Nonprofit · EIN 88-2257719
LHON COLLECTIVE
Tax-exempt · SAN DIEGO, CA 92163
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $335,721 | $181,097 | $154,624 | $259,796 | $0 | $259,796 |
| December 31, 2024 | 990 | $219,421 | $109,522 | $109,899 | $117,149 | $0 | $117,149 |
| December 31, 2023 | 990-EZ | $76,260 | $70,035 | $6,225 | $6,225 | – | $6,225 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $348,919
- Program service revenue
- $0
- Investment income
- -$13,198
- Net gain from sales of assets
- -$13,198
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $171,873
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Program services (functional)
- $180,661
- Management and general (functional)
- $436
Balance sheet and other
- Total assets, start of year
- $117,149
- Total assets, end of year
- $259,796
- Total liabilities, end of year
- $0
- Net assets, end of year
- $259,796
- Gross receipts
- $527,213
- Employees
- 0
- Volunteers
- 0
- Year formed
- 2022
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MALINDA MARSH | CEO Trustee or director, Officer | 40 | $0 |
| CHRIS MARSH | SECRETARY Trustee or director, Officer | 10 | $0 |
| ALISON POINCENOT | CFO Trustee or director, Officer | 40 | $0 |
990 for the year ended December 31, 2024: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MALINDA MARSH | CEO Officer | 40 | $0 |
| J CHRIS MARSH | SECRETARY Officer | 10 | $0 |
| ALISON POINCENOT | CFO Officer | 40 | $0 |
990-EZ for the year ended December 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MALINDA MARSH | CEO | 40 | $0 |
| J CHRIS MARSH | SECRETARY | 10 | $0 |
| ALISON POINCENOT | CFO | 40 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 3680, SAN DIEGO, CA 92163-1680
- Principal officer (990 for 2025)
- MALINDA MARSH, PO BOX 3680, SAN DIEGO, CA 92163
- Signed the 990
- MALINDA MARSH, CEO
- Phone
- (201) 478-3537
- Website
- WWW.LHON.ORG
- 990-N for 2022 filed under this EIN
- Most likely by a chapter, club or affiliate (it says receipts are normally $50,000 or less). Officer: MALINDA MARSH, 2505 PRESIDIO DR, SAN DIEGO CA 92103. Mailing address: 2505 PRESIDIO DR, SAN DIEGO CA 92103.
- Return prepared by
- PRESTI & NAEGELE LLC
California records
California keeps its own records of charities and corporations. Search them by EIN 88-2257719 or by the name LHON COLLECTIVE.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
TO ACCELERATE PROGRESS TOWARD A CURE FOR LEBER HEREDITARY OPTIC NEUROPATHY (LHON) WHILE IMPROVING THE LIVES OF PEOPLE LIVING WITH LHON.
Program accomplishments
- LHON COLLECTIVE WORKED WITH THE MILKEN FOUNDATION SPARC TO CREATE AN ONGOING RESEARCH IN PROGRESS SEMINAR SERIES FOR RESEARCHERS TO DISCUSS NEW AND INNOVATIVE SCIENTIFIC APPROACHES TO THIS RARE DISEASE AND HEAR PRESENTATIONS FROM COLLEAGUES IN THE FIELD TO EXPAND THE WORKING KNOWLEDGE AND COLLABORATIONS FOR FUTURE SCIENTIFIC COLLABORATIONS. LHON AND SPARC ALSO FACILITATED A RESEARCH RESOURCE WORKING GROUP (RRWG) FOR A GROUP OF LHON RESEARCHERS TO COLLABORATE ON AN EVALUATION OF CURRENT, ACCESSIBLE SCIENTIFIC IN VIVO, IN VITRO AND IN SILICO MODELS FOR USE IN THE RESEARCH FOR LHON AND IDENTIFY WHAT MODELS NEED TO BE DEVELOPED FOR FURTHER SCIENTIFIC PROGRESSION FOR THIS RARE DISEASE.Expenses $127,677 · grants $125,000
- LHON COLLECTIVE HOSTED AN LHON CONFERENCE AS A PART OF THE OVERALL PATIENT CONFERENCE HELD WITH THE UNITED MITOCHONDRIAL DISEASE FOUNDATION. THIS BROUGHT 150 LHON COMMUNITY MEMBERS TOGETHER TO LEARN ABOUT THE MOST RECENT SCIENCE FOR LHON, CREATE COMMUNITY AND BUILD SKILLS AND INDEPENDENCE FOR THOSE NEWLY VISION IMPAIRED FROM LHON. 33% OF THOSE WHO ATTENDED THE CONFERENCE WERE LHON VISION IMPAIRED, 33% WERE SPOUSES OR SIGNIFICANT OTHERS, AND THE LAST 33% OF THE ATTENDEES INCLUDED RESEARCHERS, CLINICIANS, BIO PHARMA, AND FAMILY AND FRIENDS OF THOSE WHO HAVE EXPERIENCED LHON VISION LOSS. LHON COLLECTIVE ALSO BUILT AWARENESS THROUGH COLLABORATION WITH OTHER VISION DISORDER COMMUNITIES TO REPRESENT A JOINT VISION CONSORTIUM PRESENCE AT THE ASSOCIATION OF RESEARCH IN VISION AND OPHTHALMOLOGY (ARVO) CONFERENCE.Expenses $40,140 · grants $34,843
- IN PARTNERSHIP WITH CARLISI CREATIVE, LHON COLLECTIVE DEVELOPED AUDIO-DESCRIBED, ACCESSIBLE EDUCATIONAL VIDEO MATERIALS TO SCIENTIFICALLY EXPLAIN LHON. THESE MATERIALS DISSEMINATE INFORMATION TO THE COMMUNITY AT LARGE, INCLUDING FUNDERS, THE PATIENT COMMUNITY AND THEIR FAMILY AND FRIENDS, AND TO OTHER CLINICIAN RESEARCHERS TO BETTER UNDERSTAND OPPORTUNITIES FOR SCIENTIFIC ADVANCEMENT FOR THE RARE DISEASE OF LHON.Expenses $7,181 · grants $7,030
- LHON COLLECTIVE PURSUED INVESTMENT IN SCIENTIFIC PROGRESS FOR LHON BY CO-FUNDING A YOUNG INVESTIGATOR WORKING IN THE SADUN LAB AT THE UNIVERSITY OF CALIFORNIA, LOS ANGELES (UCLA) WITH THE INTERNATIONAL FOUNDATION OF OPTIC NERVE DISORDERS (IFOND). THE INVESTIGATOR FOCUSES ON THE RARE DISEASE OF LHON. THE COLLECTIVE ALSO ESTABLISHED A FORMAL RELATIONSHIP WITH COMBINEDBRAIN FOR AN LHON-SPECIFIC BIOREPOSITORY.Expenses $5,663 · grants $5,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 88-2257719
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2023
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $259,796
- Income (IRS master file)
- $527,213
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $335,721 | $181,097 | $259,796 | IRS |
| 990 | December 2024 | $219,421 | $109,522 | $117,149 | IRS |
| 990-EZ | December 2023 | $76,260 | $70,035 | $6,225 | XML |
| 990-N for 2022 Officer: MALINDA MARSH Filed under this EIN, most likely by a chapter or affiliate | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 88-2257719).
Questions about LHON COLLECTIVE
- What is the EIN of LHON COLLECTIVE?
- The employer identification number (EIN) of LHON COLLECTIVE is 88-2257719.
- Is LHON COLLECTIVE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2023.
- Are donations to LHON COLLECTIVE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LHON COLLECTIVE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LHON COLLECTIVE due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LHON COLLECTIVE last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of LHON COLLECTIVE?
- The 990 for the year ended December 31, 2025 names MALINDA MARSH.
- Who are the officers and directors of LHON COLLECTIVE?
- The 990 for the year ended December 31, 2025 lists 3 people; 0 received compensation from the organization.
- How much revenue does LHON COLLECTIVE have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $335,721, expenses of $181,097 and total assets of $259,796 at year end.
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All nonprofits in SAN DIEGO · California · Voluntary health associations and medical disciplines