2024-05-09T10:47:59-07:00 2023-12-31 990EZ 2023-01-01 320241819 APS TYPE 1 FOUNDATION APST 6316825550 PO Box 404 12 Sand Street Stony Brook NY 11790 Sherri Seyfert Treasurer 6316825550 2024-04-26 Sherri Seyfert 999009999 1 1 11 1 AAL2 2023 2023-04-26 12:10:37Z X www.apstype1.org X X 134450 X 132727 0 0 0 0 0 0 0 0 0 0 0 0 0 1723 134450 0 0 0 60871 0 2803 69311 132985 1465 295714 0 297179 295714 297179 0 0 0 0 295714 297179 0 0 295714 297179 The foundation's primary purpose is to promote awareness, education, and research with hopes of one day finding a cure for APS Type 1. The APS Type 1 Foundation's community is approximately 200 in North America. There are many undiagnosed APS Type 1 patients. Diagnosis can take 4-5 years. The Foundation's accomplishments for 2023 include Education: In July, The APS Type 1 Foundation Inc. held its 5th Biannual International Symposium on APS Type 1 in Washington DC., this provided much-needed education for families, patients, physicians, and clinicians worldwide. We are helping to promote best practices and increase research interest throughout the world. Awareness: The Foundation continues to plan our second Global Summit to be held in San Francisco in July 2024. For this event, the Foundation is partnering with the Clinical Immunology Society and the National Institute of Allergy and Infectious Diseases. We produce a quarterly newsletter and continue awareness and education on social media platforms. Research: The Foundation funded research through The National Organization for Rare Disorders awarded to Matthieu Giraud in 2023 "Generation of IPS-Derived TREGS For Cell Therapy in APECED (APS Type 1)" 0 0 0 Sherri Seyfert Treasurer 15 0 0 0 Todd Talarico President 15 0 0 0 Jennifer Orange Vice President 12 0 0 0 Robin Finch Secretary 15 0 0 0 David Seyfert Board Member 5 0 0 0 Pushpa Rao Board Member 5 0 0 0 Julia Richardson Board Member 5 0 0 0 Laura Rivard Board Member 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 NY Sherri Seyfert PO Box 404 12 Sand Street Stony Brook NY 11790 6316825550 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 61760 12040 41750 111586 134450 361586 0 0 0 0 0 0 0 0 0 0 61760 12040 41750 111586 134450 361586 361586 361586 0 1 0.85168 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 8 $1723 in income was accrued as bank interest and miscellaneous incomes including reversal of wire transfers and a printing refund. Form 990-EZ, Part I, Line 16 Other expenses include The APS Type 1 Registry $2750, Global Scientific Summit $46,359, Operational Expenses include website $2,651, Google $22, filing Taxes $141, Stripe Fee's $2,386, and Mailchimp $345 Insurance $4,182, Memberships $200, fundraising Expenses $6,250, Bank Fee's $163, Board Member Conference $745, Miscellaneous $1,271 includes Aplos Accounting Software, Reimbursed Credit Card charges at Global Summit, and Flowers. Board Meeting $1,846.