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Nonprofit · EIN 94-3130081

EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION

Also known as E B MEDICAL RESEARCH FOUNDATION

Tax-exempt · LOS ANGELES, CA 90064

Financials

$1.4M$346K2022$889K$401K2023$780K$728K2024
Revenue Expenses · by fiscal year end
Financials of EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
August 31, 2025990$779,723$728,259$51,464$4,111,020$0$4,111,020
August 31, 2024990$888,776$400,692$488,084$4,182,723$0$4,182,723
August 31, 2023990$1,354,120$345,807$1,008,313$3,859,639$0$3,859,639
Financial details: 990 for the year ended August 31, 2025

Revenue

Contributions, gifts and grants
$725,708
Program service revenue
$0
Investment income
$157,162
Net income from fundraising events
-$103,147
Other revenue
-$103,147

Expenses

Grants and similar amounts paid
$697,474
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Accounting fees
$13,491
Program services (functional)
$697,474
Management and general (functional)
$24,674
Fundraising (functional)
$6,111

Balance sheet and other

Total assets, start of year
$4,182,723
Total assets, end of year
$4,111,020
Total liabilities, end of year
$0
Net assets, end of year
$4,111,020
Publicly traded securities
$136,288
Net assets without donor restrictions
$4,111,020
Gross receipts
$882,870
Employees
0
Volunteers
0
Year formed
1990
State of legal domicile
CA

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended August 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
LYNN ANDERSONFOUNDER, PRESIDENT EMERITUS
Trustee or director
1$0
ANDREA PETT-JOSEPHPRESIDENT/EXECUTIVE DIRECTOR
Trustee or director, Officer
5$0
PAUL JOSEPHCHIEF FINANCIAL OFFICER
Trustee or director, Officer
4$0
PERSIA FARDAD-FINNOPERATIONS COORDINATOR
Trustee or director
5$0
MARC GURVITZDIRECTOR
Trustee or director
3$0
990 for the year ended August 31, 2024: 5 people
NameTitleHours / weekCompensation
ANDREA PETT-JOSEPHPRESIDENT/EXECUTIVE DIRECTOR
Trustee or director, Officer
5$0
PAUL JOSEPHCHIEF FINANCIAL OFFICER
Trustee or director, Officer
4$0
MARC GURVITZDIRECTOR
Trustee or director
3$0
PERSIA FARDAD-FINNDIRECTOR
Trustee or director
4$0
LYNN ANDERSONFOUNDER, PRESIDENT EMERITUS
Trustee or director
1$0
990 for the year ended August 31, 2023: 5 people
NameTitleHours / weekCompensation
ANDREA PETT-JOSEPHPRESIDENT/EXECUTIVE DIRECTOR
Trustee or director, Officer
5$0
PAUL JOSEPHCHIEF FINANCIAL OFFICER
Trustee or director, Officer
4$0
MARC GURVITZDIRECTOR
Trustee or director
3$0
PERSIA FARDAD-FINNDIRECTOR
Trustee or director
4$0
LYNN ANDERSONFOUNDER, PRESIDENT EMERITUS
Trustee or director
1$0

Address and contacts

Address (IRS master file)
2757 ANCHOR AVE, LOS ANGELES, CA 90064-4603
In care of
% PAUL JOSEPH
Principal officer (990 for 2024)
PAUL JOSEPH, 2757 ANCHOR AVENUE, LOS ANGELES, CA 90064
Signed the 990
PAUL JOSEPH, CFO
Phone
(310) 994-9237
Return prepared by
CITRIN COOPERMAN ADVISORS LLC

California records

California keeps its own records of charities and corporations. Search them by EIN 94-3130081 or by the name EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION.

Attorney General, Registry of Charities and Fundraisers
Registration status and filed reports (CT-TR-1, RRF-1)

Mission

THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION FUNDS VARIOUS RESEARCH ORGANIZATIONS ACROSS THE UNITED STATES & INTERNATIONALLY FOR CHILDREN'S HEALTH.

990 for the year ended August 31, 2025

Program accomplishments

  • THE EBMRF IS DEDICATED TO FINDING A CURE FOR EPIDERMOLYSIS BULLOSA BY FUNDING THE BEST CUTTING EDGE AND INNOVATIVE RESEARCH AND SEEKING OUT NEW RESEARCHERS AND SCIENTISTS AT AMERICA AND EUROPE'S TOP INSTITUTIONS. THROUGH OUR ONGOING FUNDING OF RESEARCH STUDIES AND CLINICAL TRIALS AT ACCLAIMED UNIVERSITIES, 16 EB CLINICAL RESEARCH CONSORTIUM (EBCRC) SITES AND THROUGH OUR ANNUAL FUNDRAISERS, WE ARE COMMITTED TO FUNDING A CURE AND SUCESSFUL TREATMENTS FOR EB. GRANTS ARE EVALUATED AND ONCE APPROVED, ARE FUNDED ON A 1 YEAR BASIS, AND ARE SUBJECT TO PROJECT MILESTONES. MULTI-YEAR GRANTS ARE REVIEWED ANNUALLY AND EVALUATED ON THEIR PROGRESS AND OUR AVAILABLE FUNDING. ALL GRANTS INCLUDE A 5% LIMIT ON INDIRECT COSTS.
    Expenses $697,474 · grants $697,474

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in August, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025August 31, 2026January 15, 2027Not due yet
2024August 31, 2025January 15, 2026990 on file
2023August 31, 2024January 15, 2025990 on file

IRS record

EIN
94-3130081
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
1996
Accounting year ends
August
Files
Form 990 or 990-EZ
Assets (IRS master file)
$4,111,020
Income (IRS master file)
$882,870

Filing history

FormYear endedRevenueExpensesAssetsReturn
990August 2025$779,723$728,259$4,111,020XML
990August 2024$888,776$400,692$4,182,723XML
990August 2023$1,354,120$345,807$3,859,639XML
990August 2022$389,920$225,491$3,800,076IRS
990August 2021–––IRS
990-TAugust 2021–––IRS
990August 2020–––IRS
990August 2019–––IRS
990August 2018–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 94-3130081).

Questions about EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION

What is the EIN of EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION?
The employer identification number (EIN) of EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION is 94-3130081.
Is EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1996.
Are donations to EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION due?
The return for tax year 2025 (the year ending August 31, 2026) is due January 15, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended August 2025.
Who is the principal officer of EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION?
The 990 for the year ended August 31, 2025 names PAUL JOSEPH.
Who are the officers and directors of EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION?
The 990 for the year ended August 31, 2025 lists 5 people; 0 received compensation from the organization.
How much revenue does EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION have?
On its 990 for the year ended August 31, 2025 it reported revenue of $779,723, expenses of $728,259 and total assets of $4,111,020 at year end.

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