making sure it is culturally and socioeconomically appropriate. Due to the cost of bleeding disorders this education also includes how to manage our health care and insurance navigation. With medication for severe hemophilia costing $1 million per year the need for understanding health insurance is critical to accessing the lifesaving medication and care. This program directly serves over 500 direct in-person education encounters and provides online education to be accessed by over $70,000 living with bleeding disorder in Washington State.Expenses $196,549
- Patient assistance has been a growing area of support provided by the BDFW to serve those living with bleeding disorders directly. These direct services programs were expanded during COVID but have been maintained since due to the need. These services provide medical ID bracelets to over 250 children per year, back-to-school supplies, winter clothes, and shoes for safe play to reduce bleeding episodes. These services also include gap food support, transportation to medical visits pertaining to their bleeding disorder, lodging for doctor visits and hospital stays, and supportive devices not covered by insurance. Bleeding disorders have a large percentage of patients on Medicaid and Medicare due to the cost of the care creating decades of institutional poverty. Direct patient assistance is critical for patients to manage their condition.Expenses $128,358
- Access to care advocacy and empowerment services focus on navigation of insurance, education on insurance, and access to coverage of bleeding disorder treatment on public and private insurance plans. Hemophilia is a bleeding disorder, that has some of the most expensive treatments in the country. The BDFW advocates for access to these treatments and all treatments for rare diseases through this program. We work with bleeding disorders and rare disease patients on how to advocate for themselves with elected officials, employers, school, and medical providers.Expenses $76,212
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 91-6068857
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1999
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $256,878
- Income (IRS master file)
- $374,037
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $374,037 | $522,065 | $256,878 | XML |
| 990-T | December 2024 | – | – | – | IRS |
| 990 | December 2023 | $376,812 | $570,663 | $413,904 | XML |
| 990 | December 2022 | $493,323 | $506,639 | $603,485 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-T | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-T | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 91-6068857).
Questions about THE BLEEDING DISORDER FOUNDATION OF WASHINGTON
- What is the EIN of THE BLEEDING DISORDER FOUNDATION OF WASHINGTON?
- The employer identification number (EIN) of THE BLEEDING DISORDER FOUNDATION OF WASHINGTON is 91-6068857.
- Is THE BLEEDING DISORDER FOUNDATION OF WASHINGTON tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1999.
- Are donations to THE BLEEDING DISORDER FOUNDATION OF WASHINGTON tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE BLEEDING DISORDER FOUNDATION OF WASHINGTON file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE BLEEDING DISORDER FOUNDATION OF WASHINGTON due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE BLEEDING DISORDER FOUNDATION OF WASHINGTON last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of THE BLEEDING DISORDER FOUNDATION OF WASHINGTON?
- The 990 for the year ended December 31, 2024 names Allison Yena.
- Who are the officers and directors of THE BLEEDING DISORDER FOUNDATION OF WASHINGTON?
- The 990 for the year ended December 31, 2024 lists 7 people; 1 received compensation from the organization, the highest $160,000 (Stephanie Simpson, Executive Dir.).
- How much revenue does THE BLEEDING DISORDER FOUNDATION OF WASHINGTON have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $374,037, expenses of $522,065 and total assets of $256,878 at year end.
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