Nonprofit · EIN 32-0241819
APS TYPE 1 FOUNDATION
Tax-exempt · STONY BROOK, NY 11790
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $126,409 | $112,896 | $13,513 | $372,552 | $0 | $372,552 |
| December 31, 2024 | 990-EZ | $161,120 | $99,278 | $61,842 | $359,039 | $0 | $359,039 |
| December 31, 2023 | 990-EZ | $134,450 | $132,985 | $1,465 | $297,179 | $0 | $297,179 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $126,384
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $25
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $6,462
- Professional fees and payments to contractors
- $36,376
- Printing, publications and postage
- $1,000
- Other expenses
- $69,058
Balance sheet and other
- Total assets, start of year
- $359,039
- Total assets, end of year
- $372,552
- Total liabilities, end of year
- $0
- Net assets, end of year
- $372,552
- Cash, savings and investments
- $372,552
- Gross receipts
- $126,409
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Sherri Seyfert | Treasurer | 10 | $0 |
| Todd Talarico | President | 10 | $0 |
| Jennifer Orange | Vice President | 10 | $0 |
| Robin Finch | Secretary | 10 | $0 |
| David Seyfert | Board Member | 5 | $0 |
| Pushpa Rao | Board Member | 7 | $0 |
| Julia Richardson | Board Member | 5 | $0 |
| Laura Rivard | Board Member | 5 | $0 |
| Gaby Talarico | Board Member | 5 | $0 |
990-EZ for the year ended December 31, 2024: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Svetlana Hutfles | Executive Director | 20 | $32,308 |
| Sherri Seyfert | Treasurer | 15 | $0 |
| Todd Talarico | President | 10 | $0 |
| Jennifer Orange | Vice President | 10 | $0 |
| Robin Finch | Secretary | 8 | $0 |
| David Seyfert | Board Member | 8 | $0 |
| Pushpa Rao | Board Member | 5 | $0 |
| Julia Richardson | Board Member | 8 | $0 |
| Laura Rivard | Board Member | 8 | $0 |
990-EZ for the year ended December 31, 2023: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Sherri Seyfert | Treasurer | 15 | $0 |
| Todd Talarico | President | 15 | $0 |
| Jennifer Orange | Vice President | 12 | $0 |
| Robin Finch | Secretary | 15 | $0 |
| David Seyfert | Board Member | 5 | $0 |
| Pushpa Rao | Board Member | 5 | $0 |
| Julia Richardson | Board Member | 5 | $0 |
| Laura Rivard | Board Member | 5 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 404, STONY BROOK, NY 11790-0404
- In care of
- % SHERRI BROWNE SEYFERT
- Mailing address (990-N for 2018)
- PO BOX 404, STONY BROOK NY 11790
- Principal officer (990-N for 2018)
- Todd Talarico, 18 Rolling Hill Drive, Morristown NJ 07960
- Signed the 990-EZ
- Sherri Seyfert, Treasurer
- Phone
- (631) 682-5550
- Website
- www.apstype1.org
Mission
The APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this autoimmune disorder.
Program accomplishments
- The APS Type 1 Foundation's community is approximately 200 in North America and counting. There are many undiagnosed APS Type 1 patients throughout the United States and worldwide. The Foundations has assisted in decreasing the time to diagnosis; on average, it was 7-10 years when we started, and it can now take 4-5 years. The Foundation's accomplishments for 2024 include Education: This July, The APS Type 1 Foundation Inc. held its 6th Biannual International Symposium on APS Type 1 in San Francisco, California. This symposium provides much-needed education, especially for the newly diagnosed patients, their families, physicians, and clinicians worldwide. We are helping to promote best practices and increase research interest throughout the world. Awareness: The Foundation held our second Global Summit in San Francisco in July 2024. This event is for physicians and research scientists. For this event, the Foundation partnered with the Clinical Immunology Society and the National Institute of Allergy and Infectious Diseases. We are hoping to hold our third in 2026. We continue awareness and education through our website, quarterly newsletters and on social media platforms. Research: The Foundation continues to fund research in APS Type 1, also known as APECED, typically every two years. We continue to run the first-ever Natural History Registry on APS Type 1.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 32-0241819
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2014
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $372,552
- Income (IRS master file)
- $126,409
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $126,409 | $112,896 | $372,552 | IRS |
| 990-EZ | December 2024 | $161,120 | $99,278 | $359,039 | IRS |
| 990-EZ | December 2023 | $134,450 | $132,985 | $297,179 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
| 990-N for 2018 Officer: Todd Talarico | December 31, 2018 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 32-0241819).
Questions about APS TYPE 1 FOUNDATION
- What is the EIN of APS TYPE 1 FOUNDATION?
- The employer identification number (EIN) of APS TYPE 1 FOUNDATION is 32-0241819.
- Is APS TYPE 1 FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2014.
- Are donations to APS TYPE 1 FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does APS TYPE 1 FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of APS TYPE 1 FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did APS TYPE 1 FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of APS TYPE 1 FOUNDATION?
- The 990-N for 2018 names Todd Talarico.
- Who are the officers and directors of APS TYPE 1 FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 9 people; 0 received compensation from the organization.
- How much revenue does APS TYPE 1 FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $126,409, expenses of $112,896 and total assets of $372,552 at year end.
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