Nonprofit · EIN 46-4617970
PROJECT ALIVE
Also known as KIMBERLY STEPHENS
Tax-exempt · DAVENPORT, FL 33837
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $468,046 | $849,174 | -$381,128 | $1,882,123 | $183,056 | $1,699,067 |
| December 31, 2024 | 990 | $407,104 | $914,008 | -$506,904 | $2,316,110 | $250,657 | $2,065,453 |
| December 31, 2023 | 990 | $301,636 | $439,138 | -$137,502 | $2,584,090 | $0 | $2,584,090 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $415,302
- Program service revenue
- $20,000
- Investment income
- $42,535
- Net gain from sales of assets
- -$2,977
- Net income from fundraising events
- -$8,714
- Net income from sales of inventory
- -$1,077
- Other revenue
- -$9,791
Expenses
- Grants and similar amounts paid
- $59,659
- Compensation of officers, directors and key employees
- $86,239
- Other salaries and wages
- $176,341
- Salaries, compensation and benefits (total)
- $314,347
- Professional fundraising fees
- $0
- Legal fees
- $110
- Accounting fees
- $10,050
- Occupancy
- $4,458
- Travel
- $66,485
- Program services (functional)
- $653,050
- Management and general (functional)
- $105,638
- Fundraising (functional)
- $90,486
Balance sheet and other
- Total assets, start of year
- $2,316,110
- Total assets, end of year
- $1,882,123
- Total liabilities, end of year
- $183,056
- Net assets, end of year
- $1,699,067
- Publicly traded securities
- $417,805
- Net assets without donor restrictions
- $1,491,275
- Net assets with donor restrictions
- $207,792
- Gross unrelated business income
- -$1,077
- Gross receipts
- $916,039
- Employees
- 5
- Volunteers
- 10
- Year formed
- 2014
- State of legal domicile
- TN
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KRISTIN MCKAY | PRESIDENT Officer | 40 | $86,240 |
| KYLE UNDERWOOD | CHAIR Trustee or director, Officer | 2 | $0 |
| ELIA HENRIQUEZ | VICE CHAIR Trustee or director, Officer | 2 | $0 |
| KEVIN FUHRMANN | TREASURER Trustee or director, Officer | 2 | $0 |
| JENN ESTEVEZ | SECRETARY Trustee or director, Officer | 2 | $0 |
| JOHN BARBOUR | DIRECTOR Trustee or director | 1 | $0 |
| CORY BRIDDLE | DIRECTOR Trustee or director | 2 | $0 |
| AARON BYZAK | DIRECTOR Trustee or director | 2 | $0 |
| ANNE AND JEFF DENNEEN | DIRECTOR Trustee or director | 2 | $0 |
| KATEY HOFFMAN | DIRECTOR Trustee or director | 1 | $0 |
| VICTOR NWABA | DIRECTOR Trustee or director | 1 | $0 |
| ASHLY WIEBELT | DIRECTOR Trustee or director | 1 | $0 |
| DAIZA GORDON | DIRECTOR Trustee or director | 1 | $0 |
| KYRAH JONES | DIRECTOR Trustee or director | 2 | $0 |
| JEANETTE HENRIQUEZ | DIRECTOR Trustee or director | 1 | $0 |
1 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MIRIAM PEDROZA | DIRECTOR (UNTIL 3/31/25) Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 15 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KRISTIN MCKAY | PRESIDENT Officer | 40 | $82,870 | $5,423 |
| ANDREW HOFFMAN | CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| KYLE UNDERWOOD | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JEANETTE HENRIQUEZ | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| JULIE DAVID FERULLO | SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| JOHN BARBOUR | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CORY BLAIN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JENN ESTEVEZ | DIRECTOR Trustee or director | 2 | $0 | $0 |
| KEVIN FUHRMANN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DAIZA GORDON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| NATHAN GRANT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ADAM HAAS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| KYRAH JONES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MIRIAM PEDROZA | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ASHLY WIEBELT | DIRECTOR Trustee or director | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KRISTIN MCKAY | PRESIDENT Trustee or director, Officer | 40 | $74,750 |
| KAREN BEATTY | DIRECTOR Trustee or director | 2 | $0 |
| JULIE FERULLO | SECRETARY Trustee or director, Officer | 2 | $0 |
| ELIA HENRIQUEZ | TREASURER Trustee or director, Officer | 2 | $0 |
| ANDREW HOFFMAN | CHAIR Trustee or director | 2 | $0 |
| KYLE UNDERWOOD | VICE CHAIR Trustee or director, Officer | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 4704 WALTHAM FOREST DR, DAVENPORT, FL 33837-1822
- In care of
- % MELISSA HOGAN
- Mailing address (990-N for 2014)
- 5112 Heron Hill Lane, Thompsons Station TN 37179
- Principal officer (990 for 2025)
- KAREN BEATTY, 4704 WALTHAM FOREST DRIVE, DAVENPORT, FL 33837
- Principal officer (990-N for 2014)
- Melissa Hogan, 5112 Heron Hill Lane, Thompsons Station TN 37179
- Signed the 990
- KAREN BEATTY, INTERIM EXECUTIVE DIRECTOR
- Phone
- (865) 248-9092
- Website
- http://www.savingcase.com
- Return prepared by
- EVERGREEN ALLIANCE
Mission
PROJECT ALIVE EXISTS TO FIND A CURE FOR HUNTER SYNDROME THROUGH RESEARCH AND ADVOCACY, AND PROVIDE EDUCATION AND RESOURCES TO THE HUNTER SYNDROME COMMUNITY.
Program accomplishments
- RESEARCH GRANTS - PROVIDES FUNDING TO SUPPORT RESEARCH IN THE HUNTER SYNDROME SPACE THAT FILLS CRITICAL GAPS IN CURRENT KNOWLEDGE ACROSS BASIC SCIENCE, CRITICAL CARE AND TRANSLATIONAL THERAPEUTICS TO IMPROVE THE LIVES OF THOSE AFFECTED WITH HUNTER SYNDROME AND THEIR FAMILIES.Expenses $71,856 · grants $46,015
- FAMILY CASE MANAGEMENT - RECEIVES COMMUNITY ENROLLMENT FORMS FROM FAMILIES, MAKES CONTACT WITH THE ENROLLED FAMILY TO DISCUSS PROGRAMS OFFERED BY PROJECT ALIVE AND ASSISTS IN FINDING NEEDED RESOURCES, I.E.-CLINICAL TRIAL INFORMATION, LOCAL SUPPORT SERVICES, PHYSICIAN INFORMATION, ETC. THIS INCLUDES HUNTER HEALTH PROGRAM.Expenses $90,935 · revenue $20,000
- "N PERSON - THE YEARLY FAMILY FAIR BRINGS MPS II FAMILIES, THE MEDICALCOMMUNITY, EDUCATORS, AND INDUSTRY TOGETHER TO ATTEND SESSIONS ONSUBJECTS IMPORTANT TO THE COMMUNITY. FAMILIES HAVE THE OPPORTUNITY TO TALK WITH INDUSTRY PARTNERS, OTHER SUPPORT ORGANIZATIONS, AND MEET OTHER FAMILIES WHO ARE AFFECTED BY MPS II. HOSTED A MARKET INSIGHTS ROUNDTABLE TO DISCUSS WITH INSURANCE PAYORS THE NEED FOR THEM TO BE PROACTIVE IN HOW THEY WILL HANDLE COVERAGE OF NEWLY FDA APPROVED TREATMENTS FOR MPS II PATIENTS.Expenses $454,877 · grants $13,644
- HELPING HANDS PROGRAM - THIS PROGRAM IS TO RECOGNIZE FAMILIES THAT ARE DEALING WITH A MAJOR MEDICAL CRISIS WITH THEIR CHILD OR SUPPORT FOR THE DEATH OF A CHILD. PROJECT ALIVE WILL SEND A $50-$100 GIFT CARD FOR FOOD OR GAS TO PROVIDE SMALL RELIEF FOR THIS TIME. WE ALSO SEND FLOWERS FROM THE BOARD TO FUNERALS TO HONOR THE CHILD.Expenses $4,609
- ALL OTHER - ADVOCACYExpenses $30,773
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 46-4617970
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2015
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Philanthropy, voluntarism and grantmaking foundations (T30)
- Assets (IRS master file)
- $1,882,123
- Income (IRS master file)
- $916,039
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $468,046 | $849,174 | $1,882,123 | XML |
| 990-T | December 2025 | – | – | – | IRS |
| 990 | December 2024 | $407,104 | $914,008 | $2,316,110 | XML |
| 990 | December 2023 | $301,636 | $439,138 | $2,584,090 | XML |
| 990 | December 2022 | $364,179 | $246,998 | $2,679,056 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990-N for 2014 Officer: Melissa Hogan | December 31, 2014 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-4617970).
Questions about PROJECT ALIVE
- What is the EIN of PROJECT ALIVE?
- The employer identification number (EIN) of PROJECT ALIVE is 46-4617970.
- Is PROJECT ALIVE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2015.
- Are donations to PROJECT ALIVE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does PROJECT ALIVE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of PROJECT ALIVE due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did PROJECT ALIVE last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of PROJECT ALIVE?
- The 990 for the year ended December 31, 2025 names KAREN BEATTY.
- Who are the officers and directors of PROJECT ALIVE?
- The 990 for the year ended December 31, 2025 lists 16 people; 1 received compensation from the organization, the highest $86,240 (KRISTIN MCKAY, PRESIDENT).
- How much revenue does PROJECT ALIVE have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $468,046, expenses of $849,174 and total assets of $1,882,123 at year end.
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