2024-05-14T08:31:50-07:00 2023-12-31 273272906 SCHACHTER & DEPALMA LLC 959 ROUTE 46 EAST STE 302 PARSIPPANY NJ 07054 990 2023-01-01 223755684 CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION CONG 9083640272 2414 MORRIS AVENUE 110 UNION NJ 07083 ALEXANDRA DUBOIS Chair 2024-05-14 true ALEXANDRA DUBOIS 999009999 true Maria DePalma P00161215 9732990775 2 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z 2414 MORRIS AVENUE 110 UNION NJ 07083 954248 false X CARESFOUNDATION.ORG X 2000 NJ CARES FOUNDATION IS A NONPROFIT ORGANIZATION COMMITTED TO IMPROVING THE LIVES OF FAMILIES AND INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH FOR A BETTER UNDERSTANDING OF CAH, BETTER TREATMENTS AND A CURE; EDUCATING THE PUBLIC AND HEALTHCARE PROFESSIONALS ABOUT ALL FORMS OF CAH; ADVOCATING FOR UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; AND COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES AND RESOURCES VITAL TO THE CAH COMMUNITY WORLDWIDE. 18 18 8 50 0 497540 500309 393288 434838 3262 19101 0 894090 954248 0 0 367628 394036 0 52237 450051 521082 817679 915118 76411 39130 754496 905559 153099 265032 601397 640527 X CARES FOUNDATION IS A NONPROFIT ORGANIZATION COMMITTED TO IMPROVING THE LIVES OF FAMILIES AND INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH FOR A BETTER UNDERSTANDING OF CAH, BETTER TREATMENTS AND A CURE; EDUCATING THE PUBLIC AND HEALTHCARE PROFESSIONALS ABOUT ALL FORMS OF CAH; ADVOCATING FOR UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; AND COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES AND RESOURCES VITAL TO THE CAH COMMUNITY WORLDWIDE. false false 235823 FAMILY SUPPORT & EDUCATION PROVIDES EDUCATIONAL MATERIALS AND INFORMATION FOR LIVING WITH THE DAILY CHALLENGES OF CONGENITAL ADRENAL HYPERPLASIA (CAH). OUR TOOLS HELP THOSE AFFECTED BY CAH TO BETTER CARE AND ADVOCATE FOR THEMSELVES AND THEIR FAMILIES. OUR CONFERENCES ENABLE OUR COMMUNITY TO HAVE DIRECT ACCESS TO THE TOP EXPERTS IN THE COUNTRY AND PROVIDE OPPORTUNITES FOR CONNECTING WITH OTHERS. 104400 Research/CCC: This CARES-designated Comprehensive Care Center provides a multi-disciplinary approach to treatment of the CAH patient throughout the lifecycle. 104060 WARMLINE SUPPORT PROVIDES INDIVIDUALS AND PARENTS OF CHILDREN WITH CAH A ONE-ON-ONE SOURCE OF INFORMATION AND SUPPORT, WHICH INCLUDES PHYSICIAN AND RESOURCE REFERRALS, VIA TELEPHONE, EMAIL AND MAIL. 327082 771365 true true false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 7 0 true 8 true false false false false false false false 0 false false false false false false false X 18 18 false false false false false false false true true false false true true true true true true false false false CA CO FL IL MD NJ NY OH OK PA VA WA X X X TAXPAYER 9083640272 2414 MORRIS AVENUE UNION NJ 07083 X JESSICA MARGOLIES Vice Chair 10.00 0.00 X X 0 0 0 STACEY SHACKLEY Trustee 5.00 0.00 X 0 0 0 KAREN BOGAARD Trustee 5.00 0.00 X 0 0 0 NICOLE BOLLENBACH Trustee 5.00 0.00 X 0 0 0 TIMOTHY ROBERTS Trustee 5.00 0.00 X 0 0 0 LOUISE FLEMING PhD RN Past Chair 10.00 0.00 X X 0 0 0 MICHELE BACUS Trustee 5.00 0.00 X 0 0 0 GEORGE LIMBERT Trustee 5.00 0.00 X 0 0 0 LESLEY HOLROYD Secretary 10.00 0.00 X X 0 0 0 ALEXANDRA DUBOIS Chair 10.00 0.00 X X 0 0 0 KATHERINE FOWLER Trustee 5.00 0.00 X 0 0 0 MARIA MAEBIUS Trustee 5.00 0.00 X 0 0 0 KEYSHA BERRY Trustee 5.00 0.00 X 0 0 0 ALAN MACY Trustee 5.00 0.00 X 0 0 0 BRIAN STAIR Treasurer 10.00 0.00 X X 0 0 0 VALENTINA TUDOR Trustee 5.00 0.00 X 0 0 0 ANNE NEUMANN Trustee 5.00 0.00 X 0 0 0 MONICA SEWELL Trustee 5.00 0.00 X 0 0 0 0 false false false 0 500309 500309 ANNUAL GALA 329333 329333 FAMILY FUNDRAISERS 40512 40512 WALKS 64993 64993 434838 19117 19117 0 0 0 -16 -16 -16 -16 0 0 0 0 954248 453939 0 0 0 0 0 0 361765 300265 47029 14471 0 0 32271 26785 4195 1291 0 0 5600 5600 0 0 0 11615 5493 1496 4626 0 4034 3106 928 0 0 0 18627 17509 745 373 0 0 0 0 1920 1536 192 192 24539 7853 16307 379 RESEARCH 239277 239277 EVENT COSTS 137638 107358 2752 27528 Printing and Publications 23007 20246 460 2301 RENT 22174 17739 3770 665 32651 24198 8042 411 915118 771365 91516 52237 56449 34741 625622 842389 0 14104 0 0 0 0 0 55165 23544 36156 31271 3156 4885 0 0 0 0 0 754496 905559 153099 165032 100000 153099 265032 X 601397 640527 601397 640527 754496 905559 39130 X false true X true false X 587857 511344 507189 889178 935147 3430715 0 0 587857 511344 507189 889178 935147 3430715 0 3430715 3436 4415 3238 19101 30190 0 0 3460905 0.99130 0.99520 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 36156 31271 4885 4885 Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: PROGRAMS-OTHER OTHER PROGRAM SERVICES 5: CAH AWARENESS-EDUCATING THE PUBLIC AND PHYSICIANS ABOUT ALL FORMS OF CONGENITAL ADRENAL HYPERPLASIA, ITS SYMPTOMS, PORTOCOLS, TREATMENTS, GENETIC FREQUENCY AND THE NECESSITY OF EARLY INTERVENTION AND BENEFITS OF NEWBORN SCREENING. OTHER PROGRAM SERVICES 6: PROGRAM TRAVEL OTHER PROGRAM SERVICES 7: PROGRAM SUPPLIES OTHER PROGRAM SERVICES 8: CAH AWARENESS WALKS OTHER PROGRAM SERVICES 9: RESEARCH OTHER PROGRAM SERVICES 10: CAH PRODUCTS OTHER PROGRAM SERVICES 11: EMS OTHER PROGRAM SERVICES 12: NEWSLETTERS OTHER PROGRAM SERVICES 13: CAH AWARENESS-OTHER OTHER PROGRAM SERVICES 14: ENDO/ICE CONFERENCE OTHER PROGRAM SERVICES 15: PROGRAM POSTAGE OTHER PROGRAM SERVICES 16: PROGRAM PRINTING OTHER PROGRAM SERVICES 17: PROGRAM CONSULTING Form 990, Part VI, Section B, Line 11b THE FORM 990 HAS BEEN SENT ELECTRONICALLY TO ALL BOARD MEMBERS FOR COMMENT AND APPROVAL BEFORE SUBMISSION TO THE IRS. Form 990, Part VI, Section B, Line 12c CONFLICT OF INTEREST FORMS ARE COLLECTED EACH YEAR AND REVIEWED BY THE EXECUTIVE DIRECTOR FOR ANY POSSIBLE ISSUES. THE PROCEDURES FOR ADDRESSING ANY CONFLICTS ARE DOCUMENTED IN THE CONFLICTS OF INTEREST POLICY WHICH IS DISTRIBUTED TO ALL BOARD MEMBERS AND STAFF AS WELL AS POSTED ON OUR WEBSITE. Form 990, Part VI, Section C, Line 19 FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE.