2022-09-12T13:30:09-05:00 2021-12-31 871353108 EISNER ADVISORY GROUP LLC 733 THIRD AVENUE NEW YORK NY 100172703 990 2021-01-01 900658125 HUNTINGTON'S DISEASE SOCIETY OF AMERICA GROUP HUNT 2122421968 505 EIGHTH AVENUE SUITE 902 NEW YORK NY 10018 LOUISE VETTER CEO 2122421968 2022-09-12 1 LOUISE VETTER 999009999 WILLIAM EPSTEIN P01307171 2129498700 0 AAL1 IAL1 2021 2023-04-26 12:10:37Z LOUISE VETTER 505 EIGHTH AVENUE SUITE 902 NY NY 10018 3112128 1 1 9201 X WWW.HDSA.ORG X 1986 NY DEDICATED TO IMPROVING THE LIVES OF PEOPLE AND FAMILIES LIVING WITH HUNTINGTON'S DISEASE. 17 17 0 500 0 0 1930909 2867098 0 0 58 0 1259 89 1932226 2867187 0 0 0 0 0 0 0 0 388445 2053345 2897324 2053345 2897324 -121119 -30137 823490 785577 36974 29198 786516 756379 HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES 0 0 2402113 PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. 96381 COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES. 9068 EDUCATION - PROVIDES INFORMATION AND EDUCATION THROUGH PUBLICATION AND DISTRIBUTION OF NEWSLETTERS, BROCHURES AND SCIENCE UPDATES. 2507562 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 X 0 0 0 0 0 0 0 0 1 1 0 0 0 1 0 0 0 X 17 17 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X ROSEMARY COLUCCIO 2122421968 505 EIGHTH AVENUE SUITE 902 NEW YORK NY 10018 VICTOR SUNG MD CHAIR 3.00 6.00 X X 0 0 0 TERESA SRAJER CHAIR-ELECT 3.00 6.00 X X 0 0 0 KAMRAN ALAM TREASURER 3.00 6.00 X X 0 0 0 JENNE COLER-DARK SECRETARY 3.00 6.00 X X 0 0 0 EJ GARNER PAST CHAIR 3.00 6.00 X X 0 0 0 ANGELA ALLEN TRUSTEE 3.00 6.00 X 0 0 0 DANIEL BRENNAN TRUSTEE 3.00 6.00 X 0 0 0 MARK COE TRUSTEE 3.00 6.00 X 0 0 0 STACY COEN TRUSTEE 3.00 6.00 X 0 0 0 WENDY ERLER TRUSTEE 3.00 6.00 X 0 0 0 ERIN FURR-STIMMING MD TRUSTEE 3.00 6.00 X 0 0 0 JAY HUGHES TRUSTEE 3.00 6.00 X 0 0 0 JONATHAN KLEIN ESQ TRUSTEE 3.00 6.00 X 0 0 0 KELSEY PORTER TRUSTEE 3.00 6.00 X 0 0 0 DOMINIQUE THOMAS TRUSTEE 3.00 6.00 X 0 0 0 LESLIE M THOMPSON PHD TRUSTEE 3.00 6.00 X 0 0 0 VICKI WHEELOCK MD TRUSTEE 3.00 6.00 X 0 0 0 LOUISE VETTER CHIEF EXECUTIVE OFFICER 3.00 35.00 X 0 335472 44442 ROSEMARY COLUCCIO CHIEF OPERATIONS OFFICER 3.00 35.00 X 0 238551 26987 CHRISTOPHER COSENTINO DIRECTOR OF MARKETING & COMM. 3.00 35.00 X 0 134583 40216 GEORGE YOHRLING CHIEF MISSION & SCI. AFFAIRS 3.00 35.00 X 0 158686 8630 JAMISON SKALA DIRECTOR, NATIONAL DEVELOPMENT 3.00 35.00 X 0 160058 11383 DEBRA LOVECKY DIRECTOR OF EDUCATION PROGRAMS 3.00 35.00 X 0 156953 23216 DEBORAH BOYD REGIONAL DEVELOPMENT DIRECTOR 3.00 35.00 X 0 108027 19173 0 1292330 174047 8 0 1 0 0 65434 2002516 799148 30675 2867098 244941 2002516 244941 0 MISCELLANEOUS 900099 89 89 89 2867187 89 0 0 X 255556 255496 60 18683 16394 2289 3710 3710 15000 12396 2604 2130419 2130419 2417 2417 1160 803 357 PRIZES AND GIFTS 300401 55461 244940 OTHER EXPENSES 60364 10032 1016 49316 BANK AND CREDIT CARD FE 42111 226 97 41788 POSTAGE AND SHIPPING 29525 6201 204 23120 37978 14007 23971 2897324 2507562 1317 388445 812011 757736 3150 10994 3127 14063 70496 67712 5202 2784 823490 785577 19174 18215 17800 10983 36974 29198 X 559531 624652 226985 131727 786516 756379 823490 785577 -30137 0 X 0 1 X 1 0 X 3080301 4451475 3341459 1930908 2867098 15671241 3080301 4451475 3341459 1930908 2867098 15671241 15671241 70 7 11 3 0 91 56471 52445 61070 1259 89 171334 15842666 0.98920 0.98910 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS - 2017 AMOUNT: $ 56,471. 2018 AMOUNT: $ 52,445. 2019 AMOUNT: $ 61,070. 2020 AMOUNT: $ 1,259. 2021 AMOUNT: $ 89. 70496 67712 2784 2784 X 12938478 12201710 12201710 736768 2130419 2130419 2867187 8727928 7961023 7961023 766905 2130419 2130419 2897324 PART X, LINE 2: THE SOCIETY FOLLOWS THE PROVISIONS OF THE FASB'S ASC TOPIC 740, INCOME TAXES, AS IT RELATES TO ACCOUNTING AND REPORTING FOR UNCERTAINTY IN INCOME TAXES. BECAUSE OF THE SOCIETY'S GENERAL TAX-EXEMPT STATUS, MANAGEMENT BELIEVES ASC TOPIC 740 HAS NOT HAD, AND IS NOT ANTICIPATED TO HAVE, A MATERIAL IMPACT ON THE SOCIETY'S FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: REVENUES FROM HDSA NATIONAL 12,201,710. PART XI, LINE 4B - OTHER ADJUSTMENTS: GRANT REVENUE FROM HDSA NATIONAL 2,130,419. PART XII, LINE 2D - OTHER ADJUSTMENTS: EXPENSES FROM HDSA NATIONAL 7,961,023. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANT EXPENSES FROM HDSA NATIONAL 2,130,419. WALKS 1216410 1153052 63358 2287 15840 5980 1215 38036 GALAS 436644 299256 137388 835 3983 94812 5354 32404 16 594403 550208 44195 3621 21336 500 512 18226 2247457 2002516 244941 6743 41159 101292 7081 88666 244941 0 X X X X 0 0 0 0 0 0 0 0 0 LOUISE VETTER CHIEF EXECUTIVE OFFICER 0 335472 0 0 0 0 0 14500 0 29942 0 379914 0 0 ROSEMARY COLUCCIO CHIEF OPERATIONS OFFICER 0 238551 0 0 0 0 0 12062 0 14925 0 265538 0 0 DEBRA LOVECKY DIRECTOR OF EDUCATION PROGRAMS 0 156953 0 0 0 0 0 8030 0 15186 0 180169 0 0 CHRISTOPHER COSENTINO DIRECTOR OF MARKETING & COMM. 0 134583 0 0 0 0 0 7243 0 32973 0 174799 0 0 JAMISON SKALA DIRECTOR, NATIONAL DEVELOPMENT 0 160058 0 0 0 0 0 8224 0 3159 0 171441 0 0 GEORGE YOHRLING CHIEF MISSION & SCI. AFFAIRS 0 158686 0 0 0 0 0 7926 0 704 0 167316 0 0 SCHEDULE J, PART 1: COMPENSATION PRACTICES - PAID BY RELATED ORGANIZATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION BY THE BOARD. X 0 SEE SUPPL. INFO X DONATED GIFTS AND PRIZES 180 30675 FAIR VALUE 0 1 1 PART I, LINE 32B: THE SOCIETY IS THE RECIPIENT OF THE PROCEEDS OF SALES OF VEHICLE DONATIONS THROUGH AN INTERMEDIARY ORGANIZATION. FORM 990, PART V, STATEMENTS REGARDING OTHER IRS FILINGS AND TAX COMPLIANCE LINE 1A, B, AND C THE FORMS 1096 AND RELATED FORMS 1099 ARE FILED BY THE NATIONAL ORGANIZATION UNDER EIN #13-3349872. THE GROUP RETURN FOR AFFILIATES DID NOT HAVE ANY REQUIREMENT TO FILE FORM 1096. LINES 2A AND B: THE NATIONAL OFFICE OF THE SOCIETY CURRENTLY EMPLOYS 31 INDIVIDUALS. PAYROLL AND BENEFITS ARE PROCESSED THROUGH A PROFESSIONAL EMPLOYER ORGANIZATION (PEO) WHICH FILES THE FORM W-3 ON THE NATIONAL OFFICE OF THE SOCIETY'S BEHALF UNDER THE PEO'S FEDERAL EIN#. THEREFORE THE SOCIETY DOES NOT FILE A FORM W-3. THERE ARE NO EMPLOYEES OF THE CHAPTER AFFILIATES. FORM 990, PART VI, SECTION B, LINE 11B MANAGEMENT THOROUGHLY REVIEWS AND SUBSEQUENTLY PROVIDES AN ELECTRONIC DRAFT COPY OF FORM 990 TO THE GOVERNING BODY FOR REVIEW BEFORE FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C OFFICERS AND TRUSTEES ARE REQUESTED TO ANNUALLY SIGN DOCUMENTATION. FORM 990, PART VI, SECTION B, LINE 15 OFFICER COMPENSATION - PAID BY RELATED ORGANIZATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION OF THE BOARD. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS BY-LAWS, ARTICLES OF INCORPORATION, IRS FORM 1023, ANNUAL REPORTS, AUDITED FINANCIAL STATEMENTS, IRS FORM 990 DOCUMENTS, CONFLICT OF INTEREST POLICY AND PRIVACY POLICY AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 90, PART IX, STATEMENT OF FUNCTIONAL EXPENSES, LINE 21: PAYMENTS TO AFFILIATES REPRESENT THE TOTAL AMOUNT PAID FROM THE CHAPTERS TO THE NATIONAL OFFICE. HUNTINGTON'S DISEASE SOCIETY OF AMERICA 505 EIGHTH AVENUE SUITE 902 NEW YORK NY 10018 133349872 PROG SRVC NY 501(C)(3) LINE 7 N/A 0 0 1 0 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 0