Nonprofit · EIN 47-3975911
LYME DISEASE BIOBANK FOUNDATION
Tax-exempt · PORTLAND, OR 97221
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $745,615 | $778,918 | -$33,303 | $280,534 | $299,525 | -$18,991 |
| December 31, 2023 | 990 | $829,117 | $729,222 | $99,895 | $77,403 | $63,091 | $14,312 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $700,793
- Program service revenue
- $44,822
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $165,495
- Salaries, compensation and benefits (total)
- $165,495
- Professional fundraising fees
- $0
- Legal fees
- $1,158
- Travel
- $13,819
- Program services (functional)
- $766,916
- Management and general (functional)
- $11,907
- Fundraising (functional)
- $95
Balance sheet and other
- Total assets, start of year
- $77,403
- Total assets, end of year
- $280,534
- Total liabilities, end of year
- $299,525
- Net assets, end of year
- -$18,991
- Net assets without donor restrictions
- -$18,991
- Gross receipts
- $745,615
- Employees
- 0
- Volunteers
- 1
- Year formed
- 2015
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| LINDA GIAMPA | DIRECTOR Trustee or director | 3 | $0 | $267,434 | $9,045 |
| WENDY ADAMS | TREASURER Trustee or director, Officer | 9 | $0 | $192,000 | $0 |
| LIZ HORN | PRESIDENT Officer | 17 | $165,495 | $0 | $0 |
| BONNIE CRATER | SECRETARY Trustee or director, Officer | 1 | $0 | $0 | $0 |
990 for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation | From related orgs | Other / benefits |
|---|---|---|---|---|---|
| LINDA GIAMPA | Director Trustee or director | 3 | $0 | $249,150 | $9,897 |
| WENDY ADAMS | DIRECTOR, TREASURER Trustee or director, Officer | 13.4 | $0 | $192,000 | $0 |
| LIZ HORN | PRESIDENT Officer | 17.4 | $166,728 | $0 | $0 |
| BONNIE CRATER | DIRECTOR, SECRETARY Trustee or director, Officer | 0.08 | $0 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 5457 SW SHATTUCK RD, PORTLAND, OR 97221-1033
- In care of
- % LIZ HORN
- Principal officer (990 for 2024)
- LIZ HORN, 5457 SW SHATTUCK RD, PORTLAND, OR 97221
- Signed the 990
- LINDA GIAMPA, TREASURER
- Phone
- (503) 863-4494
- Website
- WWW.LYMEBIOBANK.ORG
- Return prepared by
- BAKER TILLY ADVISORY GROUP LP
Mission
TO ADVANCE KNOWLEDGE AND FACILITATE RESEARCH OF THE PATHOGENESIS, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS.
Program accomplishments
- THE LYME DISEASE BIOBANK, SPONSORED BY BAY AREA LYME FOUNDATION, IS A COLLECTION OF HUMANBIOLOGICAL SAMPLES THAT FACILITATES RESEARCH OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. BY COLLECTING BLOOD AND URINE FROM PATIENTS WITH EARLY-STAGE LYME DISEASE AND PERSISTENT LYME DISEASE, AS WELL AS TISSUE SAMPLES FROM LATE-STAGE LYME PATIENTS, THIS IMPORTANT PROGRAM WILL HELP DRAMATICALLY IMPROVE RESEARCH EFFORTS TO ACCELERATE MEDICAL BREAKTHROUGHS IN THE UNDERSTANDING, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. CURRENTLY, THERE ARE 106 RESEARCH PROJECTS RELYING ON BIOBANK SAMPLES. THESE PROJECTS ARE HELPING TO PAVE THE WAY FOR NEW DIAGNOSTICS AND THERAPEUTICS, AS WELL AS MAKING STRIDES TO IMPROVE OUR UNDERSTANDING OF LYME AND OTHER TICK-BORNE INFECTIONS. THROUGH THE END OF 2024, WE HAVE COLLECTED SAMPLES FROM > 1250 PARTICIPANTS, AND MORE THAN 23,050 SAMPLES WERE SHIPPED TO RESEARCHERS. OUR PERSISTENT LYME COHORT NOW INCLUDES 154 PARTICIPANTS. ADDITIONALLY, LYME DISEASE BIOBANK COLLABORATES WITH THE NATIONAL DISEASE RESEARCH INTERCHANGE (NDRI) FOR THE COLLECTION OF SURGICAL AND POST-MORTEM TISSUE SAMPLES, AND PARTNERS WITH MYLYMEDATA.ORG, A PROJECT OF LYMEDISEASE.ORG, TO PAIR SAMPLES WITH CLINICAL INFORMATION THAT CAN FURTHER ENHANCE RESEARCH. IN 2024, TISSUE WAS COLLECTED FROM 12 DONORS: 6 POST-MORTEM DONORS AND 6 SURGERIES. SINCE 2019, TISSUE HAS BEEN COLLECTED FROM 23 POST-MORTEM DONORS AND 21 SURGICAL DONORS.Expenses $766,916 · revenue $44,822
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 47-3975911
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Supporting organization, Type I
- Donations deductible (Pub 78)
- Supporting organization, 50% limit
- Exempt since
- 2016
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $280,534
- Income (IRS master file)
- $745,615
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $745,615 | $778,918 | $280,534 | XML |
| 990 | December 2023 | $829,117 | $729,222 | $77,403 | XML |
| 990 | December 2022 | $1,014,899 | $956,573 | $87,022 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-3975911).
Questions about LYME DISEASE BIOBANK FOUNDATION
- What is the EIN of LYME DISEASE BIOBANK FOUNDATION?
- The employer identification number (EIN) of LYME DISEASE BIOBANK FOUNDATION is 47-3975911.
- Is LYME DISEASE BIOBANK FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2016.
- Are donations to LYME DISEASE BIOBANK FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Supporting organization, 50% limit).
- Which annual return does LYME DISEASE BIOBANK FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LYME DISEASE BIOBANK FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LYME DISEASE BIOBANK FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of LYME DISEASE BIOBANK FOUNDATION?
- The 990 for the year ended December 31, 2024 names LIZ HORN.
- Who are the officers and directors of LYME DISEASE BIOBANK FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 4 people; 1 received compensation from the organization.
- How much revenue does LYME DISEASE BIOBANK FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $745,615, expenses of $778,918 and total assets of $280,534 at year end.
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