Nonprofit · EIN 81-1592495
ADCY5 ORG INC
Tax-exempt (reinstated) · LA JOLLA, CA 92037
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $83,627 | $76,321 | $7,306 | $132,332 | $0 | $132,332 |
| December 31, 2024 | 990-EZ | $87,121 | $2,553 | $84,568 | $125,026 | $0 | $125,026 |
| December 31, 2023 | 990-EZ | $80,399 | $82,034 | -$1,635 | $40,458 | $0 | $40,458 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $83,404
- Program service revenue
- $223
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $65,000
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fees and payments to contractors
- $2,630
- Printing, publications and postage
- $400
- Other expenses
- $8,291
- Program services (functional)
- $706
Balance sheet and other
- Total assets, start of year
- $125,026
- Total assets, end of year
- $132,332
- Total liabilities, end of year
- $0
- Net assets, end of year
- $132,332
- Cash, savings and investments
- $132,332
- Gross receipts
- $83,627
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Steven Grossman | President | 20 | $0 |
| Dan Bradbury | Chairman of the Board | 2 | $0 |
| Jason Keyes | Board Treasurer | 1 | $0 |
| Tom Coll | Board Secretary | 1 | $0 |
990-EZ for the year ended December 31, 2024: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Steven Grossman | President | 10 | $0 |
| Dan Bradbury | Chairman of the Board | 1 | $0 |
| Jason Keyes | Board Treasurer | 1 | $0 |
| Tom Coll | Board Secretary | 1 | $0 |
990-EZ for the year ended December 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Steven Grossman | President | 1 | $0 |
| Dan Bradbury | Chairman of the Board | 1 | $0 |
| Jason Keyes | Board Treasurer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 8914 NOTTINGHAM PL, LA JOLLA, CA 92037-2132
- Mailing address (990-N for 2022)
- 8914 NOTTINGHAM PL, LA JOLLA CA 920372132
- Principal officer (990-N for 2022)
- Steven Grossman, 8914 Nottingham Pl, La Jolla CA 92037
- Signed the 990-EZ
- Steven Grossman, President
- Phone
- (858) 882-7280
- Website
- www.adcy5.org
California records
California keeps its own records of charities and corporations. Search them by EIN 81-1592495 or by the name ADCY5 ORG INC.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
ADCY5.org supports the following groups: families affected by the ADCY5 gene variant rare disease, clinicians treating patients, and researchers pursuing treatments. We achieve our goals through collaboration, or funding efforts. We look to identify anyone affected by, or interested in, the ADCY5 gene variant rare movement disorder.
Program accomplishments
- Provided families support related to ADCY5 related movement disorder via online meetings, one-on-one calls, and Slack channel. Discussed new treatments, potential clinical studies, and ways to manage the disease.Expenses $210 · grants $210
- Connected doctors with each other and patients to share ADCY5 rare movement disorder information. Connecting doctors has helped improve the care of new and existing patientsExpenses $322 · grants $322
- Acted as conduit between researchers, doctors, and patients. We met with researchers by web meeting, in-person, or at conferences to understand the status of current programs related to treatments and the basic science of the condition. Educated researchers on current patient challenges.Expenses $174 · grants $174
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 81-1592495
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2022
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G50)
- Assets (IRS master file)
- $132,332
- Income (IRS master file)
- $83,627
Revocation and reinstatement
- Exemption revoked
- May 15, 2022
- Posted by the IRS
- August 8, 2022
- Reinstated
- Effective May 15, 2022
From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $83,627 | $76,321 | $132,332 | XML |
| 990-EZ | December 2024 | $87,121 | $2,553 | $125,026 | IRS |
| 990-EZ | December 2023 | $80,399 | $82,034 | $40,458 | XML |
| 990-N for 2022 Officer: Steven Grossman | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-N for 2018 Officer: Steven Grossman | December 31, 2018 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-1592495).
Questions about ADCY5 ORG INC
- What is the EIN of ADCY5 ORG INC?
- The employer identification number (EIN) of ADCY5 ORG INC is 81-1592495.
- Is ADCY5 ORG INC tax-exempt?
- Yes. The IRS revoked its exemption on May 15, 2022 and reinstated it effective May 15, 2022.
- Are donations to ADCY5 ORG INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ADCY5 ORG INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ADCY5 ORG INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ADCY5 ORG INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of ADCY5 ORG INC?
- The 990-N for 2022 names Steven Grossman.
- Who are the officers and directors of ADCY5 ORG INC?
- The 990-EZ for the year ended December 31, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does ADCY5 ORG INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $83,627, expenses of $76,321 and total assets of $132,332 at year end.
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