Nonprofit · EIN 47-3108868
TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION
Also known as TESS FOUNDATION
Tax-exempt · MENLO PARK, CA 94026
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $541,973 | $584,239 | -$42,266 | $407,310 | $1,651 | $405,659 |
| December 31, 2023 | 990 | $503,647 | $497,687 | $5,960 | $459,776 | $11,812 | $447,964 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $581,056
- Program service revenue
- $0
- Investment income
- $1,036
- Net income from fundraising events
- -$40,330
- Other revenue
- -$40,119
Expenses
- Grants and similar amounts paid
- $174,093
- Compensation of officers, directors and key employees
- $67,838
- Other salaries and wages
- $175,688
- Salaries, compensation and benefits (total)
- $267,681
- Professional fundraising fees
- $0
- Accounting fees
- $5,701
- Travel
- $14,804
- Program services (functional)
- $515,458
- Management and general (functional)
- $13,473
- Fundraising (functional)
- $55,308
Balance sheet and other
- Total assets, start of year
- $459,776
- Total assets, end of year
- $407,310
- Total liabilities, end of year
- $1,651
- Net assets, end of year
- $405,659
- Net assets without donor restrictions
- $405,659
- Gross receipts
- $582,303
- Employees
- 2
- Volunteers
- 50
- Year formed
- 2015
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Amber Black | Secretary Trustee or director, Officer | 40 | $67,838 |
| Paula Gani | Director Trustee or director | 3 | $0 |
| Courtney Alberti | Director Trustee or director | 2 | $0 |
| Adam Alberti | Director Trustee or director | 2 | $0 |
| Lee Scheuer | Director Trustee or director | 3 | $0 |
| Robert Wassman | Director Trustee or director | 3 | $0 |
| Don Neault | Director Trustee or director | 3 | $0 |
| Janet Wojcicki | Director Trustee or director | 3 | $0 |
| Megan Gilbert | Director Trustee or director | 3 | $0 |
| Rich Windisch | Director Trustee or director | 3 | $0 |
| Kimberly Nye | Chair & Executive Director Trustee or director, Officer | 40 | $0 |
| Kevin McDonnell | Treasurer Trustee or director, Officer | 3 | $0 |
| Michael Black | Vice Chair Trustee or director, Officer | 5 | $0 |
990 for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Adam Alberti | Director Trustee or director | 2 | $0 |
| Lee Scheuer | Director Trustee or director | 3 | $0 |
| Robert Wassman | Director Trustee or director | 3 | $0 |
| Courtney Alberti | Director Trustee or director | 2 | $0 |
| Kimberly Nye | Chair & Executive Director Trustee or director, Officer | 40 | $0 |
| Michael Black | Vice Chair as of 51 Trustee or director, Officer | 5 | $0 |
| Paula Gani | Secretary Trustee or director, Officer | 5 | $0 |
| Kevin McDonnell | Treasurer Trustee or director, Officer | 3 | $0 |
| Amber Black | Vice Chair until 430 Trustee or director, Officer | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 655 OAK GROVE AVE UNIT 53, MENLO PARK, CA 94026-5000
- In care of
- % KIMBERLY NYE
- Principal officer (990 for 2024)
- Kimberly Nye, 430 Claremont Way, Menlo Park, CA 94025
- Signed the 990
- KIMBERLY NYE, Chair & Executive Director
- Phone
- (650) 521-2279
- Website
- TESSRESEARCH.ORG
- Return prepared by
- Mullins PC
California records
California keeps its own records of charities and corporations. Search them by EIN 47-3108868 or by the name TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
Tess Research Foundations goal is to find better treatment options for SLC13A5 deficiency, (Continued on Sch O)
Program accomplishments
- Funding Scientific Research - We continued our in-person, digital and remote natural history studies for SLC13A5 with Brown University, UT Southwestern, and Stanford University. These studies are key for our clinical trial readiness. We also funded basic and translational research.Expenses $281,706
- Education, Family Support and Awareness - We are the only organization dedicated to supporting families with SLC13A5 Epilepsy and raising awareness about the disease. Our ongoing program includes sharing updates about the latest research findings and connecting and empowering families so they can share their experiences and support one another. We have an annual awareness day (May 13), host monthly virtual support calls, maintain a website, and send a monthly electronic newsletter.Expenses $132,924
- Conference - We continue to create a patient-centered network of doctors, researchers, clinicians, and families. TESS hosted the largest-ever SLC13A5 family and professional conference in Providence, Rhode Island. We attend neurology, epilepsy, and drug development conferences.Expenses $100,828
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 47-3108868
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2015
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H12)
- Assets (IRS master file)
- $407,310
- Income (IRS master file)
- $582,303
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $541,973 | $584,239 | $407,310 | IRS |
| 990 | December 2023 | $503,647 | $497,687 | $459,776 | XML |
| 990 | December 2022 | $610,734 | $868,351 | $447,207 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 47-3108868).
Questions about TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION
- What is the EIN of TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION?
- The employer identification number (EIN) of TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION is 47-3108868.
- Is TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2015.
- Are donations to TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION?
- The 990 for the year ended December 31, 2024 names Kimberly Nye.
- Who are the officers and directors of TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 13 people; 1 received compensation from the organization, the highest $67,838 (Amber Black, Secretary).
- How much revenue does TREATMENTS FOR EPILEPSY AND SYMPTOMS OF SLC13A5 FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $541,973, expenses of $584,239 and total assets of $407,310 at year end.
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