Nonprofit · EIN 13-6193105
CROHNS & COLITIS FOUNDATION INC
Tax-exempt · NEW YORK, NY 10017
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 (amended) | $85,182,348 | $83,504,823 | $1,677,525 | $50,647,406 | $47,415,737 | $3,231,669 |
| December 31, 2023 | 990 | $81,765,248 | $86,537,979 | -$4,772,731 | $54,000,124 | $52,035,314 | $1,964,810 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $73,888,862
- of which government grants
- $551,064
- Program service revenue
- $9,112,274
- Investment income
- $1,327,009
- Royalties
- $492,767
- Net gain from sales of assets
- $1,144,805
- Net income from fundraising events
- -$310,454
- Net income from gaming
- $310,454
- Other revenue
- $854,203
Expenses
- Grants and similar amounts paid
- $23,680,607
- Compensation of officers, directors and key employees
- $3,677,782
- Other salaries and wages
- $25,592,246
- Salaries, compensation and benefits (total)
- $39,220,848
- Professional fundraising fees
- $334,625
- Legal fees
- $37,265
- Accounting fees
- $200,380
- Occupancy
- $1,597,179
- Travel
- $760,301
- Depreciation
- $1,185,865
- Program services (functional)
- $67,988,912
- Management and general (functional)
- $9,511,891
- Fundraising (functional)
- $6,004,020
Balance sheet and other
- Total assets, start of year
- $54,000,124
- Total assets, end of year
- $50,647,406
- Total liabilities, end of year
- $47,415,737
- Net assets, end of year
- $3,231,669
- Land, buildings and equipment
- $4,826,301
- Publicly traded securities
- $967,721
- Net assets without donor restrictions
- -$6,300,153
- Net assets with donor restrictions
- $9,531,822
- Gross receipts
- $105,303,732
- Employees
- 372
- Volunteers
- 6,005
- Year formed
- 1967
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MICHAEL OSSO | PRESIDENT/CEO(NON-VOTING) Trustee or director, Officer | 35 | $604,255 | $157,943 |
| ALAN MOSS | CHIEF SCIENTIFIC OFFICER Key employee | 35 | $450,466 | $13,858 |
| ROHIT SURI | CHIEF TECHNOLOGY OFFICER Key employee | 35 | $304,578 | $78,567 |
| SHARON LUNGRIN | CHIEF OP. OFF./CHIEF FIN. Officer | 35 | $267,379 | $70,733 |
| MARISA MAYER | CHIEF LEGAL OFFICER Highest-paid employee | 35 | $259,396 | $76,835 |
| ALLISON COFFEY | CHIEF DEVELOPMENT OFFICER Key employee | 35 | $273,205 | $22,804 |
| CHRISTY DESANTIS | CHIEF MKTNG. & COMM. OFFCR. Key employee | 35 | $256,701 | $26,914 |
| ANGELA DOBES | VICE PRESIDENT, IBD PLEXUS Highest-paid employee | 35 | $259,396 | $17,475 |
| LAURA WINGATE | CHIEF EDU. SUPP. & ADVOC. OFFICER Key employee | 35 | $219,544 | $43,880 |
| LEANA PATEL | VP, PEOPLE & CULTURE Highest-paid employee | 35 | $202,086 | $26,800 |
| SARAH WEAVER | VP, CLINICAL QUALITY & INNOVATION Highest-paid employee | 35 | $206,702 | $16,415 |
| JACK MATARASSO | SVP, DIGITAL MARKETING Highest-paid employee | 35 | $202,684 | $15,941 |
| CHRIS FIDYK | EVP, BUSINESS DEVELOPMENT Key employee | 35 | $213,952 | $4,083 |
| DANIEL STONE | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| JODI YELLEN | SECRETARY (THRU 03/2024) Trustee or director, Officer | 1 | $0 | $0 |
33 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JEFFREY MITTLEMAN | SECRETARY (AS OF 03/2024) Trustee or director, Officer | 1 | $0 |
| BRENT POLK MD | CHAIRMAN (THRU 03/2024) Trustee or director, Officer | 1 | $0 |
| AMBER BACKHAUS | CHAIRMAN (AS OF 03/2024) Trustee or director, Officer | 1 | $0 |
| RHONDA BOLDING | TRUSTEE Trustee or director | 1 | $0 |
| NOEL BROWN | TRUSTEE (AS OF 03/2024) Trustee or director | 1 | $0 |
| JOHN CAPODILUNO | TRUSTEE Trustee or director | 1 | $0 |
| CHASE CARPENTER | TRUSTEE Trustee or director | 1 | $0 |
| ROCIO CASTRILLON | TRUSTEE (AS OF 03/2024) Trustee or director | 1 | $0 |
| DEBORAH CRAWFORD | TRUSTEE Trustee or director | 1 | $0 |
| TOLULOPE FALAIYE MD | TRUSTEE Trustee or director | 1 | $0 |
| BECKY FLAHERTY | TRUSTEE (AS OF 03/2024) Trustee or director | 1 | $0 |
| ALEX FUNDERBURG | TRUSTEE (THRU 03/2024) Trustee or director | 1 | $0 |
| CHERYL GUERIN | TRUSTEE Trustee or director | 1 | $0 |
| KEVIN HARLEN | TRUSTEE Trustee or director | 1 | $0 |
| PETER HIGGINS MD PHD MSC | NSAC CHAIR ELECT Trustee or director, Officer | 1 | $0 |
| KELLY ISSOKSON MSRDCNSC | TRUSTEE Trustee or director | 1 | $0 |
| SEAN KELLEY | TRUSTEE (THRU 03/2024) Trustee or director | 1 | $0 |
| SANDRA KIM MD | TRUSTEE (AS OF 03/2024) Trustee or director | 1 | $0 |
| MICHELE KISSOUS-HUNT | TRUSTEE (THRU 03/2024) Trustee or director | 1 | $0 |
| ANNETTE MARTINEZ | TRUSTEE Trustee or director | 1 | $0 |
| AUDRA MILLER | TRUSTEE Trustee or director | 1 | $0 |
| JOE MONK | TRUSTEE (THRU 03/2024) Trustee or director | 1 | $0 |
| MARK MURRAY PHD | TRUSTEE (THRU 03/2024) Trustee or director | 1 | $0 |
| ARMIN RAHMANIAN | TRUSTEE Trustee or director | 1 | $0 |
| MEGAN RIEHL PSYD | TRUSTEE (AS OF 03/2024) Trustee or director | 1 | $0 |
| JONATHAN ROSE | TRUSTEE (AS OF 07/2024) Trustee or director | 1 | $0 |
| DAVID RUBIN MD | TRUSTEE Trustee or director | 1 | $0 |
| FRANK RUSSOMANO | TRUSTEE (THRU 03/2024) Trustee or director | 1 | $0 |
| LORI SIEGEL RABINOWITZ | TRUSTEE Trustee or director | 1 | $0 |
| ANDREW STERN | TRUSTEE (AS OF 03/2024) Trustee or director | 1 | $0 |
| NICHOLAS UZL | TRUSTEE (THRU 06/2024) Trustee or director | 1 | $0 |
| TROY VOLLERTSEN | TRUSTEE Trustee or director | 1 | $0 |
| DOUGLAS WOLF MD | TRUSTEE (AS OF 03/2024) Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 46 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MICHAEL OSSO | PRESIDENT/CEO(NON-VOTING) Trustee or director, Officer | 35 | $770,337 | $87,698 |
| ROHIT SURI | CHIEF TECHNOLOGY OFFICER Key employee | 35 | $312,346 | $63,683 |
| MICHAEL ELKOW | CHIEF FIELD OFFICER Key employee | 35 | $280,491 | $51,304 |
| SHARON LUNGRIN | CHIEF OP. OFF./CHIEF FIN. OFF. Officer | 35 | $269,413 | $57,219 |
| JOHN MICHAEL MIZE | EVP, BUSINESS DEVELOPMENT Key employee | 35 | $266,918 | $55,322 |
| CAREN HELLER | CHIEF SCIENCE OFFICER Key employee | 35 | $294,246 | $18,253 |
| ALLISON COFFEY | CHIEF DEVELOPMENT OFFICER Key employee | 35 | $274,705 | $22,153 |
| JUDY HOFFSTEIN | CHIEF MKTNG. & COMM. OFFCR. Key employee | 35 | $238,360 | $44,521 |
| MARISA MAYER | CHIEF LEGAL OFFICER Highest-paid employee | 35 | $225,111 | $57,620 |
| LAURA WINGATE | EVP, EDU., SUPPORT & ADVOCACY Highest-paid employee | 35 | $226,326 | $34,702 |
| JAIME BLANDA | SENIOR VICE PRESIDENT, FINANCE Highest-paid employee | 35 | $219,590 | $26,924 |
| ANGELA DOBES | VICE PRESIDENT, IBD PLEXUS Highest-paid employee | 35 | $209,622 | $15,826 |
| ANDRES HURTADO-LORENZO | SENIOR VICE PRESIDENT, TR & IBDV Highest-paid employee | 35 | $202,615 | $16,191 |
| ALESSANDRO DINELLO | TREASURER (THRU 03/2023) Trustee or director, Officer | 1 | $0 | $0 |
| ALEX FUNDERBURG | TRUSTEE Trustee or director | 1 | $0 | $0 |
| AMBER BACKHAUS | TRUSTEE Trustee or director | 1 | $0 | $0 |
| REP ANDER CRENSHAW | TRUSTEE (THRU 03/2023) Trustee or director | 1 | $0 | $0 |
| ANNETTE MARTINEZ | TRUSTEE Trustee or director | 1 | $0 | $0 |
| ARMIN RAHMANIAN | TRUSTEE Trustee or director | 1 | $0 | $0 |
| AUDRA MILLER | TRUSTEE Trustee or director | 1 | $0 | $0 |
| BRENT POLK MD | CHAIRMAN Trustee or director, Officer | 1 | $0 | $0 |
| CHASE CARPENTER | TRUSTEE Trustee or director | 1 | $0 | $0 |
| CHERYL GUERIN | TRUSTEE (AS OF 03/2023) Trustee or director | 1 | $0 | $0 |
| DANIEL STONE | TREASURER (AS OF 03/2023) Trustee or director, Officer | 1 | $0 | $0 |
| DAVID RUBIN MD | NSAC CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| DEBORAH CRAWFORD | TRUSTEE Trustee or director | 1 | $0 | $0 |
| FRANK RUSSOMANO | TRUSTEE Trustee or director | 1 | $0 | $0 |
| JEFFREY MITTLEMAN | TRUSTEE Trustee or director | 1 | $0 | $0 |
| JODI YELLEN | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| JOE MONK | TRUSTEE Trustee or director | 1 | $0 | $0 |
| JOEL ROSH MD | TRUSTEE (THRU 03/2023) Trustee or director | 1 | $0 | $0 |
| JOHN CAPODILUNO | TRUSTEE (AS OF 03/2023) Trustee or director | 1 | $0 | $0 |
| KELLY ISSOKSON MSRDCNSC | TRUSTEE (AS OF 03/2023) Trustee or director | 1 | $0 | $0 |
| KEVIN HARLEN | TRUSTEE (AS OF 03/2023) Trustee or director | 1 | $0 | $0 |
| LORI SIEGEL RABINOWITZ | TRUSTEE Trustee or director | 1 | $0 | $0 |
| MARK MURRAY PHD | TRUSTEE Trustee or director | 1 | $0 | $0 |
| MEENA BEWTRA | TRUSTEE (THRU 03/2023) Trustee or director | 1 | $0 | $0 |
| MICHELE KISSOUS-HUNT | TRUSTEE Trustee or director | 1 | $0 | $0 |
| NICHOLAS UZL | TRUSTEE (AS OF 03/2023) Trustee or director | 1 | $0 | $0 |
| NOEL BROWN | TRUSTEE (THRU 03/2023) Trustee or director | 1 | $0 | $0 |
| PETER HIGGINS MD PHD MSC | NSAC CHAIR ELECT Trustee or director, Officer | 1 | $0 | $0 |
| RHONDA BOLDING | TRUSTEE Trustee or director | 1 | $0 | $0 |
| SEAN KELLEY | TRUSTEE Trustee or director | 1 | $0 | $0 |
| TOLULOPE FALAIYE MD | TRUSTEE Trustee or director | 1 | $0 | $0 |
| TROY VOLLERTSEN | TRUSTEE Trustee or director | 1 | $0 | $0 |
| SHELBY MODELL | CO-FOUNDER/TRUSTEE Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 733 3RD AVE STE 510, NEW YORK, NY 10017-3218
- In care of
- % RONALD GOLDSMAN VP FINANCE
- Principal officer (990 for 2024)
- MICHAEL OSSO, 733 THIRD AVENUE, NEW YORK, NY 10017
- Signed the 990
- MICHAEL OSSO, PRESIDENT & CEO
- Phone
- (800) 932-2423
- Return prepared by
- GRANT THORNTON ADVISORS LLC
Mission
FOR OVER FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. (SEE SCHED O)THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD").
Program accomplishments
- SINCE ITS INCEPTION, THE CROHN'S & COLITIS FOUNDATION HAS PROVIDED MORE THAN $500 MILLION FOR RESEARCH ON THE TREATMENT AND CURES OF IBD. THE FOUNDATION FUNDS A SET OF PRIORITY RESEARCH INITIATIVES: MULTI-INSTITUTIONAL, MULTI-DISCIPLINARY, COLLABORATIVE RESEARCH PROJECTS TARGETING AREAS OF SCIENCE WITH A HIGH PROBABILITY OF ADVANCING TREATMENT. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). (CONTINUED IN SCHEDULE O)THE FOUNDATION'S RESEARCH PORTFOLIO IS A COMBINATION OF BASIC, TRANSLATIONAL, AND CLINICAL RESEARCH. DESIGNED TO CUT YEARS OFF THE RESEARCH PROCESS, IBD PLEXUS, THE FOUNDATION'S INNOVATIVE RESEARCH PLATFORM, IS THE SINGLE LARGEST IBD DATABASE IN THE US AND THE MOST COMPREHENSIVE IBD DATABASE IN THE WORLD. IT CURRENTLY PROVIDES RESEARCHERS WITH DATA FROM OVER 30,000 PATIENTS, INCLUDING 250,000 BIOSAMPLES (BLOOD, STOOL, AND INTESTINAL TISSUE).THE FOUNDATION LEADS THE WAY IN NEW, CRITICALLY IMPORTANT AREAS OF IBD RESEARCH, AND ACCELERATING NOVEL THERAPIES AND INNOVATIVE PRODUCTS THAT ADDRESS UNMET PATIENT NEEDS. IN 2020, THE FOUNDATION LAUNCHED THE MOST EXTENSIVE IBD-FOCUSED PRECISION NUTRITION EFFORT, TO BETTER UNDERSTAND THE DIRECT IMPACT THAT FOOD MAY HAVE IN THE MANAGEMENT OF IBD AND ON PATIENT QUALITY OF LIFE. THE FOUNDATION ALSO LAUNCHED THE SURGICAL RESEARCH NETWORK, OUR FIRST-EVER COORDINATED-FUNDING EFFORT TO STUDY SURGICAL OUTCOMES IN IBD, WITH OVER 50 CENTERS PARTICIPATING.Expenses $34,993,675 · grants $23,680,607 · revenue $8,790,214
- THE CROHN'S & COLITIS FOUNDATION PROVIDES INFORMATION AND EDUCATION FOR THE MILLIONS OF INDIVIDUALS WITH IBD AND THEIR LOVED ONES THROUGH A VARIETY OF CHANNELS AT THE NATIONAL AND LOCAL LEVEL INCLUDING IN-PERSON AND WEB-BASED EDUCATION, SUPPORT PROGRAMS INCLUDING PEDIATRIC AND ADULT FOCUS INITIATIVES, IBD HELP CENTER ANSWERING QUESTIONS AND PROVDING SUPPORT FOR THOSE WITH IBD, AND NUMEROUS PRINTED MATERIALS PROVIDINGACCURATE AND UP-TO-DATE INFORMATION. IN A RECENT IMPACT STUDY, OVER 85% OF PATIENTS CONNECTED WITH THE FOUNDATION STATED THAT THE FOUNDATION HAS HAD A POSITIVE IMPACT ON THEIR IBD JOURNEY. THESE PATIENTS ALSO REPORTED BETTER SYMPTOM CONTROL THAN NON-FOUNDATION CONNECTED PATIENTS. (CONTINUED IN SCHEDULE O)THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION THROUGH OUR TWO SCIENTIFIC JOURNALS, INFLAMMATORY BOWEL DISEASES AND CROHN'S & COLITIS 360, AS WELL AS THROUGH HEALTH PROFESSIONAL EDUCATION PROGRAMS BOTH IN-PERSON AND WEB-BASED. IN ADDITION THE FOUNDATION HOSTS THE ANNUAL CROHN'S & COLITIS CONGRESS CONFERENCE. IN THE PAST YEAR, THE FOUNDATION LAUNCHED A PUBLIC SERVICE AWARENESS CAMPAIGN TO INCREASE FAMILIARITY OF IBD WITH THE GENERAL PUBLIC AND REDUCE THE STIGMA FOR THOSE INDIVIDUALS WITH IBD.Expenses $32,995,237 · revenue $322,060
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Check at the IRS |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 13-6193105
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1966
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G70Z)
- Assets (IRS master file)
- $47,669,031
- Income (IRS master file)
- $99,410,323
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $85,182,348 | $83,504,823 | $50,647,406 | XML |
| 990 | December 2023 | $81,765,248 | $86,537,979 | $54,000,124 | XML |
| 990 | December 2022 | $81,491,223 | $82,569,900 | $57,441,645 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-6193105).
Questions about CROHNS & COLITIS FOUNDATION INC
- What is the EIN of CROHNS & COLITIS FOUNDATION INC?
- The employer identification number (EIN) of CROHNS & COLITIS FOUNDATION INC is 13-6193105.
- Is CROHNS & COLITIS FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1966.
- Are donations to CROHNS & COLITIS FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does CROHNS & COLITIS FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of CROHNS & COLITIS FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did CROHNS & COLITIS FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of CROHNS & COLITIS FOUNDATION INC?
- The 990 for the year ended December 31, 2024 names MICHAEL OSSO.
- Who are the officers and directors of CROHNS & COLITIS FOUNDATION INC?
- The 990 for the year ended December 31, 2024 lists 48 people; 13 received compensation from the organization, the highest $604,255 (MICHAEL OSSO, PRESIDENT/CEO(NON-VOTING)).
- How much revenue does CROHNS & COLITIS FOUNDATION INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $85,182,348, expenses of $83,504,823 and total assets of $50,647,406 at year end.
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