Nonprofit · EIN 87-3474254
UNDIAGNOSED DISEASES NETWORK FOUNDATION
Also known as UDNF
Tax-exempt · WASHINGTON, DC 20005
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $120,373 | $1,144,059 | -$1,023,686 | $410,501 | $9,480 | $401,021 |
| December 31, 2024 | 990 | $328,998 | $1,427,906 | -$1,098,908 | $1,444,511 | $47,368 | $1,397,143 |
| December 31, 2023 | 990 | $2,579,825 | $218,337 | $2,361,488 | $2,406,337 | $35,236 | $2,371,101 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $120,332
- Program service revenue
- $0
- Investment income
- $41
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $3,080
- Compensation of officers, directors and key employees
- $256,037
- Salaries, compensation and benefits (total)
- $673,277
- Professional fees and payments to contractors
- $305,947
- Printing, publications and postage
- $1,082
- Other expenses
- $160,673
- Program services (functional)
- $714,549
Balance sheet and other
- Total assets, start of year
- $1,444,511
- Total assets, end of year
- $410,501
- Total liabilities, end of year
- $9,480
- Net assets, end of year
- $401,021
- Cash, savings and investments
- $408,847
- Gross receipts
- $120,373
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| MICHELE HERNDON | HIGHEST COMPENSATED EMPLOYEE | 40 | $142,495 |
| DANIELLE CARNIVAL | CEO | 40 | $113,542 |
| MEGHAN HALLEY | EMERITUS BOARD MEMBER | 2 | $0 |
| F SESSIONS COLE | VICE CHAIR/CHAIR | 10 | $0 |
| TROY EVANS | TREASURER | 5 | $0 |
| EFFIE PARKS | BOARD MEMBER | 2 | $0 |
| GERALD SWEENEY | BOARD MEMBER/VICE CHAIR | 2 | $0 |
| LILIANA FERNANDEZ | BOARD MEMBER | 2 | $0 |
| PARVATHY KRISHNAN | BOARD MEMBER | 2 | $0 |
| SIKA DUNYOH | CHAIR/BOARD MEMBER | 2 | $0 |
| STEPHAN ZUCHNER | BOARD MEMBER | 2 | $0 |
| TOM KELLEY | BOARD MEMBER | 2 | $0 |
| KELLY CERVENTES | SECRETARY | 5 | $0 |
| TANIA SIMONCELLI | BOARD MEMBER | 2 | $0 |
| MAX BRONSTEIN | BOARD MEMBER | 2 | $0 |
990 for the year ended December 31, 2024: 16 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| AMY GRAY | CEO Officer | 40 | $352,756 |
| STEPHANIE TOMLINSON | BOARD MEMBER Trustee or director | 2 | $1,554 |
| MEGHAN HALLEY | BOARD CHAIRMAN Trustee or director, Officer | 10 | $0 |
| F SESSIONS COLE | SECRETARY Trustee or director, Officer | 10 | $0 |
| TROY EVANS | TREASURER Trustee or director, Officer | 10 | $0 |
| ANNE PARISER | BOARD MEMBER Trustee or director | 2 | $0 |
| EFFIE PARKS | BOARD MEMBER Trustee or director | 2 | $0 |
| GERALD SWEENEY | BOARD MEMBER Trustee or director | 2 | $0 |
| LILIANA FERNANDEZ | BOARD MEMBER Trustee or director | 2 | $0 |
| PARVATHY KRISHNAN | BOARD MEMBER Trustee or director | 2 | $0 |
| SIKA DUNYOH | BOARD MEMBER Trustee or director | 2 | $0 |
| STEPHAN ZUCHNER | BOARD MEMBER Trustee or director | 2 | $0 |
| TOM KELLEY | BOARD MEMBER Trustee or director | 2 | $0 |
| TANIA SIMONCELLI | BOARD MEMBER Trustee or director | 2 | $0 |
| JESSICA SWANSON | BORAD MEMBER Trustee or director | 2 | $0 |
| KELLY CERVENTES | BOARD MEMBER Trustee or director | 2 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| AMY GRAY | CEO Officer | 40 | $95,146 |
| MEGHAN HALLEY | BOARD CHAIRMAN Trustee or director, Officer | 10 | $0 |
| F SESSIONS COLE | SECRETARY Trustee or director, Officer | 10 | $0 |
| TROY EVANS | TREASURER Trustee or director, Officer | 10 | $0 |
| ANNE PARISER | BOARD MEMBER Trustee or director | 2 | $0 |
| EFFIE PARKS | BOARD MEMBER Trustee or director | 2 | $0 |
| GERALD SWEENEY | BOARD MEMBER Trustee or director | 2 | $0 |
| LILIANA FERNANDEZ | BOARD MEMBER Trustee or director | 2 | $0 |
| PARVATHY KRISHNAN | BOARD MEMBER Trustee or director | 2 | $0 |
| SIKA DUNYOH | BOARD MEMBER Trustee or director | 2 | $0 |
| STEPHAN ZUCHNER | BOARD MEMBER Trustee or director | 2 | $0 |
| TOM KELLEY | BOARD MEMBER Trustee or director | 2 | $0 |
| TANIA SIMONCELLI | BOARD MEMBER Trustee or director | 2 | $0 |
| HELENE CEDERROTH | VICE CHAIRMAN Officer | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 1012 14TH ST NW STE 500, WASHINGTON, DC 20005-3406
- Mailing address (990-N for 2022)
- 1012 14TH STREET NW SUITE 500, WASHINGTON DC 20005
- Principal officer (990-N for 2022)
- AMY GRAY, 1012 14TH STREET NW SUITE 500, WASHINGTON DC 20005
- Signed the 990-EZ
- TROY EVANS, TREASURER
- Phone
- (202) 599-4465
- Website
- udnf.org
- Return prepared by
- EASY OFFICE DBA JITASA
Mission
THE UDNF'S MISSION IS TO IMPROVE ACCESS TO DIAGNOSIS, RESEARCH, AND CARE FOR ALL WITH UNDIAGNOSED AND ULTRA-RARE CONDITIONS. WE AIM TO FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, AND SCIENTISTS TO ENHANCE THE QUALITY OF LIFE OF UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS TO EQUITY AND ACCESS IN HEALTHCARE; SETTING STANDARDS FOR PATIENT MANAGEMENT; AND BRIDGING DIAGNOSIS AND THERAPEUTICS AS WELL AS RESEARCH AND CLINICAL CARE IN UNDIAGNOSED AND ULTRA-RARE DISEASES.
Program accomplishments
- PATIENT NAVIGATION PROGRAM - THE PATIENT NAVIGATION PROGRAM SUPPORTS PATIENTS AND FAMILIES WITH UNDIAGNOSED AND ULTRA-RARE DISEASE CONDITIONS. ONCE ENROLLED, PATIENTS AND FAMILIES ARE ASSIGNED A PATIENT NAVIGATOR THAT WILL WORK WITH THEM ONE-ON-ONE TO ADDRESS THEIR NEEDS AND HELP THEM NAVIGATE THE DIAGNOSTIC AND THERAPEUTIC ODYESSEYS.Expenses $537,461 · grants $3,080
- GENERAL PROGRAMS - CONTINUING, STRENGTHENING, AND EXPANDING THE UNDIAGNOSED DISEASES NETWORK, A RESEARCH INSTITUTE BACKED BY THE NATIONAL INSTITUTE OF HEALTH THAT SEEKS TO PROVIDE ANSWERS FOR PATIENTS AND FAMILIES AFFECTED BY UNDIAGNOSED DISEASES.Expenses $168,553
- OUTREACH AND EDUCATION - UNDIAGNOSED AND ULTRA-RARE PATIENTS CAN CALL THE UDNF TO ACCESS INFORMATION ABOUT RESEARCH OPPORTUNITIES, DIAGNOSTIC RESOURCES, THERAPEUTIC MATCHING, TECHNOLOGICAL DEVELOPMENTS, SOCIAL SERVICES, AND ADVOCACY RESOURCES. WE NETWORK WITH PATIENT ADVOCACY ORGANIZATIONS, COMMUNITY HEALTH PROVIDERS, RESEARCHERS, SOCIAL SERVICE PROVIDERS, AND FUNDERS.Expenses $8,535
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 87-3474254
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2023
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G12)
- Assets (IRS master file)
- $410,501
- Income (IRS master file)
- $120,373
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $120,373 | $1,144,059 | $410,501 | IRS |
| 990 | December 2024 | $328,998 | $1,427,906 | $1,444,511 | XML |
| 990 | December 2023 | $2,579,825 | $218,337 | $2,406,337 | XML |
| 990-N for 2022 Officer: AMY GRAY | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-EZ | December 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 87-3474254).
Questions about UNDIAGNOSED DISEASES NETWORK FOUNDATION
- What is the EIN of UNDIAGNOSED DISEASES NETWORK FOUNDATION?
- The employer identification number (EIN) of UNDIAGNOSED DISEASES NETWORK FOUNDATION is 87-3474254.
- Is UNDIAGNOSED DISEASES NETWORK FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2023.
- Are donations to UNDIAGNOSED DISEASES NETWORK FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does UNDIAGNOSED DISEASES NETWORK FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of UNDIAGNOSED DISEASES NETWORK FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did UNDIAGNOSED DISEASES NETWORK FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of UNDIAGNOSED DISEASES NETWORK FOUNDATION?
- The 990-N for 2022 names AMY GRAY.
- Who are the officers and directors of UNDIAGNOSED DISEASES NETWORK FOUNDATION?
- The 990-EZ for the year ended December 31, 2025 lists 15 people; 2 received compensation from the organization, the highest $142,495 (MICHELE HERNDON, HIGHEST COMPENSATED EMPLOYEE).
- How much revenue does UNDIAGNOSED DISEASES NETWORK FOUNDATION have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $120,373, expenses of $1,144,059 and total assets of $410,501 at year end.
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All nonprofits in WASHINGTON · District of Columbia · Voluntary health associations and medical disciplines