Nonprofit · EIN 90-0658125
HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN
Tax-exempt · NEW YORK, NY 10018
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $3,749,799 | $3,500,605 | $249,194 | $866,995 | $29,325 | $837,670 |
| December 31, 2024 | 990 | $3,205,651 | $3,477,679 | -$272,028 | $610,639 | $22,163 | $588,476 |
| December 31, 2023 | 990 | $3,252,082 | $3,044,483 | $207,599 | $890,427 | $29,923 | $860,504 |
| December 31, 2021 | 990 | $2,867,187 | $2,897,324 | -$30,137 | $785,577 | $29,198 | $756,379 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $3,722,802
- Program service revenue
- $0
- Investment income
- $244
- Other revenue
- $26,753
Expenses
- Grants and similar amounts paid
- $27,466
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Occupancy
- $23,299
- Depreciation
- $300
- Program services (functional)
- $3,243,033
- Management and general (functional)
- $275
- Fundraising (functional)
- $257,297
Balance sheet and other
- Total assets, start of year
- $610,639
- Total assets, end of year
- $866,995
- Total liabilities, end of year
- $29,325
- Net assets, end of year
- $837,670
- Land, buildings and equipment
- $425
- Net assets without donor restrictions
- $740,495
- Net assets with donor restrictions
- $97,175
- Gross receipts
- $4,181,245
- Employees
- 39
- Volunteers
- 500
- Year formed
- 1986
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| AMY GRAY | CHIEF EXECUTIVE OFFICER Officer | 3 | $333,963 | $1,018 |
| ARIK JOHNSON | CHIEF MISSION OFFICER Key employee | 3 | $237,342 | $27,290 |
| REBECCA CHAN | CONTROLLER Highest-paid employee | 3 | $156,410 | $48,107 |
| ROSEMARY COLUCCIO | CHIEF OPERATIONS OFF (THRU 6/13/25) Officer | 3 | $176,343 | $17,778 |
| MYNELLY PEREZ-ORELLANA | DIRECTOR, MARKETING & COMM. Highest-paid employee | 3 | $123,303 | $46,070 |
| DEBORAH BOYD | REGIONAL DEVELOPMENT DIREC Highest-paid employee | 3 | $135,417 | $24,253 |
| JESSICA MARSOLEK | ASSISTANT DIRECTOR, MISSIO Highest-paid employee | 3 | $119,589 | $23,390 |
| MELINDA JENSEN | REGIONAL DEVELOPMENT OFFICER Highest-paid employee | 3 | $108,819 | $22,206 |
| JENNE COLER-DARK | CHAIR Trustee or director, Officer | 3 | $0 | $0 |
| ANGELA ALLEN | CHAIR ELECT Trustee or director, Officer | 3 | $0 | $0 |
| TERESA SRAJER | PAST CHAIR Trustee or director, Officer | 3 | $0 | $0 |
| JAY HUGHES | SECRETARY Trustee or director, Officer | 3 | $0 | $0 |
| CHRISTOPHER DECESARIS | TREASURER Trustee or director, Officer | 3 | $0 | $0 |
| JEFFREY BROWN | TRUSTEE Trustee or director | 3 | $0 | $0 |
| MARK COE | TRUSTEE Trustee or director | 3 | $0 | $0 |
7 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ERIN FURR-STIMMING MD | TRUSTEE Trustee or director | 3 | $0 |
| BETH HOFFMAN | TRUSTEE Trustee or director | 3 | $0 |
| JONATHAN KLEIN ESQ | TRUSTEE Trustee or director | 3 | $0 |
| JAIME HATCHER-MARTIN MD | TRUSTEE Trustee or director | 3 | $0 |
| MARA SIFRY | TRUSTEE Trustee or director | 3 | $0 |
| AMBER SOUTHWELL PHD | TRUSTEE Trustee or director | 3 | $0 |
| DOMINIQUE THOMAS | TRUSTEE Trustee or director | 3 | $0 |
990 for the year ended December 31, 2024: 26 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ROSEMARY COLUCCIO | CHIEF OPERATIONS OFFICER Officer | 35 | $286,482 | $31,727 |
| LOUISE VETTER | CHIEF EXECUTIVE OFF (THRU 7/12/2024) Officer | 35 | $281,981 | $34,155 |
| ARIK JOHNSON | CHIEF MISSION OFFICER Key employee | 35 | $218,271 | $14,571 |
| JAMISON SKALA | DIRECTOR, NATIONAL DEVELOPMENT Highest-paid employee | 35 | $190,938 | $13,229 |
| REBECCA CHAN | CONTROLLER Highest-paid employee | 35 | $120,050 | $44,507 |
| DEBORAH BOYD | REGIONAL DEVELOPMENT DIRECTOR Highest-paid employee | 35 | $120,084 | $22,631 |
| JESSICA MARSOLEK | ASSISTANT DIRECTOR, MISSION PROGRAMS Highest-paid employee | 35 | $111,772 | $19,744 |
| NICHOLE MENDOZA | REGIONAL DEVELOPMENT OFFICER PACIFIC WEST Highest-paid employee | 35 | $102,612 | $21,541 |
| VICTOR SUNG MD | PAST CHAIR Trustee or director, Officer | 6 | $0 | $0 |
| TERESA SRAJER | CHAIR Trustee or director, Officer | 6 | $0 | $0 |
| ANGELA ALLEN | TREASURER Trustee or director, Officer | 6 | $0 | $0 |
| JENNE COLER-DARK | CHAIR ELECT Trustee or director, Officer | 6 | $0 | $0 |
| JAY HUGHES | SECRETARY Trustee or director, Officer | 6 | $0 | $0 |
| KAMRAN ALAM | TRUSTEE Trustee or director | 6 | $0 | $0 |
| JEFFREY BROWN | TRUSTEE Trustee or director | 6 | $0 | $0 |
| JEFF CARROLL | TRUSTEE Trustee or director | 6 | $0 | $0 |
| MARK COE | TRUSTEE Trustee or director | 6 | $0 | $0 |
| ERIN FURR-STIMMING MD | TRUSTEE Trustee or director | 6 | $0 | $0 |
| BETH HOFFMAN | TRUSTEE Trustee or director | 6 | $0 | $0 |
| JONATHAN KLEIN ESQ | TRUSTEE Trustee or director | 6 | $0 | $0 |
| KELSEY PORTER | TRUSTEE (THRU 6/2024) Trustee or director | 6 | $0 | $0 |
| DOMINIQUE THOMAS | TRUSTEE Trustee or director | 6 | $0 | $0 |
| LESLIE M THOMPSON PHD | TRUSTEE Trustee or director | 6 | $0 | $0 |
| VICKI WHEELOCK MD | TRUSTEE Trustee or director | 6 | $0 | $0 |
| AMBER SOUTHWELL PHD | TRUSTEE Trustee or director | 6 | $0 | $0 |
| CHRISTOPHER DECESARIS | TRUSTEE Trustee or director | 6 | $0 | $0 |
990 for the year ended December 31, 2023: 23 people
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| LOUISE VETTER | CHIEF EXECUTIVE OFFICER Officer | 3 | $0 | $370,302 | $53,072 |
| ROSEMARY COLUCCIO | CHIEF OPERATIONS OFFICER Officer | 3 | $0 | $260,173 | $29,750 |
| DEBRA LOVECKY | DIR. OF EDUCATION PROG THRU MAY 2023 Highest-paid employee | 3 | $0 | $257,479 | $17,698 |
| ARIK JOHNSON | CHIEF MISSION OFFICER Key employee | 3 | $0 | $203,067 | $11,418 |
| JAMISON SKALA | DIRECTOR, NATIONAL DEVELOP Highest-paid employee | 3 | $0 | $173,121 | $12,348 |
| REBECCA CHAN | CONTROLLER Highest-paid employee | 3 | $0 | $112,876 | $42,564 |
| DEBORAH BOYD | REGIONAL DEVELOPMENT DIREC Highest-paid employee | 3 | $0 | $117,667 | $21,815 |
| VICTOR SUNG MD | PAST CHAIR Trustee or director, Officer | 3 | $0 | $0 | $0 |
| TERESA SRAJER | CHAIR Trustee or director, Officer | 3 | $0 | $0 | $0 |
| KAMRAN ALAM | TREASURER Trustee or director, Officer | 3 | $0 | $0 | $0 |
| JENNE COLER-DARK | CHAIR ELECT Trustee or director, Officer | 3 | $0 | $0 | $0 |
| JAY HUGHES | SECRETARY Trustee or director, Officer | 3 | $0 | $0 | $0 |
| ANGELA ALLEN | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| JEFFREY BROWN | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| JEFF CARROLL | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| MARK COE | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| ERIN FURR-STIMMING MD | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| BETH HOFFMAN | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| JONATHAN KLEIN ESQ | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| KELSEY PORTER | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| DOMINIQUE THOMAS | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| LESLIE M THOMPSON PHD | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| VICKI WHEELOCK MD | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
990 for the year ended December 31, 2021: 24 people
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| LOUISE VETTER | CHIEF EXECUTIVE OFFICER Officer | 3 | $0 | $335,472 | $44,442 |
| ROSEMARY COLUCCIO | CHIEF OPERATIONS OFFICER Officer | 3 | $0 | $238,551 | $26,987 |
| DEBRA LOVECKY | DIRECTOR OF EDUCATION PROGRAMS Highest-paid employee | 3 | $0 | $156,953 | $23,216 |
| CHRISTOPHER COSENTINO | DIRECTOR OF MARKETING & COMM. Highest-paid employee | 3 | $0 | $134,583 | $40,216 |
| JAMISON SKALA | DIRECTOR, NATIONAL DEVELOPMENT Highest-paid employee | 3 | $0 | $160,058 | $11,383 |
| GEORGE YOHRLING | CHIEF MISSION & SCI. AFFAIRS Highest-paid employee | 3 | $0 | $158,686 | $8,630 |
| DEBORAH BOYD | REGIONAL DEVELOPMENT DIRECTOR Highest-paid employee | 3 | $0 | $108,027 | $19,173 |
| VICTOR SUNG MD | CHAIR Trustee or director, Officer | 3 | $0 | $0 | $0 |
| TERESA SRAJER | CHAIR-ELECT Trustee or director, Officer | 3 | $0 | $0 | $0 |
| KAMRAN ALAM | TREASURER Trustee or director, Officer | 3 | $0 | $0 | $0 |
| JENNE COLER-DARK | SECRETARY Trustee or director, Officer | 3 | $0 | $0 | $0 |
| EJ GARNER | PAST CHAIR Trustee or director, Officer | 3 | $0 | $0 | $0 |
| ANGELA ALLEN | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| DANIEL BRENNAN | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| MARK COE | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| STACY COEN | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| WENDY ERLER | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| ERIN FURR-STIMMING MD | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| JAY HUGHES | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| JONATHAN KLEIN ESQ | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| KELSEY PORTER | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| DOMINIQUE THOMAS | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| LESLIE M THOMPSON PHD | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
| VICKI WHEELOCK MD | TRUSTEE Trustee or director | 3 | $0 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 505 8TH AVE RM 1402, NEW YORK, NY 10018-4574
- In care of
- % ROSEMARY COLUCCIO
- Principal officer (990 for 2025)
- AMY GRAY, 505 EIGHTH AVENUE SUITE 1402, NY, NY 10018
- Signed the 990
- AMY GRAY, PRESIDENT AND CEO
- Phone
- (212) 242-1968
- Website
- WWW.HDSA.ORG
- Return prepared by
- EISNER ADVISORY GROUP LLC
Mission
TO IMPROVE THE LIVES OF EVERYONE IMPACTED BY HUNTINGTON'S DISEASE BY PROVIDING SUPPORT, DRIVING ADVOCACY, AND ACCELERATING RESEARCH.
Program accomplishments
- RESEARCH - SUPPORTS RESEARCH AS ADVISED BY ITS SCIENTIFIC ADVISORY BOARD. THE RESEARCH PROJECTS ARE INVOLVED IN FINDING CURES AND TREATMENTS FOR HUNTINGTON'S DISEASE.Expenses $2,714,135 · grants $27,466
- COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES.Expenses $113,782
- PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.Expenses $415,116
What it must file and when
IRS records say it files Group return. Included in a group return filed by its parent. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 90-0658125
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Exempt since
- 1988
- Accounting year ends
- December
- Files
- Group return
- Group exemption
- 9201: HUNTINGTONS DISEASE SOCIETY OF AMERICA INC
- Assets (IRS master file)
- $866,995
- Income (IRS master file)
- $4,181,245
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $3,749,799 | $3,500,605 | $866,995 | XML |
| 990 | December 2024 | $3,205,651 | $3,477,679 | $610,639 | IRS |
| 990 | December 2023 | $3,252,082 | $3,044,483 | $890,427 | XML |
| 990 | December 2022 | $3,567,800 | $3,671,274 | $739,599 | IRS |
| 990 | December 2021 | $2,867,187 | $2,897,324 | $785,577 | XML |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 90-0658125).
Questions about HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN
- What is the EIN of HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN?
- The employer identification number (EIN) of HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN is 90-0658125.
- Is HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1988.
- Which annual return does HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN file?
- Form Group return. Included in a group return filed by its parent.
- When is the next return of HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN?
- The 990 for the year ended December 31, 2025 names AMY GRAY.
- Who are the officers and directors of HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN?
- The 990 for the year ended December 31, 2025 lists 22 people; 8 received compensation from the organization, the highest $333,963 (AMY GRAY, CHIEF EXECUTIVE OFFICER).
- How much revenue does HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $3,749,799, expenses of $3,500,605 and total assets of $866,995 at year end.
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