2025-12-03T13:16:57-08:00 2024-12-31 825419537 JACOBSON LAWRENCE & ASSOCIATES PLLC 200 FIRST AVENUE W SUITE 302 SEATTLE WA 98119 990 2024-01-01 916068857 The Bleeding Disorder Foundation of Washington BLEE 2065331660 20126 Ballinger Way NE 165 Shoreline WA 98155 Allison Yena President 2025-12-03 true true Derek Desjardins CPA P01410368 2067282727 2024 2025-03-06 01:10:19Z Allison Yena 20126 Ballinger Way NE 165 Shoreline WA 98155 374037 false X www.bdfwa.org X 1989 WA The Bleeding Disorder Foundation of Washington mission: The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases. 7 7 3 22 12000 11000 373421 351970 1353 0 2038 10067 12000 376812 374037 0 0 373972 362700 0 36964 196691 159365 570663 522065 -193851 -148028 413904 256878 15581 16497 398323 240381 The Bleeding Disorder Foundation of Washington mission: The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases. false false 196549 Educate those living with bleeding disorders and how to manage their complicated healthcare condition of bleeding disorder. Bleeding disorders are lifelong conditions that require education at each stage of life. With advancements in science the BDFW has had to revamp and update all our educate material to meet the needs of the community. This is creating education for each subset of age and gender while making sure it is culturally and socioeconomically appropriate. Due to the cost of bleeding disorders this education also includes how to manage our health care and insurance navigation. With medication for severe hemophilia costing $1 million per year the need for understanding health insurance is critical to accessing the lifesaving medication and care. This program directly serves over 500 direct in-person education encounters and provides online education to be accessed by over $70,000 living with bleeding disorder in Washington State. 128358 Patient assistance has been a growing area of support provided by the BDFW to serve those living with bleeding disorders directly. These direct services programs were expanded during COVID but have been maintained since due to the need. These services provide medical ID bracelets to over 250 children per year, back-to-school supplies, winter clothes, and shoes for safe play to reduce bleeding episodes. These services also include gap food support, transportation to medical visits pertaining to their bleeding disorder, lodging for doctor visits and hospital stays, and supportive devices not covered by insurance. Bleeding disorders have a large percentage of patients on Medicaid and Medicare due to the cost of the care creating decades of institutional poverty. Direct patient assistance is critical for patients to manage their condition. 76212 Access to care advocacy and empowerment services focus on navigation of insurance, education on insurance, and access to coverage of bleeding disorder treatment on public and private insurance plans. Hemophilia is a bleeding disorder, that has some of the most expensive treatments in the country. The BDFW advocates for access to these treatments and all treatments for rare diseases through this program. We work with bleeding disorders and rare disease patients on how to advocate for themselves with elected officials, employers, school, and medical providers. 401119 true true false false false false false false false false false false false false true false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false true 1 0 true 3 true true true false false false false false false 0 false false false false false false false X 7 7 false false false false true true true true true false false true true true true true true true true false WA X Jennifer Maguire 2065331660 20126 Ballinger Way NE 165 Shoreline WA 98155 Stephanie Simpson Executive Dir. 40.00 0.00 X 160000 0 6000 Allison Yena President 2.00 0.00 X X 0 0 0 Chyna Lockart Vice President 1.00 0.00 X X 0 0 0 Chris Bucholz Treasurer 1.00 0.00 X X 0 0 0 Gautham Mudambi Director 1.00 0.00 X 0 0 0 Laynee Newkirk Director 1.00 0.00 X 0 0 0 Joseph Liberman Director 1.00 0.00 X 0 0 0 160000 6000 1 false true false 0 351970 351970 0 10067 10067 0 0 0 0 0 0 0 Newsletter 541800 12000 12000 12000 374037 12000 10067 0 0 0 0 144553 101656 30735 12162 0 184050 128865 38629 16556 0 8100 5700 1680 720 25997 18197 3900 3900 0 0 2495 2495 23265 23265 0 0 22735 22735 2598 2078 260 260 7742 6194 774 774 11528 9222 1153 1153 0 7356 5885 736 735 0 0 16883 16883 0 0 0 7043 5634 705 704 Patient Education 29986 29986 Patient Support Service 24819 24819 Other 2915 2915 0 522065 401119 83982 36964 85881 186789 187002 30638 0 126570 25000 0 0 0 0 4451 4451 0 10000 10000 0 0 0 0 413904 256878 15581 16496 1 15581 16497 X 345376 187434 52947 52947 398323 240381 413904 256878 -148028 -9914 X false false false X 505422 441814 493281 373421 351970 2165908 0 0 505422 441814 493281 373421 351970 2165908 512660 1653248 241 125 42 2038 10067 12513 0 1073 1073 2179494 10041 0.75850 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Rounding 1 1 false false false false false false false false false Stephanie Simpson Executive Dir. 160000 6000 166000 Form 990, Part VI, Section A, Line 6 The members elect the governing board and are given the opportunity to approve and provide feedback on major decisions including new members, the executive team and the annual report. Form 990, Part VI, Section A, Line 7a Members at large vote to approve board members. Form 990, Part VI, Section A, Line 7b Members at large vote to approve board members. Form 990, Part VI, Section B, Line 11b The Board President reviews the Form 990, followed by a review by the full board. Form 990, Part VI, Section B, Line 12c Asks and pays attention to social media and employment. Form 990, Part VI, Section B, Line 15b Evaluate the market of salaries for employees in Washington State with the experience of staff. Form 990, Part VI, Section C, Line 19 Governing documents and financial statements are made available to the public upon request.