Nonprofit · EIN 86-2999172
RARE DISEASE COMPANY COALITION INC
Tax-exempt · WASHINGTON, DC 20001
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $595,425 | $953,918 | -$358,493 | $1,372,157 | $1,148,774 | $223,383 |
| December 31, 2023 | 990 | $958,500 | $853,798 | $104,702 | $581,876 | $0 | $581,876 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $0
- Program service revenue
- $595,000
- Investment income
- $0
- Other revenue
- $425
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $100
- Accounting fees
- $24,632
- Occupancy
- $588
Balance sheet and other
- Total assets, start of year
- $581,876
- Total assets, end of year
- $1,372,157
- Total liabilities, end of year
- $1,148,774
- Net assets, end of year
- $223,383
- Net assets without donor restrictions
- $223,383
- Gross receipts
- $595,425
- Employees
- 0
- Volunteers
- 26
- Year formed
- 2021
- State of legal domicile
- DC
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CURT OLTMANS | CHAIR Trustee or director, Officer | 2 | $0 |
| DEL LEBEL | VICE-CHAIR Trustee or director, Officer | 2 | $0 |
| CHRIS PORTER | TREASURER Trustee or director, Officer | 2 | $0 |
| KATHY PEREZ | SECRETARY Trustee or director, Officer | 2 | $0 |
| DIANE BERRY | MEMBER, COMMERCIAL AT-LARGE Trustee or director, Officer | 2 | $0 |
| MAX BRONSTEIN MEMBER PRE- | COMMERCIAL AT-LARGE - UNTIL 06/2024 Trustee or director, Officer | 2 | $0 |
| MATTHEW WINTON | MEMBER, PRE-COMMERCIAL AT-LARGE Trustee or director, Officer | 2 | $0 |
| MEG ALEXANDER | BOARD MEMBER - UNTIL 09/2024 Trustee or director | 0.5 | $0 |
| RAQUEL CABO BOARD MEMBER | FROM 09/2024 TO 12/2024 Trustee or director | 0.5 | $0 |
| GINA CIOFFI | BOARD MEMBER Trustee or director | 0.5 | $0 |
| ERIC ENDICOTT | BOARD MEMBER Trustee or director | 0.5 | $0 |
| CYNDI GOSS BOARD MEMBER | FROM 11/2024 TO 12/2024 Trustee or director | 0.5 | $0 |
| BEN HARSHBARGER | BOARD MEMBER Trustee or director | 0.5 | $0 |
| SUSANNA HASTINGS BOARD MEMBER | FROM 07/2024 TO 12/2024 Trustee or director | 0.5 | $0 |
| DAVELYN HOOD | BOARD MEMBER - UNTIL 09/2024 Trustee or director | 0.5 | $0 |
14 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LISA KAHLMAN | BOARD MEMBER Trustee or director | 0.5 | $0 |
| JACQUI KIRBY | BOARD MEMBER Trustee or director | 0.5 | $0 |
| KATIE LANDES | BOARD MEMBER Trustee or director | 0.5 | $0 |
| KATHRYN LOWELL | BOARD MEMBER Trustee or director | 0.5 | $0 |
| AMANDA MALAKOFF | BOARD MEMBER Trustee or director | 0.5 | $0 |
| PETER NORMAN BOARD MEMBER | FROM 09/2024 TO 12/2024 Trustee or director | 0.5 | $0 |
| DEIRDRE PARSONS | BOARD MEMBER Trustee or director | 0.5 | $0 |
| VISH SESHADRI | BOARD MEMBER Trustee or director | 0.5 | $0 |
| SUSAN STEWART BOARD MEMBER | FROM 09/2024 TO 12/2024 Trustee or director | 0.5 | $0 |
| FRANCESCA TEDESCO | BOARD MEMBER Trustee or director | 0.5 | $0 |
| IZZY TYSZLER | BOARD MEMBER Trustee or director | 0.5 | $0 |
| LAUREN WALRATH | BOARD MEMBER Trustee or director | 0.5 | $0 |
| SONYA WEIGLE | BOARD MEMBER Trustee or director | 0.5 | $0 |
| JILL YERSAK | BOARD MEMBER Trustee or director | 0.5 | $0 |
990 for the year ended December 31, 2023: 25 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CURT OLTMANS | CHAIRMAN Trustee or director, Officer | 2 | $0 |
| DEL LEBEL | VICE-CHAIRMAN Trustee or director, Officer | 2 | $0 |
| CHRIS PORTER | TREASURER Trustee or director, Officer | 2 | $0 |
| KATHY PEREZ | SECRETARY Trustee or director, Officer | 2 | $0 |
| MATT WINTON | MEMBER, PRE-COMMERCIAL AT-LARGE Trustee or director, Officer | 2 | $0 |
| DIANE BERRY | MEMBER, COMMERCIAL AT-LARGE Trustee or director, Officer | 2 | $0 |
| VISHWAS SESHADRI | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| FRANCESCA TEDESCO | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| PETE NORMAN | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| DEIRDRE PARSONS | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| BEN HARSHBARGER | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| KATHRYN LOWELL | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| AMANDA MALAKOFF | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| GINA CIOFFI | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| JACQUI KIRBY | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| SUSIE HASTINGS | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| LAUREN WALRATH | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| SONYA WEIGLE | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| MEG ALEXANDER | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| ERIC ENDICOTT | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| SUE STEWART | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| JILL YERSAK | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| KATIE LANDES | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| LISA KAHLMAN | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
| IZZY TYSZLER | MEMBER, BOARD OF DIRECTORS Trustee or director | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- 200 MASSACHUSETTS AVENUE NW, WASHINGTON, DC 20001-1429
- Principal officer (990 for 2024)
- CURT OLTMANS, 200 MASSACHUSETTS AVENUE NW, WASHINGTON, DC 20001
- Signed the 990
- CHRIS PORTER, TREASURER
- Phone
- (202) 809-7357
- Website
- WWW.RARECOALITION.COM
- Return prepared by
- GELMAN ROSENBERG & FREEDMAN
Mission
THE MISSION OF THE RARE DISEASE COMPANY COALITION IS TO STIMULATE DEVELOPMENT OF AND ACCESS TO RARE DISEASE TREATMENTS.
Program accomplishments
- PROVIDE POLICY ADVOCACY SERVICES FOR RARE DISEASE COMPANIES AT THE FEDERAL LEVEL.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 86-2999172
- Tax-exempt status
- 501(c)(6): Business league or chamber of commerce
- Exempt since
- 2023
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Education (B01)
- Assets (IRS master file)
- $1,372,157
- Income (IRS master file)
- $595,425
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $595,425 | $953,918 | $1,372,157 | XML |
| 990 | December 2023 | $958,500 | $853,798 | $581,876 | XML |
| 990 | December 2022 | $1,117,083 | $731,060 | $477,461 | IRS |
| 990 | December 2021 | $401,249 | $310,097 | $91,152 | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 86-2999172).
Questions about RARE DISEASE COMPANY COALITION INC
- What is the EIN of RARE DISEASE COMPANY COALITION INC?
- The employer identification number (EIN) of RARE DISEASE COMPANY COALITION INC is 86-2999172.
- Is RARE DISEASE COMPANY COALITION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(6) since 2023.
- Which annual return does RARE DISEASE COMPANY COALITION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of RARE DISEASE COMPANY COALITION INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did RARE DISEASE COMPANY COALITION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of RARE DISEASE COMPANY COALITION INC?
- The 990 for the year ended December 31, 2024 names CURT OLTMANS.
- Who are the officers and directors of RARE DISEASE COMPANY COALITION INC?
- The 990 for the year ended December 31, 2024 lists 29 people; 0 received compensation from the organization.
- How much revenue does RARE DISEASE COMPANY COALITION INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $595,425, expenses of $953,918 and total assets of $1,372,157 at year end.
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