Nonprofit · EIN 90-0108854
BEYOND CELIAC
Tax-exempt · AMBLER, PA 19002
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| October 31, 2025 | 990 | $3,102,549 | $2,741,752 | $360,797 | $6,096,770 | $549,485 | $5,547,285 |
| October 31, 2024 | 990 | $3,296,947 | $2,985,918 | $311,029 | $5,399,178 | $589,552 | $4,809,626 |
Financial details: 990 for the year ended October 31, 2025
Revenue
- Contributions, gifts and grants
- $2,021,099
- Program service revenue
- $423,855
- Investment income
- $115,754
- Net income from fundraising events
- $541,841
- Other revenue
- $541,841
Expenses
- Grants and similar amounts paid
- $137,047
- Compensation of officers, directors and key employees
- $575,334
- Other salaries and wages
- $1,300,761
- Salaries, compensation and benefits (total)
- $2,082,505
- Professional fundraising fees
- $0
- Accounting fees
- $17,999
- Occupancy
- $1,400
- Travel
- $55,675
- Depreciation
- $1,405
- Program services (functional)
- $1,591,169
- Management and general (functional)
- $605,174
- Fundraising (functional)
- $545,409
Balance sheet and other
- Total assets, start of year
- $5,399,178
- Total assets, end of year
- $6,096,770
- Total liabilities, end of year
- $549,485
- Net assets, end of year
- $5,547,285
- Land, buildings and equipment
- $4,275
- Publicly traded securities
- $3,094,529
- Net assets without donor restrictions
- $2,043,179
- Net assets with donor restrictions
- $3,504,106
- Gross receipts
- $3,167,731
- Employees
- 20
- Volunteers
- 462
- Year formed
- 2003
- State of legal domicile
- PA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended October 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ALICE BAST | EXECUTIVE DIRECTOR Trustee or director, Officer | 40 | $344,615 | $5,718 |
| MARY KATE CAROFANO | CHIEF OPERATING OFFICER Key employee | 40 | $225,000 | $0 |
| DEBRA SILBERG | CHIEF SCIENTIFIC OFFICER Highest-paid employee | 20 | $130,343 | $0 |
| ANGELA CRIST | DIRECTOR OF COMMUNICATIONS Highest-paid employee | 40 | $109,004 | $0 |
| ERIC WHITE | DIRECTOR OF BUSINESS DEVELOPMENT Highest-paid employee | 30 | $105,692 | $0 |
| MARY TACKETT | SENIOR DIRECTOR OF PHILANTHROPY Highest-paid employee | 32 | $103,262 | $0 |
| GEORGE GORGE | SENIOR DIRECTOR OF FINANCE Highest-paid employee | 35 | $102,342 | $0 |
| TODD HAMMER | VICE CHAIR Trustee or director, Officer | 3 | $0 | $0 |
| R BENNETT MUSKIN | SECRETARY Trustee or director, Officer | 3 | $0 | $0 |
| LAWRENCE P FLYNN CPA | TREASURER Trustee or director, Officer | 4 | $0 | $0 |
| ALAN M EHRLICH MD | CHAIR Trustee or director, Officer | 4 | $0 | $0 |
| LISA R AGDERN | DIRECTOR Trustee or director | 4 | $0 | $0 |
| JAMES ANDREWS | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ZACK BOGER | DIRECTOR Trustee or director | 3 | $0 | $0 |
| C KANE BRENAN | DIRECTOR Trustee or director | 2 | $0 | $0 |
12 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ARTURO CHACON CRUZ | DIRECTOR Trustee or director | 2 | $0 |
| VALERIE COHN | DIRECTOR Trustee or director | 2 | $0 |
| SHARON GAFFNEY | DIRECTOR Trustee or director | 1 | $0 |
| CAROLE HAAS GRAVAGNO | DIRECTOR Trustee or director | 1 | $0 |
| DOUG JACOBSTEIN | DIRECTOR Trustee or director | 1 | $0 |
| JAIME LIPSON | DIRECTOR Trustee or director | 2 | $0 |
| ALISON REEMER SOLOMON | DIRECTOR Trustee or director | 1 | $0 |
| BRITTANY BAKER | DIRECTOR Trustee or director | 1 | $0 |
| JENNIFER BROWNSTEIN | DIRECTOR Trustee or director | 2 | $0 |
| BARB WEIR POWERS | DIRECTOR Trustee or director | 2 | $0 |
| SARENA SNIDER | DIRECTOR Trustee or director | 2 | $0 |
| JENNIFER PLATZKERE SNYDER ESQ | DIRECTOR Trustee or director | 2 | $0 |
990 for the year ended October 31, 2024: 19 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ALICE BAST | CEO Trustee or director, Officer | 40 | $298,795 | $6,556 |
| MARY KATE CAROFANO | COO Key employee | 40 | $175,239 | $5,226 |
| TODD HAMMER | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| R BENNETT MUSKIN | SECRETARY Trustee or director, Officer | 3 | $0 | $0 |
| LAWRENCE P FLYNN CPA | TREASURER Trustee or director, Officer | 4 | $0 | $0 |
| ALAN M EHRLICH MD | CHAIR Trustee or director, Officer | 4 | $0 | $0 |
| C KANE BRENAN | DIRECTOR Trustee or director | 3 | $0 | $0 |
| CAROLE HAAS GRAVAGNO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ALISON SOLOMON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BRITTANY BAKER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JENNIFER BROWNSTEIN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| ARTURO CHACON CRUZ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SARENA SNIDER | DIRECTOR Trustee or director | 2 | $0 | $0 |
| LISA R AGDERN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| VALERIE COHN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SHARON GAFFNEY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BARBARA WEIR POWERS | DIRECTOR Trustee or director | 3 | $0 | $0 |
| JAMES ANDREWS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| JENNIFER PLATZKERE SNYDER ESQ | DIRECTOR Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 544, AMBLER, PA 19002-0544
- Principal officer (990 for 2024)
- MARY KATE CAROFANO
- Signed the 990
- MARY KATE CAROFANO, CEO
- Phone
- (215) 325-1306
- Website
- WWW.BEYONDCELIAC.ORG
- Return prepared by
- O'CONNELL & COMPANY LLC
Mission
BEYOND CELIAC UNITES WITH PATIENTS AND PARTNERS TO DRIVE DIAGNOSIS, ADVANCE RESEARCH, AND ACCELERATE THE DISCOVERY OF NEW TREATMENTS AND A CURE.
Program accomplishments
- WE SUPPORT STUDIES, BASED ON OUR COMMUNITY'S NEEDS, THAT QUICKLY TRANSLATE FROM SCIENTIFIC DISCOVERY INTO CLINICAL USE, WITH THE GOAL OF ADVANCING EFFECTIVE TREATMENTS. AS OF FY25, BEYOND CELIAC HAS AWARDED MORE THAN $3.2 MILLION IN GRANTS, SUPPORTING BOTH EARLY-CAREER AND ESTABLISHED INVESTIGATORS. THE LATEST GRANTS FOCUS ON NON-INVASIVE BIOMARKERS, MICROBIOME RESEARCH, IMMUNE TOLERANCE RESTORATION, AND NEUROCOGNITIVE IMPACTS.SELECT AWARDS INCLUDE:1. NIGEL HOGGARD, MD, AND IAIN CROALL, PHD (UNIVERSITY OF SHEFFIELD, UK): ASSESSING TG6 ANTIBODIES FOR CLINICAL PRACTICE.2. MANDEEP SINGH, PHD (UNIVERSITY OF SYDNEY, AUS) TARGETING MUTANT T-CELLS IN NON-RESPONSIVE CELIAC DISEASE.3. MICHAEL FITZPATRICK, DPHIL (UNIVERSITY OF OXFORD, UK): NOVEL BIOMARKERS OF MUCOSAL DAMAGE FOR DIAGNOSIS AND MONITORING.4. ROK SEON CHOUNG, MD, PHD (MAYO CLINIC): PREDICTORS OF PROGRESSIVE CELIAC DISEASE PHENOTYPES.5. SONIA GONCALVES PEREIRA, PHD (INSTITUTO POLITECNICO DE LEIRIA, PORTUGAL): EXPLORING GLUTEN-MICROBIOTA INTERACTIONS IN DISEASE PROGRESS.6. KATI JUUTI-UUSITALO, PHD (TAMPERE UNIVERSITY, FINLAND): DEVELOPMENT OF A PATIENT-DERIVED 2D INTESTINAL MODEL.THESE GRANTS ADDRESS CRITICAL BARRIERS IN THE FIELD, INCLUDING A LACK OF FUNDING, UNDERDIAGNOSIS, AND LIMITED PUBLIC AND CLINICAL AWARENESS. THEY ALIGN WITH OUR FOUR STRATEGIC PRIORITIES: TRANSLATIONAL RESEARCH, EVIDENCE GENERATION, CLINICAL TRIAL ACCELERATION, AND OUR VENTURE PHILANTHROPY PROGRAM THROUGH BEYOND CELIAC INVESTMENTS (BCI).Expenses $137,087 · grants $137,047 · revenue $423,858
- THIS EVIDENCE INFORMS RESEARCH PRIORITIES, SUPPORTS FUNDING APPLICATIONS, AND ENSURES PATIENT EXPERIENCES SHAPE THE PATH TOWARD NEW TREATMENTS. WITH UP TO 80% OF CELIAC DISEASE CASES STILL UNDIAGNOSED OR MISDIAGNOSED, GO BEYOND CELIAC INSIGHTS PLAYS A VITAL ROLE IN BRIDGING THE GAP BETWEEN LIVED EXPERIENCE AND SCIENTIFIC ADVANCEMENT. THE SURVEY PLATFORM HAS ENHANCED OUTREACH AND INCREASED COMMUNITY PARTICIPATION IN RESEARCH. BEYOND CELIAC ALSO CONNECTS PATIENTS TO CLINICAL TRIALS, ACCELERATING ENROLLMENT AND FACILITATING DRUG DEVELOPMENT. THESE EFFORTS ARE INSTRUMENTAL TO DE-RISKING THE THERAPEUTIC PIPELINE AND DRAWING INCREASED INTEREST FROM INVESTORS, PHARMACEUTICAL COMPANIES, AND BIOTECH. BEYOND CELIAC LEADS A PRECOMPETITIVE COALITION OF MULTIDISCIPLINARY STAKEHOLDERS INVOLVED IN THE DEVELOPMENT OF POTENTIAL THERAPIES FOR CELIAC DISEASE.Expenses $1,454,082
- BEYOND CELIAC INVESTMENTS (BCI) VENTURE PHILANTHROPY PROGRAM LAUNCHED A CATALYST PROGRAM TO SCREEN FOR EARLY-STAGE CANDIDATES WITH THE POTENTIAL FOR TRANSFORMATIONAL EFFICACY IN CELIAC DISEASE. THE INAUGURAL PROPOSAL PROCESS IDENTIFIED THE FIRST INVESTMENTS NOW PENDING THROUGH BCI.
- BEYOND CELIAC SCIENCE TEAM MEMBERS PRESENTED AT MAJOR MEETINGS, INCLUDING THE AMERICAN ACADEMY OF NEUROLOGY CONFERENCE AND DIGESTIVE DISEASE WEEK. ORIGINAL RESEARCH WAS PUBLISHED IN THE JOURNAL OF CLINICAL MEDICINE AND DIGESTIVE DISEASES AND SCIENCES.ADDITIONAL PROGRAM ACTIVITIES INCLUDING PATIENT, AMBASSADOR, AND OTHER PROGRAMS. REACH BEYOND CELIAC PROGRAMS THROUGH OUR REACH BEYOND CELIAC INITIATIVE, WE EMPOWER COMMUNITY LEADERS THROUGH THE AMBASSADOR PROGRAM, INTERN PROGRAM, AND OTHER VOLUNTEER-DRIVEN ENGAGEMENT. AMBASSADORS TAILOR THEIR EFFORTS TO THEIR COMMUNITIES' HOSTING EVENTS, FOSTERING PEER-TO-PEER SUPPORT, AND RAISING AWARENESS NATIONWIDE. OUR INTERNS AND AMBASSADORS COLLABORATE WITH STAFF ON LOCAL OUTREACH, CONTENT DEVELOPMENT, SURVEY CREATION, WEB DEVELOPMENT, AND ADVOCACY INITIATIVES, STRENGTHENING OUR NATIONAL PRESENCE AND EXPANDING THE ORGANIZATION'S REACH AND IMPACT. PATIENT EDUCATION AND SUPPORT PROGRAMS BEYOND CELIAC PROVIDES ESSENTIAL EDUCATIONAL RESOURCES TO PATIENTS AT ALL STAGES OF THEIR CELIAC JOURNEY. OUR "NEWLY DIAGNOSED GUIDE" OFFERS COMPREHENSIVE TOOLS FOR UNDERSTANDING CELIAC DISEASE AND INITIATING A GLUTEN-FREE DIET. WE ALSO PUBLISH DOWNLOADABLE TOOLKITS AND HOST WEBINARS FOR SPECIFIC POPULATIONS, STUDENTS, PARENTS, AND ADULTS COVERING TOPICS LIKE READING FOOD LABELS, MANAGING CROSS-CONTAMINATION, AND NAVIGATING SOCIAL SETTINGS. THROUGH TOWN HALLS, VIRTUAL Q&A SESSIONS, AND ACCESSIBLE ONLINE MATERIALS, OUR PATIENT PROGRAMS PROMOTE SELF-ADVOCACY, INFORMED DECISION-MAKING, AND ONGOING COMMUNITY CONNECTION.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in October, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2024 | October 31, 2025 | March 16, 2026 | 990 on file |
| 2023 | October 31, 2024 | March 17, 2025 | 990 on file |
| 2022 | October 31, 2023 | March 15, 2024 | 990 on file |
IRS record
- EIN
- 90-0108854
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2003
- Accounting year ends
- October
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G40)
- Assets (IRS master file)
- $6,096,770
- Income (IRS master file)
- $3,167,731
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | October 2025 | $3,102,549 | $2,741,752 | $6,096,770 | XML |
| 990 | October 2024 | $3,296,947 | $2,985,918 | $5,399,178 | XML |
| 990 | October 2023 | $3,093,277 | $2,940,619 | $4,610,157 | IRS |
| 990 | October 2022 | $2,656,405 | $2,550,939 | $4,645,706 | IRS |
| 990 | October 2021 | – | – | – | IRS |
| 990 | October 2020 | – | – | – | IRS |
| 990 | October 2019 | – | – | – | IRS |
| 990 | October 2018 | – | – | – | IRS |
990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.
Questions about BEYOND CELIAC
- What is the EIN of BEYOND CELIAC?
- The employer identification number (EIN) of BEYOND CELIAC is 90-0108854.
- Is BEYOND CELIAC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2003.
- Are donations to BEYOND CELIAC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does BEYOND CELIAC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of BEYOND CELIAC due?
- The return for tax year 2025 (the year ending October 31, 2026) is due March 15, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did BEYOND CELIAC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended October 2025.
- Who is the principal officer of BEYOND CELIAC?
- The 990 for the year ended October 31, 2025 names MARY KATE CAROFANO.
- Who are the officers and directors of BEYOND CELIAC?
- The 990 for the year ended October 31, 2025 lists 27 people; 7 received compensation from the organization, the highest $344,615 (ALICE BAST, EXECUTIVE DIRECTOR).
- How much revenue does BEYOND CELIAC have?
- On its 990 for the year ended October 31, 2025 it reported revenue of $3,102,549, expenses of $2,741,752 and total assets of $6,096,770 at year end.
Other nonprofits in AMBLER
- COMMUNITY CUP EIN 83-4496788 · last filed 990-N for 2025
- STAN AND JAN BERENSTAIN HEALTHY KIDS FOUNDATION EIN 46-2102603 · last filed 990-PF for 2024
- BRADFORD WHITE CORPORATION HEALTH AND WELFARE TR EIN 23-2821696 · last filed 990 for 2024
- ARTMAN LUTHERAN HOME EIN 23-1401548 · last filed 990 for 2025
- LIBERTY LUTHERAN FOUNDATION EIN 23-2665839 · last filed 990 for 2025
- LIBERTY LUTHERAN SERVICES EIN 23-3059658 · last filed 990 for 2025
- SQUIRES GOLF CLUB EIN 23-1619288 · last filed 990 for 2025
- NORTH AMERICAN SOCIETY FOR PEDIATRIC GASTROENTEROLOGY & NUTRI EIN 84-1264966 · last filed 990 for 2024
All nonprofits in AMBLER · Pennsylvania · Voluntary health associations and medical disciplines