Nonprofit · EIN 86-2807827
EOSINOPHILIC & RARE DISEASE COOPERATIVE
Tax-exempt · KENTWOOD, MI 49512
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $351,488 | $121,072 | $230,416 | $291,945 | $151 | $291,794 |
| December 31, 2024 | 990-EZ | $126,504 | $70,410 | $56,094 | $60,027 | – | $60,027 |
| December 31, 2023 | 990-EZ | $7,218 | $3,785 | $3,433 | $3,933 | $0 | $3,933 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $348,686
- Program service revenue
- $0
- Investment income
- $2,802
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $64,566
- Salaries, compensation and benefits (total)
- $69,280
- Professional fundraising fees
- $0
- Accounting fees
- $5,500
- Travel
- $9,128
- Program services (functional)
- $104,519
- Management and general (functional)
- $16,553
Balance sheet and other
- Total assets, start of year
- $60,027
- Total assets, end of year
- $291,945
- Total liabilities, end of year
- $151
- Net assets, end of year
- $291,794
- Net assets without donor restrictions
- $291,794
- Gross receipts
- $351,488
- Employees
- 1
- Volunteers
- 1
- Year formed
- 2021
- State of legal domicile
- AZ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Pamela Squires | CEO Officer | 40 | $63,152 | $1,414 |
| Donna McArthur | Chair Trustee or director, Officer | 2 | $0 | $0 |
| Carol Jones | Secretary Trustee or director, Officer | 2 | $0 | $0 |
| Roni Byrne | Director Trustee or director | 2 | $0 | $0 |
| Karin Hoelzer | Director Trustee or director | 2 | $0 | $0 |
| Laure Larkin | Director Trustee or director | 2 | $0 | $0 |
| Lynette Matson | Director Trustee or director | 2 | $0 | $0 |
| Maria Cristina Ospina | Director Trustee or director | 2 | $0 | $0 |
| John Stadler | Director Trustee or director | 2 | $0 | $0 |
990-EZ for the year ended December 31, 2024: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Pamela Squires | CEO | 40 | $40,255 |
| Roni Byrne | Director | 2 | $0 |
| Carol Jones | Director | 2 | $0 |
| Donna McArthur | Director | 2 | $0 |
| John Stadler | Director | 2 | $0 |
990-EZ for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Pamela Squires | Executive Director | 30 | $500 |
| Carol Jones | Director | 2 | $0 |
| Donna McArthur | Director | 2 | $0 |
| Roni Byrne | Director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 3876 OLD ELM DR SE, KENTWOOD, MI 49512-9523
- Principal officer (990 for 2025)
- Pamela Squires, 3876 Old Elm Dr SE, Kentwood, MI 495129523
- Signed the 990
- Pamela Squires, CEO
- Phone
- (520) 690-4233
- 990-N for 2021 filed under this EIN
- Most likely by a chapter, club or affiliate (it says receipts are normally $50,000 or less). Officer: Pamel Squires, 8049 W Black Eagle Ct, Tucson AZ 85757. Mailing address: 8049 W Black Eagle Ct, Tucson AZ 85757.
- Return prepared by
- SOLID GROUND PLLC
Mission
Provide education and tools for people with rare disease.
Program accomplishments
- HEAT Kits: Disease-specific Hospital Emergency Advocacy and Treatment Kits (HEAT Kits) that put plain-language, expert-reviewed information directly into the hands of patients and healthcare. HEAT Kits enable patients to engage in the healthcare community with confidence, even when not feeling well. Distributed for five rare diseases across the country and sent via PDF internationally.Expenses $47,106
- Livestream educational sessions bring people face to face with pharmacists, experts, and treatment developers to answer real questions about access, treatment decisions, and insurance. We avoid jargon, and encourage engagement with the presenter. Each session becomes enduring education on ERDC's YouTube platform, so the answers keep helping long after the livestream ends.Rare Candor Podcast: Unscripted conversations with real people, clinicians, and advocates about what it actually means to live with or care for someone with a rare disease. Available on Spotify and Apple, it's storytelling as advocacy, proof that the most powerful education comes from people telling the truth about their own lives.Expenses $24,191
- ANCA Vasculitis Decision Tree: A step-by-step decision making and planning platform that walks people with GPA, MPA, or EPGA through a personalized path from diagnosis to emergency decision-making, backed by a formal white paper written for journal submission. It gives clinicians and patients alike a clear, print-ready guide built from the patterns our community has lived through again and again.Expenses $22,260
- Public Policy: ERDC shows up where treatment access is actually decided with legislators and regulators, not just in the doctor's office. We've submitted formal comment letters, briefed congressional staff, and organized alongside national partners to oppose the withdrawal of essential medications and push back on pricing frameworks that leave 95% of rare diseases unprotected.Expenses $10,962
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 86-2807827
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G01)
- Assets (IRS master file)
- $291,945
- Income (IRS master file)
- $351,488
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $351,488 | $121,072 | $291,945 | XML |
| 990-EZ | December 2024 | $126,504 | $70,410 | $60,027 | XML |
| 990-EZ | December 2023 | $7,218 | $3,785 | $3,933 | XML |
| 990-N for 2021 Officer: Pamel Squires Filed under this EIN, most likely by a chapter or affiliate | December 31, 2021 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 86-2807827).
Questions about EOSINOPHILIC & RARE DISEASE COOPERATIVE
- What is the EIN of EOSINOPHILIC & RARE DISEASE COOPERATIVE?
- The employer identification number (EIN) of EOSINOPHILIC & RARE DISEASE COOPERATIVE is 86-2807827.
- Is EOSINOPHILIC & RARE DISEASE COOPERATIVE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to EOSINOPHILIC & RARE DISEASE COOPERATIVE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does EOSINOPHILIC & RARE DISEASE COOPERATIVE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of EOSINOPHILIC & RARE DISEASE COOPERATIVE due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did EOSINOPHILIC & RARE DISEASE COOPERATIVE last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of EOSINOPHILIC & RARE DISEASE COOPERATIVE?
- The 990 for the year ended December 31, 2025 names Pamela Squires.
- Who are the officers and directors of EOSINOPHILIC & RARE DISEASE COOPERATIVE?
- The 990 for the year ended December 31, 2025 lists 9 people; 1 received compensation from the organization, the highest $63,152 (Pamela Squires, CEO).
- How much revenue does EOSINOPHILIC & RARE DISEASE COOPERATIVE have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $351,488, expenses of $121,072 and total assets of $291,945 at year end.
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