Nonprofit · EIN 16-0836536
MARY M GOOLEY HEMOPHILIA CENTER INC
Tax-exempt · ROCHESTER, NY 14621
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $28,668,468 | $21,549,268 | $7,119,200 | $35,957,224 | $3,273,273 | $32,683,951 |
| December 31, 2023 | 990 | $25,362,099 | $19,865,599 | $5,496,500 | $28,705,288 | $3,347,755 | $25,357,533 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $132,920
- Program service revenue
- $27,016,530
- Investment income
- $1,517,643
- Net gain from sales of assets
- $762,821
- Net income from fundraising events
- $1,375
- Other revenue
- $1,375
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $657,425
- Other salaries and wages
- $518,924
- Salaries, compensation and benefits (total)
- $1,430,948
- Professional fundraising fees
- $0
- Legal fees
- $4,384
- Accounting fees
- $20,400
- Occupancy
- $145,228
- Depreciation
- $58,415
- Program services (functional)
- $20,889,404
- Management and general (functional)
- $572,481
- Fundraising (functional)
- $87,383
Balance sheet and other
- Total assets, start of year
- $28,705,288
- Total assets, end of year
- $35,957,224
- Total liabilities, end of year
- $3,273,273
- Net assets, end of year
- $32,683,951
- Land, buildings and equipment
- $257,758
- Publicly traded securities
- $28,061,501
- Net assets without donor restrictions
- $32,575,447
- Net assets with donor restrictions
- $108,504
- Gross receipts
- $33,891,293
- Employees
- 10
- Volunteers
- 14
- Year formed
- 1959
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| THOMAS WILMARTH | PRESIDENT & CEO Officer | 40 | $213,886 | $14,530 |
| GREGORY LIGHTHOUSE CPA | CFO Officer | 40 | $174,803 | $21,065 |
| ERIC IGLEWSKI LMSW | VP OF CLINICAL SERVICES Highest-paid employee | 40 | $146,970 | $24,556 |
| TARA VEITH MSN FNP-C | NURSE PRACTITIONER Highest-paid employee | 40 | $132,691 | $1,613 |
| SAMANTHA VITAGLIANO DMD | FORMER CHAIRPERSON Trustee or director | 1 | $1,000 | $0 |
| NICHOLAS FARRIS MD | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| ROBIN REID MD | NON-VOTING BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| RONALD SHAM MD | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAN GURELL | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| CHRISTINE HAY MD | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| ANDREW PARK | CHAIRPERSON Trustee or director, Officer | 1 | $0 | $0 |
| LARRY DENK MD | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| PETER KOUIDES MD | NON-VOTING BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| TIMOTHY ABBAMONTE DDS | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 13 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| THOMAS WILMARTH | PRESIDENT & CEO Officer | 40 | $206,914 | $34,791 |
| GREGORY LIGHTHOUSE CPA | CFO Officer | 40 | $151,965 | $20,277 |
| ERIC IGLEWSKI LMSW | VP OF CLINICAL SERVICES Highest-paid employee | 40 | $133,994 | $21,619 |
| TARA VEITH MSN FNP-C | NURSE PRACTITIONER Highest-paid employee | 40 | $104,780 | $5,636 |
| SAMANTHA VITAGLIANO DMD | CHAIRPERSON Trustee or director, Officer | 1 | $1,000 | $0 |
| AKUA ASANTE MD | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| KHARI SABB | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| RONALD SHAM MD | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAN GURELL | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| CHRISTINE HAY MD | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| ANDREW PARK | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| LARRY DENK MD | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| PETER KOUIDES MD | NON-VOTING BOARD MEMBER Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1415 PORTLAND AVE STE 500, ROCHESTER, NY 14621-3043
- Principal officer (990 for 2024)
- THOMAS WILMARTH, 1415 PORTLAND AVE 500, ROCHESTER, NY 14621
- Signed the 990
- THOMAS WILMARTH, PRESIDENT & CEO
- Phone
- (585) 922-5700
- Website
- WWW.HEMOCENTER.ORG
- Return prepared by
- BONADIO & CO LLP
Mission
TO PROVIDE EDUCATION, TREATMENT, RESEARCH, ADVOCACY AND SUPPORTIVE PROGRAMS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY BLEEDING DISORDERS AND IRON OVERLOAD.
Program accomplishments
- THE CENTER HAS APPROXIMATELY 366 BLEEDING DISORDER PATIENTS ON ITS ACTIVE CASELOAD. IN 2024, 231 UNIQUE PATIENTS WITH HEMOPHILIA, VON WILLEBRAND DISEASE AND OTHER RARE CLOTTING DEFICIENCIES WERE EVALUATED AND TREATED. 66 PATIENTS WITH MODERATE AND SEVERE HEMOPHILIA ATTEND SPECIALIZED COMPREHENSIVE CARE CLINICS AT LEAST ONCE EACH YEAR, RECEIVING CONSULTATION FROM AN ONSITE HEMATOLOGIST, NURSE COORDINATOR, SOCIAL WORKER, PHYSICAL THERAPIST, ORTHOPEDIC SURGEON AND DENTIST. THE CENTER HAS AN ON-SITE SPECIALTY PHARMACY THAT PROVIDES CLOTTING FACTOR TO 52 HEMOPHILIA PATIENTS VIA OUR HOME INFUSION PROGRAM.Expenses $20,420,756 · revenue $26,981,763
- THE CENTER PROVIDES SPECIALIZED EVALUATION AND CARE FOR PATIENTS WITH HEREDITARY HEMOCHROMATOSIS AND IRON OVERLOAD. TYPICALLY, PATIENTS WITH THESE CONDITIONS RECEIVE REGULAR THERAPEUTIC PHLEBOTOMIES TO DIMINISH EXCESS IRON STORED IN THEIR BODIES, DIMINISHING RISK OF PERMANENT ORGAN DAMAGE. THE CENTER SERVES APPROXIMATELY 213 HEMOCHROMATOSIS/IOD PATIENTS.Expenses $314,047 · revenue $34,767
- THE CENTER HAS BEEN ACTIVELY INVOLVED IN RESEARCH AND CLINICAL TRIALS IN AN EFFORT TO CULTIVATE ADVANCES IN HEMOPHILIA, VON WILLEBRAND DISEASE AND HEMOCHROMATOSIS. IN 2024, THE CENTER PARTICIPATED IN 2 OPEN RESEARCH STUDIES ADDRESSING A WIDE RANGE OF CLINICAL AREAS AND OUTCOMES. IN ADDITION, THE CENTER WORKS CLOSELY WITH THE CENTER FOR DISEASE CONTROL (CDC) AND THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) REGISTRIES, COLLECTING DATA AS PART OF A NATIONAL EFFORT TO BETTER UNDERSTAND AND CARE FOR RARE BLEEDING DISORDERS.Expenses $72,743
- REVENUES AND EXPENSES FOR NATIONAL HEMOPHILIA FOUNDATION CHAPTER ACTIVITIES.Expenses $81,858
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 16-0836536
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1983
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $35,957,224
- Income (IRS master file)
- $33,891,293
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $28,668,468 | $21,549,268 | $35,957,224 | IRS |
| 990 | December 2023 | $25,362,099 | $19,865,599 | $28,705,288 | XML |
| 990 | December 2022 | $23,562,520 | $18,876,090 | $22,291,698 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 16-0836536).
Questions about MARY M GOOLEY HEMOPHILIA CENTER INC
- What is the EIN of MARY M GOOLEY HEMOPHILIA CENTER INC?
- The employer identification number (EIN) of MARY M GOOLEY HEMOPHILIA CENTER INC is 16-0836536.
- Is MARY M GOOLEY HEMOPHILIA CENTER INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1983.
- Are donations to MARY M GOOLEY HEMOPHILIA CENTER INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does MARY M GOOLEY HEMOPHILIA CENTER INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of MARY M GOOLEY HEMOPHILIA CENTER INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did MARY M GOOLEY HEMOPHILIA CENTER INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of MARY M GOOLEY HEMOPHILIA CENTER INC?
- The 990 for the year ended December 31, 2024 names THOMAS WILMARTH.
- Who are the officers and directors of MARY M GOOLEY HEMOPHILIA CENTER INC?
- The 990 for the year ended December 31, 2024 lists 14 people; 5 received compensation from the organization, the highest $213,886 (THOMAS WILMARTH, PRESIDENT & CEO).
- How much revenue does MARY M GOOLEY HEMOPHILIA CENTER INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $28,668,468, expenses of $21,549,268 and total assets of $35,957,224 at year end.
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