2025-01-27T01:27:09-07:00 2023-12-31 990EZ 2023-01-01 811592495 ADCY5 ORG INC ADCY 8588827280 8914 Nottingham Pl La Jolla CA 92037 Steven Grossman President 8588827280 2025-01-25 1 2023 2025-03-06 01:10:19Z X X www.adcy5.org X X 80399 X 80399 0 0 0 0 0 0 0 0 0 0 0 0 0 0 80399 80000 0 0 2034 0 0 0 82034 -1635 42093 0 40458 42093 40458 0 0 0 0 42093 40458 0 0 42093 40458 ADCY5.org supports families affected by the ADCY5 gene variant, clinicians treating patients, and researchers pursuing treatments or a cure by collaborating or funding efforts. We search to identify anyone affected by, or interested in, the ADCY5 variant. We engage with others interested in solving our puzzle. We collaborate and share information to advance ADCY science. Provided families support as they deal with the ADCY5 related movement disorder. Online family meetings were held. Discussions on new treatments that are coming available and new clinical studies. We provided information to clinicians and researcher about family challenges. 80000 X 0 0 Steven Grossman President 1 0 0 0 Dan Bradbury Chairman of the Board 1 0 0 0 Jason Keyes Board Treasurer 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 CA Steven Grossman 8914 Nottingham Pl La Jolla CA 92037 8588827280 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 99639 9555 12762 1831 80399 204186 99639 9555 12762 1831 80399 204186 204186 31 19 6 0 0 56 204242 0 0.99973 0.99967 X 99639 9555 12672 1831 80399 204096 99639 9555 12672 1831 80399 204096 204096 31 19 6 56 31 19 6 0 0 56 99670 9574 12678 1831 80399 204152 0.99973 0.99967 0.00027 0.00033 X Form 990-EZ, Part I, Line 10 Donation to Fondation De L'AP-HP Paris/INSERM for research on symptoms and possible treatments for the ADCY5-Rare Movement Disorder (ADCY5-RMD). Covers genetics research, ADCY5 model organism research, and brain imaging projects. Also for work on a scoping review and paper summarizing published ADCY5 research papers. Board member resignation and on-boarding of a new treasurer.