2025-10-28T10:38:11-05:00 2024-12-31 861400078 EVERGREEN ALLIANCE PROFESSIONAL CORP 4332 CERRITOS AVE SUITE A105 LOS ALAMITOS CA 90720 990 2024-01-01 464617970 PROJECT ALIVE PROJ 8652489092 4704 WALTHAM FOREST DRIVE DAVENPORT FL 33837 KRISTIN MCKAY PRESIDENT 8652489092 2025-10-27 1 1 P01219191 7143728110 2025-10-27 2024 2025-03-06 01:10:19Z X PROJECT ALIVE FOUNDATION KRISTIN MCKAY 4704 WALTHAM FOREST DRIVE DAVENPORT FL 33837 783904 0 X WWW.PROJECTALIVE.ORG X 2014 TN PROJECT ALIVE EXISTS TO FIND A CURE FOR HUNTER SYNDROME THROUGH RESEARCH AND ADVOCACY, AND PROVIDE EDUCATION AND RESOURCES TO THE HUNTER SYNDROME COMMUNITY. 14 14 4 140 3698 2698 83680 315263 184462 7784 0 80359 33494 3698 301636 407104 0 350596 0 0 163235 218183 0 0 58137 275903 345229 439138 914008 -137502 -506904 2584090 2316110 0 250657 2584090 2065453 X PROJECT ALIVE EXISTS TO FIND A CURE FOR HUNTER SYNDROME THROUGH RESEARCH AND ADVOCACY, AND PROVIDE EDUCATION AND RESOURCES TO THE HUNTER SYNDROME COMMUNITY. 0 0 333566 333566 RESEARCH GRANTS - PROVIDES FUNDING TO SUPPORT RESEARCH IN THE HUNTER SYNDROME SPACE THAT FILLS CRITICAL GAPS IN CURRENT KNOWLEDGE ACROSS BASIC SCIENCE, CRITICAL CARE AND TRANSLATIONAL THERAPEUTICS TO IMPROVE THE LIVES OF THOSE AFFECTED WITH HUNTER SYNDROME AND THEIR FAMILIES. 221780 FAMILY CASE MANAGEMENT - RECEIVES COMMUNITY ENROLLMENT FORMS FROM FAMILIES, MAKES CONTACT WITH THE ENROLLED FAMILY TO DISCUSS PROGRAMS OFFERED BY PROJECT ALIVE AND ASSISTS IN FINDING NEEDED RESOURCES, I.E.-CLINICAL TRIAL INFORMATION, LOCAL SUPPORT SERVICES, PHYSICIAN INFORMATION, ETC. 194143 17030 7784 IN PERSON - THE YEARLY FAMILY FAIR BRINGS MPS II FAMILIES, THE MEDICAL COMMUNITY, EDUCATORS, AND INDUSTRY TOGETHER TO ATTEND SESSIONS ON SUBJECTS IMPORTANT TO THE COMMUNITY. FAMILIES HAVE THE OPPORTUNITY TO TALK WITH INDUSTRY PARTNERS, OTHER SUPPORT ORGANIZATIONS, AND MEET OTHER FAMILIES WHO ARE AFFECTED BY MPS II. 4735 HELPING HANDS PROGRAM - THIS PROGRAM IS TO RECOGNIZE FAMILIES THAT ARE DEALING WITH A MAJOR MEDICAL CRISIS WITH THEIR CHILD OR SUPPORT FOR THE DEATH OF A CHILD. PROJECT ALIVE WILL SEND A $50-$100 GIFT CARD FOR FOOD OR GAS TO PROVIDE SMALL RELIEF FOR THIS TIME. WE ALSO SEND FLOWERS FROM THE BOARD TO FUNERALS TO HONOR THE CHILD. 4735 754224 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 4 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 14 14 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 1 1 0 TN X KAREN BEATTY 8652489092 4704 WALTHAM FOREST DRIVE DAVENPORT FL 33837 ANDREW HOFFMAN CHAIR 2.00 X X 0 0 0 KYLE UNDERWOOD VICE CHAIR 2.00 X X 0 0 0 JEANETTE HENRIQUEZ TREASURER 2.00 X X 0 0 0 JULIE DAVID FERULLO SECRETARY 2.00 X X 0 0 0 JOHN BARBOUR DIRECTOR 1.00 X 0 0 0 CORY BLAIN DIRECTOR 2.00 X 0 0 0 JENN ESTEVEZ DIRECTOR 2.00 X 0 0 0 KEVIN FUHRMANN DIRECTOR 2.00 X 0 0 0 DAIZA GORDON DIRECTOR 1.00 X 0 0 0 NATHAN GRANT DIRECTOR 1.00 X 0 0 0 ADAM HAAS DIRECTOR 1.00 X 0 0 0 KYRAH JONES DIRECTOR 1.00 X 0 0 0 MIRIAM PEDROZA DIRECTOR 2.00 X 0 0 0 ASHLY WIEBELT DIRECTOR 2.00 X 0 0 0 KRISTIN MCKAY PRESIDENT 40.00 X 82870 0 5423 82870 0 5423 0 0 0 0 0 315263 3228 315263 PROGRAM EVENT 900099 7784 7784 7784 61020 61020 394000 374661 19339 19339 19339 5837 2139 3698 3698 407104 7784 3698 80359 319482 319482 31114 31114 88292 33551 22073 32668 99025 87630 758 10637 4040 2707 404 929 10649 8708 251 1690 16177 10839 1618 3720 2462 2462 10792 10792 2847 2847 34576 24370 10206 4666 4666 8572 1747 6825 13915 13915 3027 2028 303 696 59434 40714 13118 5602 9392 3902 5490 6202 6202 PROGRAM EVENT 141695 141695 COMMUNITY ENGAGEMENT 18746 18746 SUBSCRIPTIONS & SOFTWAR 17179 8410 6574 2195 PROFESSIONAL DEVELOPMEN 8198 8198 3526 3526 914008 754224 101647 58137 2584090 1848623 27311 36148 404028 2584090 2316110 250657 0 250657 X 2584090 1863142 202311 2584090 2065453 2584090 2316110 -506904 -10855 -878 0 X 1 X 0 0 0 X 316382 1155936 277557 83680 315263 2148818 316382 1155936 277557 83680 315263 2148818 2148818 61020 61020 174284 86622 33494 3698 298098 2507936 192246 0.85680 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X PART X, LINE 2: THE FOUNDATION HAS RECEIVED TAX-EXEMPT STATUS FROM THE INTERNAL REVENUE SERVICE AND TENNESSEE SECRETARY OF STATE UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND UNDER REVENUE AND TENNESSEE CODE 67-6-322, RESPECTIVELY. SINCE THE FOUNDATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAX LIABILITY, NO PROVISION IS MADE FOR CURRENT OR DEFERRED INCOME TAXES. THE FOUNDATION USES THE SAME ACCOUNTING METHODS FOR TAX AND FINANCIAL REPORTING. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE FOUNDATION'S RETURNS ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AND FOUR YEARS, RESPECTIVELY, AFTER THEY ARE FILED. 1 UNC CHILDREN'S MPS RESEARCH AND TREATMENT PROGRAM 300 MARKET ST SUITE 134 CHAPEL HILL NC 27516 510220692 206811 0 FMV RESEARCH GRANT. MPS SUPERHERO FOUNDATION 4310 SHERIDAN ST HOLLYWOOD FL 33021 812859326 501(C)(3) 60000 0 FMV RESEARCH GRANT. CHILDREN'S HOSPITAL 4650 SUNSET BLVD LOS ANGELES CA 90027 510220692 501(C)(3) 47757 0 FMV RESEARCH GRANT. 3 RESEARCH GRANT 1 14084 FMV TRAVEL TO FAMILY FAIR 17 17030 PROVIDED TRAVEL FOR FAMILIES TO ATTEND THE FAMILY FAIR PART I, LINE 2: FOR GRANTS AWARDED BY PROJECT ALIVE, WE WORK WITH THE AWARDEE ON SETTING UP REPORTING SCHEDULES BASED ON THE TYPE OF RESEARCH AND LENGTH OF TIME OF THE PROJECT. WE ALSO REQUIRE FINANCIAL REPORTING TO TRACK HOW FUNDS ARE SPENT TO ENSURE THEY ARE FOLLOWING THE BUDGET THAT WAS SUBMITTED WITH THEIR GRANT APPLICATION. EXAMPLES OF REPORTING CADENCE CAN BE QUARTERLY, BI-YEARLY, OR END OF PROJECT FOR THOSE THAT ARE LESS THAN A YEAR IN LENGTH, REPORTS ARE TO INCLUDE ALL BUDGET AND MILESTONES UPDATES. WE ALSO REQUIRE A FINAL REPORT TO BE RECEIVED WITHIN 30 DAYS OF COMPLETION, INCLUDING THE SCIENTIFIC SUMMARY, FULL FINANCIAL ACCOUNTING, AND THE COMMUNITY IMPACT OF THEIR FINDINGS. FORM 990, PART VI, SECTION A, LINE 2 BOARD SECRETARY JULIE FERULLO AND DIRECTOR DAVID FERULLO ARE MARRIED BUT SHARE A SINGLE BOARD SEAT. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION PROVIDES AN ELECTRONIC COPY OF THE 990 TO ITS BOARD MEMBERS FOR REVIEW AND COMMENTS PRIOR TO FILING THE RETURN. FORM 990, PART VI, SECTION B, LINE 12C ANNUAL CONFLICT OF INTEREST FORMS ARE CIRCULATED TO EACH BOARD MEMBER FOR SIGNING AND SIGNED FORMS ARE RETAINED IN THE PRESIDENT'S OFFICE FILES. ALL BUSINESS TRANSACTIONS ARE EVALUATED FOR ANY POTENTIAL CONFLICTS OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 THE PRESIDENT'S COMPENSATION IS ESTABLISHED USING MARKET DATA FROM THE NONPROFIT COMPENSATION REPORT BY CANDID TO ENSURE ALIGNMENT WITH COMPARABLE ORGANIZATIONS. EACH YEAR, THE BOARD CONDUCTS A FORMAL REVIEW THAT INCLUDES PERFORMANCE EVALUATION, GOVERNANCE COMMITTEE REVIEW, AND APPROVAL OF ANY MERIT OR COST-OF-LIVING ADJUSTMENTS BY BOARD VOTE. ALL APPROVED CHANGES ARE DOCUMENTED AND IMPLEMENTED BY THE DIRECTOR OF OPERATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION CURRENTLY DOES NOT SHARE THESE ITEMS PUBLICLY.