Nonprofit · EIN 46-4322131
CURE SANFILIPPO FOUNDATION
Tax-exempt · COLUMBIA, SC 29206
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $2,781,149 | $1,572,959 | $1,208,190 | $13,871,255 | $135,072 | $13,736,183 |
| December 31, 2023 | 990 | $2,106,392 | $1,292,685 | $813,707 | $11,198,610 | $24,536 | $11,174,074 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $2,221,552
- Program service revenue
- $0
- Investment income
- $580,274
- Net gain from sales of assets
- $207,459
- Net income from fundraising events
- -$35,364
- Other revenue
- -$20,677
Expenses
- Grants and similar amounts paid
- $643,960
- Compensation of officers, directors and key employees
- $381,859
- Other salaries and wages
- $144,918
- Salaries, compensation and benefits (total)
- $630,558
- Professional fundraising fees
- $0
- Legal fees
- $124,719
- Accounting fees
- $10,935
- Travel
- $31,597
- Program services (functional)
- $1,259,871
- Management and general (functional)
- $166,763
- Fundraising (functional)
- $146,325
Balance sheet and other
- Total assets, start of year
- $11,198,610
- Total assets, end of year
- $13,871,255
- Total liabilities, end of year
- $135,072
- Net assets, end of year
- $13,736,183
- Publicly traded securities
- $10,235,625
- Net assets without donor restrictions
- $13,736,183
- Gross receipts
- $3,143,445
- Employees
- 5
- Year formed
- 2013
- State of legal domicile
- SC
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres Officer | 50 | $139,049 | $22,057 |
| Cara O'Neill | Chief Science Officer | 40 | $124,759 | $21,437 |
| Katie Walton | Vice President Officer | 40 | $118,051 | $4,676 |
| Daniel Fraley | Board Chair Trustee or director, Officer | 2 | $0 | $0 |
| Jessica Haywood | Director Trustee or director | 2 | $0 | $0 |
| Faith McAngus | Director Trustee or director | 2 | $0 | $0 |
| Shelby Leonardi | Secretary Trustee or director, Officer | 2 | $0 | $0 |
| Mike Lykes | Director Trustee or director | 2 | $0 | $0 |
| Ben Von Wong | Director Trustee or director | 2 | $0 | $0 |
| Adam Shaywitz | Director Trustee or director | 2 | $0 | $0 |
990 for the year ended December 31, 2023: 10 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres Officer | 50 | $136,354 | $26,285 |
| Cara O'Neill | Chief Science Officer | 40 | $121,170 | $1,212 |
| Katie Walton | Vice President Officer | 40 | $116,592 | $1,166 |
| Daniel Fraley | Board Chair Trustee or director, Officer | 2 | $0 | $0 |
| Jessica Haywood | Director Trustee or director | 2 | $0 | $0 |
| Faith McAngus | Director Trustee or director | 2 | $0 | $0 |
| Shelby Leonardi | Secretary Trustee or director, Officer | 2 | $0 | $0 |
| Valerie Byers | Director Trustee or director | 2 | $0 | $0 |
| Ben Von Wong | Director Trustee or director | 2 | $0 | $0 |
| Adam Shaywitz | Director Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 6048 CEDAR RIDGE RD, COLUMBIA, SC 29206-4302
- In care of
- % GLENN ONEILL
- Principal officer (990 for 2024)
- Glenn O'Neill, PO Box 6901, Columbia, SC 29260
- Signed the 990
- Glenn O'Neill, President
- Phone
- (803) 413-0525
- Return prepared by
- The Hobbs Group PA
Mission
To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
Program accomplishments
- To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.Expenses $1,259,871
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 46-4322131
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2014
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H80)
- Assets (IRS master file)
- $13,871,255
- Income (IRS master file)
- $3,143,445
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $2,781,149 | $1,572,959 | $13,871,255 | XML |
| 990 | December 2023 | $2,106,392 | $1,292,685 | $11,198,610 | XML |
| 990 | December 2022 | $2,707,445 | $2,287,097 | $9,625,770 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 46-4322131).
Questions about CURE SANFILIPPO FOUNDATION
- What is the EIN of CURE SANFILIPPO FOUNDATION?
- The employer identification number (EIN) of CURE SANFILIPPO FOUNDATION is 46-4322131.
- Is CURE SANFILIPPO FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2014.
- Are donations to CURE SANFILIPPO FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CURE SANFILIPPO FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CURE SANFILIPPO FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CURE SANFILIPPO FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of CURE SANFILIPPO FOUNDATION?
- The 990 for the year ended December 31, 2024 names Glenn O'Neill.
- Who are the officers and directors of CURE SANFILIPPO FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 10 people; 3 received compensation from the organization, the highest $139,049 (Glenn O'Neill, Exe Dir/Pres).
- How much revenue does CURE SANFILIPPO FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $2,781,149, expenses of $1,572,959 and total assets of $13,871,255 at year end.
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