2025-11-17T20:16:28-06:00 2024-12-31 390859910 BAKER TILLY ADVISORY GROUP LP 18500 VON KARMAN AVE 10TH FLOOR IRVINE CA 92612 990 2024-01-01 473975911 LYME DISEASE BIOBANK FOUNDATION LYME 5038634494 5457 SW SHATTUCK RD PORTLAND OR 97221 LINDA GIAMPA TREASURER 5038634494 2025-11-13 1 0 BRIAN YACKER P00401346 9492222999 2025-11-13 2024 2025-03-06 01:10:19Z LIZ HORN 5457 SW SHATTUCK RD PORTLAND OR 97221 745615 0 X WWW.LYMEBIOBANK.ORG X 2015 DE TO ADVANCE KNOWLEDGE AND FACILITATE RESEARCH OF THE PATHOGENESIS, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. 3 1 0 1 0 0 813619 700793 15498 44822 0 0 0 0 829117 745615 0 0 0 0 164135 165495 0 0 95 565087 613423 729222 778918 99895 -33303 77403 280534 63091 299525 14312 -18991 X TO ADVANCE KNOWLEDGE AND FACILITATE RESEARCH OF THE PATHOGENESIS, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. 0 0 766916 44822 THE LYME DISEASE BIOBANK, SPONSORED BY BAY AREA LYME FOUNDATION, IS A COLLECTION OF HUMANBIOLOGICAL SAMPLES THAT FACILITATES RESEARCH OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. BY COLLECTING BLOOD AND URINE FROM PATIENTS WITH EARLY-STAGE LYME DISEASE AND PERSISTENT LYME DISEASE, AS WELL AS TISSUE SAMPLES FROM LATE-STAGE LYME PATIENTS, THIS IMPORTANT PROGRAM WILL HELP DRAMATICALLY IMPROVE RESEARCH EFFORTS TO ACCELERATE MEDICAL BREAKTHROUGHS IN THE UNDERSTANDING, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS. CURRENTLY, THERE ARE 106 RESEARCH PROJECTS RELYING ON BIOBANK SAMPLES. THESE PROJECTS ARE HELPING TO PAVE THE WAY FOR NEW DIAGNOSTICS AND THERAPEUTICS, AS WELL AS MAKING STRIDES TO IMPROVE OUR UNDERSTANDING OF LYME AND OTHER TICK-BORNE INFECTIONS. THROUGH THE END OF 2024, WE HAVE COLLECTED SAMPLES FROM > 1250 PARTICIPANTS, AND MORE THAN 23,050 SAMPLES WERE SHIPPED TO RESEARCHERS. OUR PERSISTENT LYME COHORT NOW INCLUDES 154 PARTICIPANTS. ADDITIONALLY, LYME DISEASE BIOBANK COLLABORATES WITH THE NATIONAL DISEASE RESEARCH INTERCHANGE (NDRI) FOR THE COLLECTION OF SURGICAL AND POST-MORTEM TISSUE SAMPLES, AND PARTNERS WITH MYLYMEDATA.ORG, A PROJECT OF LYMEDISEASE.ORG, TO PAIR SAMPLES WITH CLINICAL INFORMATION THAT CAN FURTHER ENHANCE RESEARCH. IN 2024, TISSUE WAS COLLECTED FROM 12 DONORS: 6 POST-MORTEM DONORS AND 6 SURGERIES. SINCE 2019, TISSUE HAS BEEN COLLECTED FROM 23 POST-MORTEM DONORS AND 21 SURGICAL DONORS. 766916 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 3 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 3 1 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 OR X TAMMY CATTARIN 6504920680 884 PORTOLA ROAD STE A7 PORTOLA VALLEY CA 94028 LINDA GIAMPA DIRECTOR 3.00 37.00 X 0 267434 9045 WENDY ADAMS TREASURER 9.00 31.00 X X 0 192000 0 LIZ HORN PRESIDENT 17.00 17.00 X 165495 0 0 BONNIE CRATER SECRETARY 1.00 2.00 X X 0 0 0 165495 459434 9045 1 0 1 0 0 700793 700793 BIOREPOSITORY FEE 541700 44822 44822 44822 745615 44822 0 0 165495 165495 1158 1158 25325 25325 890 890 13819 13819 9859 9859 RESEARCH EXPENSES 562277 562277 OUTREACH 95 95 778918 766916 11907 95 63785 266113 13618 14421 77403 280534 63091 299525 63091 299525 X 14312 -18991 14312 -18991 77403 280534 -33303 0 X X 0 1 X 1 0 X X X 1 BAY AREA LYME FOUNDATION 453715012 7 1 766916 0 1 766916 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X PART X, LINE 2: THE ORGANIZATION, FUND AND FOUNDATION ARE EXEMPT FROM INCOME TAXES, EXCEPT FOR UNRELATED BUSINESS INCOME, UNDER THE PROVISIONS OF INTERNAL REVENUE CODE SECTION 501(C)(3) AND UNDER SECTION 23701D OF THE CALIFORNIA REVENUE AND TAXATION CODE. THERE WAS NO UNRELATED BUSINESS INCOME IN 2024. IN ADDITION, THE INTERNAL REVENUE SERVICE (IRS) HAS DETERMINED THAT EACH ENTITY IS NOT TO BE A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) OF THE INTERNAL REVENUE CODE AND IS ANNUALLY REQUIRED TO FILE A RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX (FORM 990) WITH THE IRS. GAAP REQUIRES THE ORGANIZATION, FUND AND FOUNDATION TO EVALUATE TAX POSITIONS TAKEN AND RECOGNIZE A TAX LIABILITY IF THE ORGANIZATION, FUND OR FOUNDATION HAVE TAKEN AN UNCERTAIN TAX POSITION THAT MORE LIKELY THAN NOT WOULD NOT BE SUSTAINED UPON EXAMINATION. THE ORGANIZATION, FUND AND FOUNDATION HAVE REVIEWED THEIR TAX POSITIONS FOR ALL OPEN TAX YEARS AND BELIEVE THAT THEY HAVE APPROPRIATE SUPPORT FOR THE TAX POSITIONS TAKEN. THEREFORE, NO ADDITIONAL LIABILITY IS REQUIRED TO BE RECORDED. X 0 0 0 0 0 0 0 0 0 LINDA GIAMPA DIRECTOR 0 267434 0 0 0 0 0 0 0 9045 0 276479 0 0 WENDY ADAMS TREASURER 0 192000 0 0 0 0 0 0 0 0 0 192000 0 0 LIZ HORN PRESIDENT 165495 0 0 0 0 0 0 0 0 0 165495 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THIS FORM 990 IS PROVIDED TO ALL DIRECTORS OF THE ORGANIZATION PRIOR TO FILING. THE AUDIT CHAIR AND/OR TREASURER, WHO HAVE BEEN CHARGED WITH THE RESPONSIBILITY OF REVIEWING AND APPROVING THE FORM 990 ON BEHALF OF THE DIRECTORS, REVIEW AND APPROVE THE FORM 990 PRIOR TO IT BEING FILED. IN ADDITION, THE AUDIT CHAIR AND/OR TREASURER OF THE ORGANIZATION REVIEWS THE COMPLETED FORM 990 AND FOLLOWS UP WITH THE TAX RETURN PREPARATION FIRM TO ANSWER ANY QUESTIONS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY. THE WRITTEN CONFLICT OF INTEREST POLICY IS UPDATED AND PROVIDED TO THE OFFICERS AND DIRECTORS ON AN ANNUAL BASIS. ANY CONFLICTS ON INTEREST IDENTIFIED ARE REVIEWED AND APPROPRIATE ACTIONS ARE TAKEN TO ENSURE COMPLIANCE WITH APPLICABLE LAWS AND REGULATIONS. FORM 990, PART VI, SECTION B, LINE 15 TO DETERMINE THE COMPENSATION FOR THE PRESIDENT, BOARD AND ADVISORS SOUGHT OUT COMPARABLE INDUSTRY DATA AND DISCUSSED IT. THE PRESIDENT'S COMPENSATION WAS APPROVED BY THE BOARD AND THE APPROVAL WAS DOCUMENTED IN MEETING MINUTES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S AUDITED FINANCIAL STATEMENTS, GOVERNING DOCUMENTS AND FORM 990 ARE MADE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE ORGANIZATION DID NOT CHANGE ITS OVERSIGHT PROCESS OR SELECTION PROCESS DURING THE TAX YEAR. BAY AREA LYME FOUNDATION 884 PORTOLA RD STE A7 PORTOLA VALLEY CA 94028 453715012 LYME DISEASE RESEARCH CA 501(C)(3) LINE 7 N/A 0 BAY AREA LYME MAJOR GIFT FUND 884 PORTOLA RD STE A7 PORTOLA VALLEY CA 94028 463312992 SUPPORTING ORGANIZATION CA 501(C)(3) LINE 12A, I BAY AREA LYME FOUNDATION 0 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0