2024-11-15T13:42:24-06:00 2023-12-31 463330935 AVENSON HAMANN CPAS LLP 7421 BURNET ROAD 522 AUSTIN TX 78757 990 2023-01-01 223305007 WILLIAMS SYNDROME ASSOCIATION INC WILL 2485090060 243 BROADWAY 9188 NEWARK NJ 07104 SARAH GIDDINGS INTERIM EXECUTIVE DIRECTOR 2486600454 2024-11-15 1 1 CATHERINE AVENSON P01259734 5126939131 2023 2024-10-15 13:58:12Z SARAH GIDDINGS 243 BROADWAY 9188 NEWARK NJ 07104 3183555 0 X WWW.WILLIAMS-SYNDROME.ORG X 1993 NJ ADVANCING THE INTERESTS OF INDIVIDUALS WITH WILLIAMS SYNDROME BY SUPPORTING RESEARCH, PROVIDING FAMILY SERVICES AND RAISING COMMUNITY AWARENESS. 15 15 13 100 0 0 1924528 1697193 491682 55687 57546 -63057 -52254 31949 2421502 1721772 496638 131205 0 0 881211 1043900 0 0 467443 973569 765266 2351418 1940371 70084 -218599 2892153 2841757 268814 105526 2623339 2736231 X TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS. 0 0 1004705 131205 55687 WE SUPPORT OUR MISSION BY:- PROVIDING INFORMATION AND EMOTIONAL SUPPORT TO INDIVIDUALS WITH CHARACTERISTICS OF WILLIAMS SYNDROME, THEIR FAMILIES, AND THE PROFESSIONALS WHO WORK WITH THEM- DEVELOPING PROGRAMS AND SERVICES TO HELP BUILD STRENGTHS AND MEET CHALLENGES FROM EARLY CHILDHOOD THROUGH ADULTHOOD- INCREASING PUBLIC AWARENESS AND UNDERSTANDING OF WILLIAMS SYNDROME, AND- ENCOURAGING AND SUPPORTING RESEARCH INTO A WIDE RANGE OF ISSUES RELATED TO WILLIAMS SYNDROME 1004705 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 25 0 13 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 1 1 0 0 1 1 1 0 0 AZ CO CT FL IL IN MD MI MN NJ NY PA TN VA WI X THE ORGANIZATION 2485090060 243 BROADWAY 9188 NEWARK NJ 07104 CYNDRA COLE PRESIDENT 5.00 X X 0 0 0 SCOTT OTTENHEIMER TREASURER 5.00 X X 0 0 0 MATT BARTOW SECRETARY 5.00 X X 0 0 0 MEREDITH GREENE TRUSTEE 1.00 X 0 0 0 GIANNA MORELLO TRUSTEE 1.00 X 0 0 0 KELLY WEI TRUSTEE 1.00 X 0 0 0 BRENDAN LEMIEUX TRUSTEE 1.00 X 0 0 0 ELLEN HOCH TRUSTEE 1.00 X 0 0 0 CLANCEY HOPPER TRUSTEE 1.00 X 0 0 0 AMY NUSSBAUM TRUSTEE 1.00 X 0 0 0 AINE SMALLEY VICE PRESIDENT 5.00 X X 0 0 0 REBEKAH PAGIS TRUSTEE 1.00 X 0 0 0 BILL PALMER TRUSTEE 1.00 X 0 0 0 AARON LOMBARD TRUSTEE 1.00 X 0 0 0 JANETRICKS CHEBUKATI OKEYO TRUSTEE 1.00 X 0 0 0 MARY VAN HANEGHAN EXECUTIVE DIRECTOR 40.00 X 171903 0 24065 JOE MANCINI VP OF ADVANCEMENT 40.00 X 108458 0 130 SARAH GIDDINGS VP OF PROGRAMS 40.00 X 107893 0 13162 388254 0 37357 3 0 1 0 0 663484 1033709 614 1697193 REGIONAL PROGRAMS AND CAMP 900099 55687 55687 55687 60433 60433 1001119 1115688 8921 -114569 -8921 -123490 -123490 355561 663484 336229 19332 19332 13562 945 12617 12617 1721772 55687 0 -31108 127499 127499 3706 3706 195969 127380 39194 29395 703188 368239 68881 266068 11414 6668 707 4039 56537 34811 4087 17639 76792 36718 17747 22327 6092 5023 1069 58159 58159 14762 14762 90428 25 83664 6739 51909 6324 16630 28955 1248 328 920 27818 14898 12529 391 28449 21538 4039 2872 44409 21360 14163 8886 68450 983 67467 9943 1281 6988 1674 13237 6378 5758 1101 EVENTS 91855 68601 273 22981 CAMP EXPENSES 84466 84466 DUES AND SUBSCRIPTIONS 44035 10157 11169 22709 BANK FEES 40763 6306 15620 18837 89243 57039 20443 11761 1940371 1004705 468223 467443 649093 384827 2897 6763 25225 25970 17929 60769 105493 77911 13783 27582 2149956 2327309 33270 8537 2892153 2841757 47128 58827 192485 42500 29201 4199 268814 105526 X 2014109 1625869 609230 1110362 2623339 2736231 2892153 2841757 -218599 331491 0 X 0 1 X 1 0 X 1906948 1548029 1213658 1924528 1697193 8290356 1906948 1548029 1213658 1924528 1697193 8290356 278614 8011742 58466 57857 48046 54144 60433 278946 8569302 797586 0.93490 0.96410 X 0.91060 0.03020 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1075637 1075637 1075637 1075637 1075637 126183 126183 1075637 1075637 120208 120208 1075637 1067252 159471 151086 1075637 0.92970 0.07030 0 0 105493 77911 27582 27582 OPERATING LEASE LIABILITY 4199 4199 2019978 331491 331491 1688487 33285 33285 1721772 1907086 945 945 1906141 34230 34230 1940371 PART XI, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES 34,230. COST OF GOODS SOLD -945. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD 945. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES 34,230. FALL NY EVENT 406971 318444 88527 142429 SPRING NY EVENT 414785 329785 85000 118558 8 197289 15255 182034 75242 1019045 663484 355561 336229 336229 19332 1 UNIVERSITY OF WISCONSIN-MILWAUKEE PO BOX 413 MILWAUKEE WI 53211 391805963 501(C)(3) 127499 0 WILLIAMS SYNDROME RESEARCH 1 PART I, LINE 2: GRANT RECIPIENTS ARE REQUIRED TO PROVIDE WRITTEN DOCUMENTATION THAT FUNDS WERE USED FOR THE DESIGNATED PURPOSE. X X X 0 0 0 0 0 0 0 0 0 MARY VAN HANEGHAN EXECUTIVE DIRECTOR 171903 0 0 0 0 0 5157 0 18908 0 195968 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS REVIEWED BY THE EXECUTIVE DIRECTOR AND PROVIDED TO THE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION FOR THE EXECUTIVE DIRECTOR IS DETERMINED BY THE BOARD OF DIRECTORS, BASED ON BENCHMARKS FOR SIMILAR ORGANIZATIONS AND THE ORGANIZATION'S BUDGET. FORM 990, PART VI, SECTION C, LINE 19 ALL REQUIRED DOCUMENTS ARE AVAILABLE UPON REQUEST.