Nonprofit · EIN 91-1780467
SIEGEL RARE NEUROIMMUNE ASSOCIATION
Tax-exempt · POWELL, OH 43065
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $1,493,618 | $1,614,877 | -$121,259 | $1,638,076 | $164,084 | $1,473,992 |
| December 31, 2023 | 990 | $1,270,268 | $1,225,221 | $45,047 | $1,723,037 | $127,786 | $1,595,251 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,399,452
- Program service revenue
- $0
- Investment income
- $92,764
- Other revenue
- $1,402
Expenses
- Grants and similar amounts paid
- $177,374
- Compensation of officers, directors and key employees
- $247,860
- Other salaries and wages
- $363,851
- Salaries, compensation and benefits (total)
- $735,069
- Professional fundraising fees
- $0
- Accounting fees
- $12,250
- Travel
- $20,736
- Depreciation
- $5,346
- Program services (functional)
- $1,386,316
- Management and general (functional)
- $103,048
- Fundraising (functional)
- $125,513
Balance sheet and other
- Total assets, start of year
- $1,723,037
- Total assets, end of year
- $1,638,076
- Total liabilities, end of year
- $164,084
- Net assets, end of year
- $1,473,992
- Land, buildings and equipment
- $9,825
- Net assets without donor restrictions
- $1,058,304
- Net assets with donor restrictions
- $415,688
- Gross receipts
- $1,493,618
- Employees
- 8
- Volunteers
- 100
- Year formed
- 1996
- State of legal domicile
- WA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Chitra Krishnan | Executive Director Trustee or director, Officer, Key employee, Highest-paid employee | 40 | $136,560 | $6,828 |
| Gabrielle deFiebre | Director of Research and Programs Key employee | 40 | $111,300 | $5,565 |
| Lana Harder | Director Trustee or director | 5 | $0 | $0 |
| Sanford J Siegel | President Trustee or director, Officer | 20 | $0 | $0 |
| Deborah Capen | Secretary Trustee or director, Officer | 20 | $0 | $0 |
| Linda Malecky | Treasurer, Vice President Trustee or director, Officer | 20 | $0 | $0 |
| Bruce L Downey | Director Trustee or director | 3 | $0 | $0 |
| Benjamin M Greenberg MD | Director Trustee or director | 5 | $0 | $0 |
| Douglas A Kerr MD PHD | Director Trustee or director | 5 | $0 | $0 |
| Carlos A Pardo-Villamizar MD | Director Trustee or director | 5 | $0 | $0 |
| Barbara Sattler | Director Trustee or director | 5 | $0 | $0 |
| Jason Robbins | Director Trustee or director | 8 | $0 | $0 |
| Peter C Johnson | Director Trustee or director | 3 | $0 | $0 |
| Dennis Wolfe | Director Trustee or director | 3 | $0 | $0 |
| James T Lubin | Executive Committee Member Trustee or director, Officer | 20 | $0 | $0 |
2 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Dave Evans | Director Trustee or director | 3 | $0 |
| Michael Levy | Director Trustee or director | 5 | $0 |
990 for the year ended December 31, 2023: 17 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Gabrielle deFiebre | Director of Research and Programs Key employee, Highest-paid employee | 40 | $103,907 | $5,195 |
| Chitra Krishnan | Executive Director Trustee or director, Key employee, Highest-paid employee | 30 | $97,250 | $4,863 |
| Lana Harder | Director Trustee or director | 5 | $0 | $0 |
| Sanford J Siegel | President Trustee or director, Officer | 20 | $0 | $0 |
| Deborah Capen | Secretary Trustee or director, Officer | 20 | $0 | $0 |
| Linda Malecky | Treasurer, Vice President Trustee or director, Officer | 20 | $0 | $0 |
| Bruce L Downey | Director Trustee or director | 3 | $0 | $0 |
| Benjamin M Greenberg MD | Director Trustee or director | 5 | $0 | $0 |
| Douglas A Kerr MD PHD | Director Trustee or director | 5 | $0 | $0 |
| Carlos A Pardo-Villamizar MD | Director Trustee or director | 5 | $0 | $0 |
| Barbara Sattler | Director Trustee or director | 5 | $0 | $0 |
| Jason Robbins | Director Trustee or director | 5 | $0 | $0 |
| Peter C Johnson | Director Trustee or director | 3 | $0 | $0 |
| Dennis Wolfe | Director Trustee or director | 3 | $0 | $0 |
| James T Lubin | Executive Committee Member Trustee or director, Officer | 20 | $0 | $0 |
| Dave Evans | Director Trustee or director | 3 | $0 | $0 |
| Michael Levy | Director Trustee or director | 5 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1787 SUTTER PKWY, POWELL, OH 43065-8806
- Principal officer (990 for 2024)
- Sanford Siegel, 1787 Sutter Parkway, Powell, OH 43065
- Signed the 990
- Linda Malecky, Treasurer
- Phone
- (855) 380-3330
- Website
- www.wearesrna.org
Mission
TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEUROIMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISORDERS AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEUROIMMUNE DISORDERS.
Program accomplishments
- The SRNA maintains an extensive website with educational materials that include specific symptom and condition information for rare neuroimmunologic diseases; podcasts with physicians, blogs written by medical professionals as well as SRNA members; and archives of all past magazines. The website also facilitates support between patients and their families through support groups, peer connect programs and social media contacts. In addition, the SRNA holds an annual symposium to bring together individuals diagnosed with rare neuroimmune disorders and the clinicians and researchers that focus on these disorders. This event is the only one of its kind.The SRNA publishes an annual report that is distributed to its membership and details accomplishments and financial information. Regular updates that relate information about new treatments and research are also included. SRNA introduced the Online Learning Program, an initiative that offers online micro-courses specifically tailored for individuals with ADEM, AFM, MOGAD, NMOSD, ON, and TM, reflecting our ongoing commitment to providing essential knowledge and support to those impacted by these conditions. Our goal is to continue providing this valuable resource to our community for many years to come.Expenses $1,029,859
- The SRNA partners with Morgans Wonderland Camp to hold an annual summer camp for children (ages 5 - 17) and their families who have been impacted by rare neuroimmunologic disorders. The entire week of camp is offered to these children and their families free of charge and allows these children to experience the joys of camp and connect with others who experience the same symptoms and conditions.Expenses $132,570 · revenue $84,349
- The SRNA provides research grants to medical and other institutions for work on understanding of treatments for these neuroimmunologic disorders. The SRNA's James T. Lubin Fellowship program supports the post-residency training of a clinician at an academic medical facility, who is committed to a career in academic medicine with a specialization in rare neuroimmunologic diseases and research. The SRNA maintains a Registry to understand people's experiences with rare neuroimmune disorders. The SRNA is also supporting the first study to investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells in Transverse Myelitis and the Progress Grant for NMOSD.Expenses $223,887 · grants $177,374 · revenue $267,237
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 91-1780467
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1997
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G99)
- Assets (IRS master file)
- $1,638,076
- Income (IRS master file)
- $1,493,618
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $1,493,618 | $1,614,877 | $1,638,076 | IRS |
| 990 | December 2023 | $1,270,268 | $1,225,221 | $1,723,037 | XML |
| 990 | December 2022 | $1,218,351 | $1,096,315 | $1,636,191 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 91-1780467).
Questions about SIEGEL RARE NEUROIMMUNE ASSOCIATION
- What is the EIN of SIEGEL RARE NEUROIMMUNE ASSOCIATION?
- The employer identification number (EIN) of SIEGEL RARE NEUROIMMUNE ASSOCIATION is 91-1780467.
- Is SIEGEL RARE NEUROIMMUNE ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1997.
- Are donations to SIEGEL RARE NEUROIMMUNE ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SIEGEL RARE NEUROIMMUNE ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SIEGEL RARE NEUROIMMUNE ASSOCIATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SIEGEL RARE NEUROIMMUNE ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of SIEGEL RARE NEUROIMMUNE ASSOCIATION?
- The 990 for the year ended December 31, 2024 names Sanford Siegel.
- Who are the officers and directors of SIEGEL RARE NEUROIMMUNE ASSOCIATION?
- The 990 for the year ended December 31, 2024 lists 17 people; 2 received compensation from the organization, the highest $136,560 (Chitra Krishnan, Executive Director).
- How much revenue does SIEGEL RARE NEUROIMMUNE ASSOCIATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,493,618, expenses of $1,614,877 and total assets of $1,638,076 at year end.
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