CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN

Financials

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

Address and contacts

Address (IRS master file)

2414 MORRIS AVE STE 110, UNION, NJ 07083-5708

In care of

% KELLY R LEIGHT

Signed the 990

JESSICA MARGOLIES, CHAIR

Phone

(908) 364-0272

Website

CARESFOUNDATION.ORG

Return prepared by

SCHACHTER & DEPALMA LLC

Mission

CARES FOUNDATION IS A NONPROFIT ORGANIZATION COMMITTED TO IMPROVING THE LIVES OF FAMILIES AND INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH FOR A BETTER UNDERSTANDING OF CAH, BETTER TREATMENTS AND A CURE; EDUCATING THE PUBLIC AND HEALTHCARE PROFESSIONALS ABOUT ALL FORMS OF CAH; ADVOCATING FOR UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; AND COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES AND RESOURCES VITAL TO THE CAH COMMUNITY WORLDWIDE.

Program accomplishments

• Research/CCC: This CARES-designated Comprehensive Care Center provides a multi-disciplinary approach to treatment of the CAH patient throughout the lifecycle.
  Expenses $201,000
• FAMILY SUPPORT & EDUCATION PROVIDES EDUCATIONAL MATERIALS AND INFORMATION FOR LIVING WITH THE DAILY CHALLENGES OF CONGENITAL ADRENAL HYPERPLASIA (CAH). OUR TOOLS HELP THOSE AFFECTED BY CAH TO BETTER CARE AND ADVOCATE FOR THEMSELVES AND THEIR FAMILIES. OUR CONFERENCES ENABLE OUR COMMUNITY TO HAVE DIRECT ACCESS TO THE TOP EXPERTS IN THE COUNTRY AND PROVIDE OPPORTUNITES FOR CONNECTING WITH OTHERS.
  Expenses $135,936
• WARMLINE SUPPORT PROVIDES INDIVIDUALS AND PARENTS OF CHILDREN WITH CAH A ONE-ON-ONE SOURCE OF INFORMATION AND SUPPORT, WHICH INCLUDES PHYSICIAN AND RESOURCE REFERRALS, VIA TELEPHONE, EMAIL AND MAIL.
  Expenses $124,970
• PROGRAMS-OTHER
  Expenses $34,263
• CAH AWARENESS-EDUCATING THE PUBLIC AND PHYSICIANS ABOUT ALL FORMS OF CONGENITAL ADRENAL HYPERPLASIA, ITS SYMPTOMS, PORTOCOLS, TREATMENTS, GENETIC FREQUENCY AND THE NECESSITY OF EARLY INTERVENTION AND BENEFITS OF NEWBORN SCREENING.
  Expenses $34,260
• PROGRAM TRAVEL
  Expenses $34,260
• PROGRAM SUPPLIES
  Expenses $34,260
• CAH AWARENESS WALKS
  Expenses $34,260
• RESEARCH
  Expenses $34,260
• CAH PRODUCTS
  Expenses $34,260
• EMS
  Expenses $34,260
• NEWSLETTERS
  Expenses $34,260
• CAH AWARENESS-OTHER
  Expenses $34,260
• ENDO/ICE CONFERENCE
  Expenses $34,260
• PROGRAM POSTAGE
  Expenses $34,260
• PROGRAM PRINTING
  Expenses $34,260
• PROGRAM CONSULTING
  Expenses $34,260

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

IRS record

EIN

22-3755684

Tax-exempt status

501(c)(3): Charitable, religious, educational or scientific organization

Foundation status

Publicly supported organization (170(b)(1)(A)(vi))

Donations deductible (Pub 78)

Public charity, 50% deduction limit

Exempt since

2001

Accounting year ends

December

Files

Form 990 or 990-EZ

Category (NTEE)

Voluntary health associations and medical disciplines (G114)

Assets (IRS master file)

$1,077,723

Income (IRS master file)

$1,204,352

Filing history

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-3755684).

Questions about CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN

What is the EIN of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN?

The employer identification number (EIN) of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN is 22-3755684.

Is CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN tax-exempt?

Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2001.

Are donations to CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN tax-deductible?

Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).

Which annual return does CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN file?

Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.

When is the next return of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN due?

The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.

When did CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN last file with the IRS?

The latest return in the IRS public files is the 990 for the year ended December 2025.

Who are the officers and directors of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN?

The 990 for the year ended December 31, 2025 lists 22 people; 2 received compensation from the organization, the highest $190,227 (DINA MATOS, EXECUTIVE DIRECTOR).

How much revenue does CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN have?

On its 990 for the year ended December 31, 2025 it reported revenue of $1,204,352, expenses of $1,127,338 and total assets of $1,077,723 at year end.

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