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Nonprofit · EIN 90-0616879

COALITION TO CURE CALPAIN 3

Tax-exempt · WESTPORT, CT 06880

Financials

$712K$770K2023$646K$456K2024$810K$641K2025
Revenue Expenses · by fiscal year end
Financials of COALITION TO CURE CALPAIN 3 by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$809,897$640,568$169,329$202,514$11,242$191,272
December 31, 2024990$645,979$455,737$190,242$216,629$194,686$21,943
December 31, 2023990$711,922$770,459-$58,537$252,048$420,347-$168,299
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$809,897
Program service revenue
$0
Investment income
$0
Other revenue
$0

Expenses

Grants and similar amounts paid
$344,955
Compensation of officers, directors and key employees
$155,900
Salaries, compensation and benefits (total)
$174,624
Professional fundraising fees
$0
Legal fees
$4,990
Accounting fees
$18,370
Travel
$9,330
Depreciation
$360
Program services (functional)
$607,021
Management and general (functional)
$32,660
Fundraising (functional)
$887

Balance sheet and other

Total assets, start of year
$216,629
Total assets, end of year
$202,514
Total liabilities, end of year
$11,242
Net assets, end of year
$191,272
Land, buildings and equipment
$541
Net assets without donor restrictions
$191,272
Gross receipts
$809,897
Employees
1
Volunteers
0
Year formed
2011
State of legal domicile
CT

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensationOther / benefits
JENNIFER LEVY KEISERDIRECTOR OF GRANTS
Key employee
40$155,900$6,750
JORDAN BOSLEGOPRESIDENT & TREASURER
Trustee or director, Officer
6$0$0
MICHELE WRUBELSECRETARY
Trustee or director, Officer
25$0$0
DEMOSTHENES MADUREIRA DE PINHODIRECTOR
Trustee or director, Officer
1$0$0
ALBERTO NOBREGADIRECTOR
Trustee or director, Officer
3$0$0
CAROL ABRAHAMDIRECTOR
Trustee or director, Officer
10$0$0
990 for the year ended December 31, 2024: 6 people
NameTitleHours / weekCompensation
JORDAN BOSLEGOPRESIDENT
Trustee or director, Officer
6$0
MICHELE WRUBELSENIOR VICE PRESIDENT
Trustee or director, Officer
25$0
LEE WRUBELTREASURER
Trustee or director, Officer
5$0
DEMOSTHENES MADUREIRA DE PINHODIRECTOR
Trustee or director, Officer
1$0
ALBERTO NOBREGADIRECTOR
Trustee or director, Officer
3$0
CAROL ABRAHAMDIRECTOR
Trustee or director, Officer
10$0
990 for the year ended December 31, 2023: 6 people
NameTitleHours / weekCompensation
JORDAN BOSLEGOPRESIDENT
Trustee or director, Officer
6$0
MICHELE WRUBELSENIOR V. PRESIDENT
Trustee or director, Officer
25$0
LEE WRUBELTREASURER
Trustee or director, Officer
5$0
DEMOSTHENES MADUREIRA DE PINHO NETODIRECTOR
Trustee or director, Officer
1$0
ALBERTO NOBREGADIRECTOR
Trustee or director, Officer
3$0
CAROL ABRAHAMDIRECTOR
Trustee or director, Officer
10$0

Address and contacts

Address (IRS master file)
15 COMPO PKWY, WESTPORT, CT 06880-6507
In care of
% KRISTINE KURNIT
Mailing address (990-N for 2010)
2245 Chaucer Drive, Ann Arbor MI 48103
Principal officer (990 for 2025)
MICHELE WRUBEL, 15 COMPO PARKWAY, WESTPORT, CT 06880
Principal officer (990-N for 2010)
Kristine Kurnit, 2245 Chaucer Drive, Ann Arbor MI 48103
Signed the 990
MICHELE WRUBEL, CO-FOUNDER
Phone
(203) 829-9656
Return prepared by
James Oliveri CPA PC

Mission

TO FUND RESEARCH TO CURE OR TREAT LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2A (LGMD2A/R1), A FORM OF CALPAINOPATHY, AND TO RAISE AWARENESS OF THE DISEASE AMONG THE SCIENTIFIC COMMUNITY, PATIENTS, AND THE PUBLIC

990 for the year ended December 31, 2025

Program accomplishments

  • TO PROVIDE RESEARCH GRANTS TO INDIVIDUALS AND UNIVERSITIES FOR THE STUDY OF TREATMENT OR CURES FOR MUSCULAR DYSTROPHY LGMD2A/R1 (CALPAINOPATHY).VIRGINIA COMMONWEALTH UNIVERSITY - RESEARCH COMPARATIVE PROTEOMICS OF LGMD2A AND BMD TO DEVELOP SERUM PROTEIN BIOMARKERS - $110,338UNIVERSITY OF NEWCASTLE - UNDERSTANDING THE VARIABLE EXPRESSION OF DOMINANT CALPAINOPATHIES - $49,617QUEENS UNIVERSITY - SOLVING THE STRUCTURE OF CAPN3 AND ASSESSING THE IMPACT OF LGMDR1 MUTATIONS - $85,000AIX MARSEILLE - OPTIMIZING THE FUNCTIONAL ASSAY TO IDENTIFY NOVEL CAPN3VARIANTS RESPONSIBLE FOR THE DOMINANT FORM OF CALPAINOPATHY (LGMDD4) -$100,000
    Expenses $607,021 · grants $344,955
  • PARTICIPATE IN OUTREACH ACTIVITIES TO SPREAD AWARENESS OF COALITION TO CURE CALPAIN 3 AND LGMD2A/R1 (CALPAINOPATHY)

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
90-0616879
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2011
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$202,514
Income (IRS master file)
$809,897

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$809,897$640,568$202,514XML
990December 2024$645,979$455,737$216,629XML
990December 2023$711,922$770,459$252,048XML
990December 2022$410,173$624,980$151,536IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2019–––IRS
990December 2018–––IRS
990-N for 2010
Officer: Kristine Kurnit
December 31, 2010≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 90-0616879).

Questions about COALITION TO CURE CALPAIN 3

What is the EIN of COALITION TO CURE CALPAIN 3?
The employer identification number (EIN) of COALITION TO CURE CALPAIN 3 is 90-0616879.
Is COALITION TO CURE CALPAIN 3 tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2011.
Are donations to COALITION TO CURE CALPAIN 3 tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does COALITION TO CURE CALPAIN 3 file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of COALITION TO CURE CALPAIN 3 due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did COALITION TO CURE CALPAIN 3 last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of COALITION TO CURE CALPAIN 3?
The 990 for the year ended December 31, 2025 names MICHELE WRUBEL.
Who are the officers and directors of COALITION TO CURE CALPAIN 3?
The 990 for the year ended December 31, 2025 lists 6 people; 1 received compensation from the organization, the highest $155,900 (JENNIFER LEVY KEISER, DIRECTOR OF GRANTS).
How much revenue does COALITION TO CURE CALPAIN 3 have?
On its 990 for the year ended December 31, 2025 it reported revenue of $809,897, expenses of $640,568 and total assets of $202,514 at year end.

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