Nonprofit · EIN 87-0420378
UTAH DOWN SYNDROME FOUNDATION
Tax-exempt · SALT LAKE CTY, UT 84110
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990-EZ | $130,117 | $114,244 | $15,873 | $218,891 | $6,524 | $212,367 |
| December 31, 2023 | 990-EZ | $113,470 | $102,827 | $10,643 | $205,326 | $8,832 | $196,494 |
Financial details: 990-EZ for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $105,320
- Program service revenue
- $22,648
- Investment income
- $51
- Net income from fundraising events
- $1,162
- Other revenue
- $936
Expenses
- Compensation of officers, directors and key employees
- $39,330
- Salaries, compensation and benefits (total)
- $72,172
- Professional fees and payments to contractors
- $5,835
- Occupancy
- $6,267
- Other expenses
- $29,970
- Program services (functional)
- $73,013
Balance sheet and other
- Total assets, start of year
- $205,326
- Total assets, end of year
- $218,891
- Total liabilities, end of year
- $6,524
- Net assets, end of year
- $212,367
- Cash, savings and investments
- $216,100
- Gross receipts
- $154,634
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JODI LUTKIN | EXECUTIVE DI | 25 | $39,330 |
| KIMBERLY WEDLICK | CHAIR | 0.2 | $0 |
| QUIN STEPHENS | SECRETARY | 0.2 | $0 |
| ULYSSES LUEVANO | DIRECTOR | 0.2 | $0 |
| NATALIE ALLGOOD | DIRECTOR | 0.2 | $0 |
| MACKENZIE CASEY | DIRECTOR | 0.2 | $0 |
990-EZ for the year ended December 31, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JODI LUTKIN | EXECUTIVE DI | 20 | $36,780 |
| KIMBERLY WEDLICK | PRESIDENT | 1 | $0 |
| JOHNNIE ROSSER | TREASURER | 0.25 | $0 |
| QUIN STEPHENS | SECRETARY | 0.25 | $0 |
| ULYSSES LUEVANO | DIRECTOR | 0.25 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 675, SALT LAKE CTY, UT 84110-0675
- Signed the 990-EZ
- JODI LUTKIN, EXECUTIVE DIRECTOR
- Phone
- (801) 503-5086
- Website
- WWW.UDSF.ORG
- Return prepared by
- BOUNTIFUL PEAK ADVISORS
Mission
UTAH DOWN SYNDROME FOUNDATION PROVIDES HOPE TO INDIVIDUALS WITH DOWN SYNDROME, THEIR FAMILIES, AND COMMUNITIES THROUGH SUPPORT, EDUCATION, ACTIVITIES, OUTREACH AND ADVOCACY.
Program accomplishments
- DURING 2024, THE UTAH DOWN SYNDROME FOUNDATION ACCOMPLISHED ITS MISSION OF PROVIDING HOPE TO INDIVIDUALS WITH DOWN SYNDROME, THEIR FAMILIES, AND THE COMMUNITY THROUGH SUPPORT, EDUCATION, ACTIVITIES, OUTREACH, AND ADVOCACY. SUPPORT: UDSF PROVIDED SUPPORT TO 51 NEW AND EXPECTANT PARENTS WHO RECEIVED A DOWN SYNDROME DIAGNOSIS FOR THEIR CHILD IN 2024 BY DELIVERING CARE PACKAGES TO THEM AND PROVIDING THEM WITH A NEW PARENT MENTOR. UDSF ALSO OFFERED SUPPORT AND EDUCATION TO THESE FAMILIES AND MORE THROUGH ITS QUARTERLY NEW PARENT BREAKFASTS. 394 FAMILY MEMBERS ATTENDED THESE BREAKFASTS IN 2024. EDUCATION: UDSF PROVIDED ESSENTIAL EDUCATION SPECIFIC TO DOWN SYNDROME TO OVER 13,000 VISITORS TO THEIR WEBSITE, UDSF.ORG. UDSF PROVIDED A MONTHLY NEWSLETTER, THE LOWDOWN, TO OVER 1800 OF ITS MEMBERS. THIS NEWSLETTER PROVIDED EDUCATIONAL RESOURCES AND OUTREACH OPPORTUNITIES. DURING THE 2023 -2024 SCHOOL YEAR, UDSF'S PEER PRESENTATION TOOL KITS HELPED EDUCATE 250 ELEMENTARY STUDENTS ABOUT DOWN SYNDROME. UDSF HELD THREE FINANCIAL WORKSHOPS AND EDUCATED 200 PARENTS ON HOW TO PLAN FOR THEIR CHILD'S FUTURE. UDSF ALSO HELD 3 DOWN TO LEARN WORKSHOPS IN 2024, PROVIDING MORE EDUCATIONAL AND READING RESOURCES TO FAMILIES ACTIVITIES: UDSF PROVIDED OUTREACH, CONNECTION, AND SUPPORT TO OVER 2200 PARTICIPANTS THROUGH ITS COMMUNITY GROUP ACTIVITIES, TEEN ACTIVITIES, AND YOUNG ADULT ACTIVITIES. UDSF ALSO HELD THREE MIGHTY STEPS EXTRAVAGANZAS IN CACHE VALLEY, SALT LAKE METRO, AND SOUTHERN UTAH. IN 2024 UDSF HELD MONTHLY CLUB TEEN 21 AND YOUNG ADULT AND ADULT ACTIVITIES PROVIDING SUPPORT FOR INDIVIDUALS WITH DOWN SYNDROME, AGES 12-21, AND 18+. THESE ACTIVITIES ALLOWED SOCIALIZATION, FRIENDSHIP, AND A PLACE OF BELONGING FOR THOSE WHO ATTENDED. OUTREACH: UDSF MAILED OVER 950 BIRTHDAY CARDS TO ITS MEMBERS WITH DOWN SYNDROME. IT INCLUDED A GIFT CARD FOR A FREE BROWNIE, ICE CREAM, OR COOKIE TO HELP CELEBRATE THEIR SPECIAL DAY. UDSF PROVIDED OVER 500 NEW AND EXPECTANT PARENT RESOURCE GUIDES TO MEDICAL PROVIDERS AND NEW PARENTS, TO OFFER RESOURCES AND SUPPORT TO FAMILIES WHO HAVE A CHILD WITH DOWN SYNDROME. UDSF PROVIDED UPDATES, INFORMATION, AND OUTREACH OPPORTUNITIES TO OVER 2000 MEMBERS THROUGH ITS SOCIAL MEDIA PLATFORMS AND EMAILS. ADVOCACY: UDSF HAS PROVIDED EVENTS AND ACTIVITIES INCLUDING WORLD DOWN SYNDROME DAY (3/21) AND DOWN SYNDROME AWARENESS MONTH (OCTOBER) CELEBRATIONS AND THEIR MIGHTY STEPS FOR DOWN SYNDROME EXTRAVAGANZAS. THROUGH THESE EVENTS AND ACTIVITIES, UDSF IS ADVOCATING FOR THE DOWN SYNDROME POPULATION IN UTAH. UDSF HAS INVITED AND INCLUDED COMMUNITY LEADERS, FAMILY, FRIENDS, AND COMMUNITY MEMBERS THROUGHOUT UTAH TO PARTICIPATE. IN DOING SO, UDSF IS NOT ONLY ADVOCATING FOR THOSE WHO HAVE DOWN SYNDROME BUT TEACHING ACCEPTANCE AND RAISING AWARENESS FOR THE UTAH DOWN SYNDROME COMMUNITY.Expenses $73,013
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 87-0420378
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1986
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $218,891
- Income (IRS master file)
- $154,634
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2024 | $130,117 | $114,244 | $218,891 | IRS |
| 990-EZ | December 2023 | $113,470 | $102,827 | $205,326 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 87-0420378).
Questions about UTAH DOWN SYNDROME FOUNDATION
- What is the EIN of UTAH DOWN SYNDROME FOUNDATION?
- The employer identification number (EIN) of UTAH DOWN SYNDROME FOUNDATION is 87-0420378.
- Is UTAH DOWN SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1986.
- Are donations to UTAH DOWN SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does UTAH DOWN SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of UTAH DOWN SYNDROME FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did UTAH DOWN SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2024.
- Who are the officers and directors of UTAH DOWN SYNDROME FOUNDATION?
- The 990-EZ for the year ended December 31, 2024 lists 6 people; 1 received compensation from the organization, the highest $39,330 (JODI LUTKIN, EXECUTIVE DI).
- How much revenue does UTAH DOWN SYNDROME FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2024 it reported revenue of $130,117, expenses of $114,244 and total assets of $218,891 at year end.
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