Nonprofit · EIN 22-3305007
WILLIAMS SYNDROME ASSOCIATION INC
Tax-exempt · NEWARK, NJ 07104
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $2,016,743 | $2,143,132 | -$126,389 | $2,831,149 | $60,643 | $2,770,506 |
| December 31, 2023 | 990 | $1,721,772 | $1,940,371 | -$218,599 | $2,841,757 | $105,526 | $2,736,231 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,188,175
- Program service revenue
- $678,960
- Investment income
- $76,521
- Net income from fundraising events
- $69,996
- Net income from sales of inventory
- $3,091
- Other revenue
- $73,087
Expenses
- Grants and similar amounts paid
- $79,589
- Compensation of officers, directors and key employees
- $210,411
- Other salaries and wages
- $539,033
- Salaries, compensation and benefits (total)
- $876,167
- Professional fundraising fees
- $0
- Legal fees
- $3,483
- Accounting fees
- $53,572
- Occupancy
- $2,240
- Travel
- $15,898
- Depreciation
- $12,572
- Program services (functional)
- $1,520,913
- Management and general (functional)
- $422,055
- Fundraising (functional)
- $200,164
Balance sheet and other
- Total assets, start of year
- $2,841,757
- Total assets, end of year
- $2,831,149
- Total liabilities, end of year
- $60,643
- Net assets, end of year
- $2,770,506
- Land, buildings and equipment
- $17,148
- Publicly traded securities
- $2,116,590
- Net assets without donor restrictions
- $1,690,469
- Net assets with donor restrictions
- $1,080,037
- Gross receipts
- $2,063,856
- Employees
- 10
- Volunteers
- 100
- Year formed
- 1993
- State of legal domicile
- NJ
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SARAH SCHAEFER | EXECUTIVE DIRECTOR AS OF JUL'24 Officer | 40 | $145,000 | $16,534 |
| MARY VAN HANEGHAN | EXECUTIVE DIRECTOR THROUGH JUL'24 Officer | 40 | $112,811 | $11,700 |
| BILL PALMER | PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| MEREDITH GREENE | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| JANETRICKS CHEBUKATI OKEYO | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| GIANNA MORELLO | TRUSTEE Trustee or director | 1 | $0 | $0 |
| KELLY WEI | TRUSTEE Trustee or director | 1 | $0 | $0 |
| BRENDAN LEMIEUX | TRUSTEE Trustee or director | 1 | $0 | $0 |
| ELLEN HOCH | TRUSTEE Trustee or director | 1 | $0 | $0 |
| CLANCEY HOPPER | TRUSTEE Trustee or director | 1 | $0 | $0 |
| AMY NUSSBAUM | TRUSTEE Trustee or director | 1 | $0 | $0 |
| REBEKAH PAGIS | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| DANIELLE SHOCKEY | TRUSTEE Trustee or director | 1 | $0 | $0 |
| BEN SAMELSON-JONES | TRUSTEE Trustee or director | 1 | $0 | $0 |
| AARON LOMBARD | TRUSTEE Trustee or director | 1 | $0 | $0 |
2 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MARIE GLEASON | TRUSTEE Trustee or director | 1 | $0 |
| LISETTE ENGEL | TRUSTEE Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 18 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARY VAN HANEGHAN | EXECUTIVE DIRECTOR Officer | 40 | $171,903 | $24,065 |
| SARAH GIDDINGS | VP OF PROGRAMS Highest-paid employee | 40 | $107,893 | $13,162 |
| JOE MANCINI | VP OF ADVANCEMENT Highest-paid employee | 40 | $108,458 | $130 |
| CYNDRA COLE | PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| SCOTT OTTENHEIMER | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| MATT BARTOW | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| MEREDITH GREENE | TRUSTEE Trustee or director | 1 | $0 | $0 |
| GIANNA MORELLO | TRUSTEE Trustee or director | 1 | $0 | $0 |
| KELLY WEI | TRUSTEE Trustee or director | 1 | $0 | $0 |
| BRENDAN LEMIEUX | TRUSTEE Trustee or director | 1 | $0 | $0 |
| ELLEN HOCH | TRUSTEE Trustee or director | 1 | $0 | $0 |
| CLANCEY HOPPER | TRUSTEE Trustee or director | 1 | $0 | $0 |
| AMY NUSSBAUM | TRUSTEE Trustee or director | 1 | $0 | $0 |
| AINE SMALLEY | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| REBEKAH PAGIS | TRUSTEE Trustee or director | 1 | $0 | $0 |
| BILL PALMER | TRUSTEE Trustee or director | 1 | $0 | $0 |
| AARON LOMBARD | TRUSTEE Trustee or director | 1 | $0 | $0 |
| JANETRICKS CHEBUKATI OKEYO | TRUSTEE Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 243 BROADWAY UNIT 9188, NEWARK, NJ 07104-7408
- In care of
- % TERRY MONKABA
- Principal officer (990 for 2024)
- SARAH SCHAEFER, 243 BROADWAY 9188, NEWARK, NJ 07104
- Signed the 990
- SARAH SCHAEFER, EXECUTIVE DIRECTOR
- Phone
- (248) 509-0060
- Website
- WWW.WILLIAMS-SYNDROME.ORG
- Return prepared by
- AVENSON HAMANN CPAS LLP
Mission
TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.
Program accomplishments
- WE SUPPORT OUR MISSION BY:- PROVIDING INFORMATION AND EMOTIONAL SUPPORT TO INDIVIDUALS WITH CHARACTERISTICS OF WILLIAMS SYNDROME, THEIR FAMILIES, AND THE PROFESSIONALS WHO WORK WITH THEM- DEVELOPING PROGRAMS AND SERVICES TO HELP BUILD STRENGTHS AND MEET CHALLENGES FROM EARLY CHILDHOOD THROUGH ADULTHOOD- INCREASING PUBLIC AWARENESS AND UNDERSTANDING OF WILLIAMS SYNDROME, AND- ENCOURAGING AND SUPPORTING RESEARCH INTO A WIDE RANGE OF ISSUES RELATED TO WILLIAMS SYNDROMEExpenses $1,520,913 · grants $79,589 · revenue $678,960
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 22-3305007
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1995
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20Z)
- Assets (IRS master file)
- $2,831,149
- Income (IRS master file)
- $2,063,856
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $2,016,743 | $2,143,132 | $2,831,149 | IRS |
| 990 | December 2023 | $1,721,772 | $1,940,371 | $2,841,757 | XML |
| 990 | December 2022 | $2,421,502 | $2,351,418 | $2,892,153 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-3305007).
Questions about WILLIAMS SYNDROME ASSOCIATION INC
- What is the EIN of WILLIAMS SYNDROME ASSOCIATION INC?
- The employer identification number (EIN) of WILLIAMS SYNDROME ASSOCIATION INC is 22-3305007.
- Is WILLIAMS SYNDROME ASSOCIATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1995.
- Are donations to WILLIAMS SYNDROME ASSOCIATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does WILLIAMS SYNDROME ASSOCIATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of WILLIAMS SYNDROME ASSOCIATION INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did WILLIAMS SYNDROME ASSOCIATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of WILLIAMS SYNDROME ASSOCIATION INC?
- The 990 for the year ended December 31, 2024 names SARAH SCHAEFER.
- Who are the officers and directors of WILLIAMS SYNDROME ASSOCIATION INC?
- The 990 for the year ended December 31, 2024 lists 17 people; 2 received compensation from the organization, the highest $145,000 (SARAH SCHAEFER, EXECUTIVE DIRECTOR AS OF JUL'24).
- How much revenue does WILLIAMS SYNDROME ASSOCIATION INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $2,016,743, expenses of $2,143,132 and total assets of $2,831,149 at year end.
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