Nonprofit · EIN 85-2221062
ALK POSITIVE INCORPORATED
Tax-exempt · ATLANTA, GA 30328
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $3,836,237 | $2,887,928 | $948,309 | $6,855,964 | $383,012 | $6,472,952 |
| December 31, 2024 | 990 | $3,723,123 | $1,878,499 | $1,844,624 | $5,617,504 | $92,939 | $5,524,565 |
| December 31, 2023 | 990 | $2,608,663 | $3,394,109 | -$785,446 | $4,700,238 | $1,011,443 | $3,688,795 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $3,633,246
- Program service revenue
- $22,946
- Investment income
- $169,075
- Net gain from sales of assets
- -$1,033
- Net income from fundraising events
- -$927
- Other revenue
- $10,970
Expenses
- Grants and similar amounts paid
- $1,573,518
- Compensation of officers, directors and key employees
- $240,410
- Other salaries and wages
- $227,887
- Salaries, compensation and benefits (total)
- $525,939
- Professional fundraising fees
- $0
- Accounting fees
- $57,782
- Travel
- $63,600
- Depreciation
- $28,342
- Program services (functional)
- $2,654,711
- Management and general (functional)
- $183,244
- Fundraising (functional)
- $49,973
Balance sheet and other
- Total assets, start of year
- $5,617,504
- Total assets, end of year
- $6,855,964
- Total liabilities, end of year
- $383,012
- Net assets, end of year
- $6,472,952
- Net assets without donor restrictions
- $5,497,789
- Net assets with donor restrictions
- $975,163
- Gross receipts
- $3,935,176
- Employees
- 4
- Volunteers
- 57
- Year formed
- 2020
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KENNETH CULVER | DOR & CLINICAL AFFAIRS, ED 11/25 Officer | 40 | $205,600 | $8,567 |
| SADIA YAAKOV | MEDICAL TEAM PROJECT MANAGER Highest-paid employee | 40 | $128,708 | $3,981 |
| SUZANNE HOUSSAINY | EXECUTIVE DIRECTOR 1/25-2/25 Officer | 40 | $25,456 | $787 |
| AMANDA BIALACK-STEWART | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| YVONNE DIAZ | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| SUMMER FARMEN | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| MARC MUSKAVITCH | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| JOHN O'SULLIVAN | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| DUNCAN PREECE | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| NANCEE PRONSATI | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| KIRK SMITH | PRESIDENT Trustee or director, Officer | 10 | $0 | $0 |
| JEFFREY STURM | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CHRISTINA WEBER | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| GREG WEHN | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| TERESA WIANT | LEGAL CHAIR Trustee or director | 5 | $0 | $0 |
990 for the year ended December 31, 2024: 15 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KEN CULVER | CHIEF SCIENTIFIC OFFICER Key employee | 40 | $197,072 | $6,095 |
| SUZANNE HOUSSAINY | EXECUTIVE DIRECTOR Former | 40 | $85,600 | $1,050 |
| AMANDA BIALACK-STEWART | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| YVONNE DIAZ | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| SUMMER FARMAN | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| MARCH MUSKAVITCH | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| JOHN O'SULLIVAN | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| DUNCAN PREECE | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| NANCEE PROSNATI | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| PATTY SACCENTI | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| KIRK SMITH | PRESIDENT Trustee or director, Officer | 10 | $0 | $0 |
| JEFF STURM | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| CHRISTINA WEBER | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| GREG WHEN | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
| TERESA WIANT | BOARD MEMBER Trustee or director | 5 | $0 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| KEN CULVER | DIRECTOR Key employee | 40 | $188,665 | $5,335 |
| LONNA SMITH | DIRECTOR Former | 40 | $147,875 | $3,087 |
| YVONNE DIAZ | DIRECTOR Trustee or director | 5 | $0 | $0 |
| SUMMER FARMEN | DIRECTOR Trustee or director | 5 | $0 | $0 |
| JT HEDGES | DIRECTOR Trustee or director | 5 | $0 | $0 |
| MARC MUSCOVITCH | DIRECTOR Trustee or director | 5 | $0 | $0 |
| DUNCAN PREECE | DIRECTOR Trustee or director | 5 | $0 | $0 |
| NANCEE PRONSATI | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| PATTY SACCIENTE | DIRECTOR Trustee or director | 5 | $0 | $0 |
| KIRK SMITH | PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| JEFF STURN | DIRECTOR Trustee or director | 5 | $0 | $0 |
| CHRISTINA WEBER | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| GREG WEHN | DIRECTOR Trustee or director | 5 | $0 | $0 |
| TERESA WIANT | DIRECTOR Trustee or director | 5 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 6595 ROSWELL RD G2310, ATLANTA, GA 30328-3152
- Principal officer (990 for 2025)
- KIRK SMITH, 6595 ROSWELL RD G2310, ATLANTA, GA 30238
- Signed the 990
- KIRK SMITH, PRESIDENT
- Phone
- (678) 576-9913
- Website
- WWW.ALKPOSITIVE.ORG
- Return prepared by
- CIUNI & PANICHI INC
Mission
WE ARE A PATIENT-DRIVEN ORGANIZATION SEEKING A CURE AND WORKING TO IMPROVE PATIENTS' QUALITY OF LIFE AND LIFE EXPECTANCY WORLDWIDE.
Program accomplishments
- ALK POSITIVE, INC. IS A PATIENT DRIVEN 501(C)(3) NONPROFIT CORPORATION PROVIDING SUPPORT, EMPATHY, AND RESEARCH FUNDING TO CHANGE THE FUTURE FOR ALK-POSITIVE CANCER PATIENTS. ALK-POSITIVE CANCER IS ESTIMATED TO OCCUR IN APPROXIMATELY 100,000 PATIENTS WORLDWIDE EVERY YEAR. ALTHOUGH THE VAST MAJORITY OF CASES OCCUR AS LUNG CANCER, IT CAN ALSO ORIGINATE IN MANY OTHER ORGANS. THE MEDIAN AGE FOR ALK-POSITIVE PATIENTS AT DIAGNOSIS IS ABOUT 50 YEARS WITH MANY IN THEIR FORTIES, THIRTIES AND EVEN YOUNGER. APPROXIMATELY 55% OF ALK-POSITIVE PATIENTS ARE FEMALE AND THE DISEASE OCCURS WITH PEOPLE OF ALL RACES.(CONTINUED ON SCHEDULE O)IN 2017, SOME ALK-POSITIVE CANCER PATIENTS AND CAREGIVERS FORMED THE OUTREACH MANAGEMENT GROUP TO PARTNER WITH THE LUNGEVITY FOUNDATION IN ORDER TO RAISE FUNDS FOR CANCER RESEARCH. IN 2018, THE PARTNERSHIP WAS FORMALIZED INTO A JOINT FUNDRAISING AND RESEARCH AGREEMENT WITH BOTH LUNGEVITY AND THE GO2 FOUNDATION FOR LUNG CANCER. FROM 2017 TO 2021, THE PARTNERSHIPS GENERATED OVER $4.7M IN CONTRIBUTIONS AND AWAREDED $2.8M IN TRANSLATIONAL RESEARCH GRANTS WITH THE PURPOSE OF IMPROVING ALK-POSITIVE CANCER PATIENT OUTCOMES. BY MARCH 2021, THE OUTREACH MANAGEMENT GROUP HAD INCORPORATED AND WAS RECOGNIZED BY THE IRS AS A 501(C)(3) NON PROFIT ORGANIZATION CALLED ALK POSITIVE INC. DURING 2021-22 ANOTHER $3.4M IN CONTRIBUTIONS WAS GENEROUSLY RAISED WITH RESEARCH GRANTS TOTALING $2.6M AWARDED. ALSO IN 2022, THE FIRST TWO EMPLOYEES WERE HIRED - A DIRECTOR OF RESEARCH AND CLINICAL AFFAIRS AND AN EXECUTIVE DIRECTOR.BY FAR, THE MOST EFFECTIVE TREATMENTS FOR ALK-POSITIVE CANCER ARE THE ROAL ALK TYROSINE KINASE INHIBITORS (TKI'S). THESE ARE NOW FDA APPROVED IN 1ST, 2ND AND 3RD GENERATION VERSIONS, EACH GENERATION MORE EFFECTIVE THAN THE PREVIOUS. HOWEVER, WHILE TKI'S HAVE IMPROVED MEDIAN OVERALL SURVIVAL FROM A FEW MONTHS TO MANY YEARS, ALK-POSITIVE CANCERS INEVITABLY MUTATE AND BECOME RESISTANT TO ALL TKI'S. THE ORGANIZATION CREATED THE RESEARCH REVIEW PANEL (COMMITTEE) COMPRISING VOLUNTEER ALK-POSITIVE CANCER PATIENTS, CAREGIVERS AND WORLD-RENOWNED SCIENTIFIC AND RESEARCH EXPERTS TO HELP REVIEW AND AWARD THE MOST PROMISING ALK-POSITIVE CANCER RESEARCH PROJECTS TO IMPROVE PATIENT OUTCOMES. IN 2022, THIS RESERACH TEAM WAS EXPANDED TO:-RESEARCH ACCELERATION COMMITTEE: ACCELERATE ACADEMIC AND BIOTECH RESEARCH THAT LEADS TO NEW THERAPIES FOR ALK-POSITIVE PATIENTS, INCLUDING IMMUNOTHERAPIES AND COMBINATION THERAPIES, AND NEW CLINICAL TRIALS, VIA COLLABORATION WITH ACADEMIA, INDUSTRY AND VENTURE CAPITAL.-CLINICAL TRIALS COMMITTEE: COLLABORATE WITH ACADEMIA AND INDUSTRY TO DEVELOP NEW FRAMEWORKS FOR CLINICAL TRIALS AND TO ACCELERATE CREATION, EFFECTIVE ENROLLMENT AND SUCCESSFUL READOUTS FOR CLINICAL TRIALS INVOLVING AND BENEFICIAL TO ALK-POSITIVE PATIENTS.-TRANSLATIONAL INVESTIGATIONS GROUP: FRAM AND IMPLEMENT AN INTERNAL ALK-POSITIVE RESEARCH PROGRAM THAT ADDRESSES KEY QUESTIONS FOR WHICH ANSWERS WILL ENABLE THE DEVELOPMENT OF NEW ALK THERAPIES, NIOMARKS OF TREATMENT RESPONSE AND ACCELERATED CLINICAL TRIALS.Expenses $2,654,711 · grants $1,573,518 · revenue $34,843
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 85-2221062
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $6,855,964
- Income (IRS master file)
- $3,935,176
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $3,836,237 | $2,887,928 | $6,855,964 | XML |
| 990 | December 2024 | $3,723,123 | $1,878,499 | $5,617,504 | XML |
| 990 | December 2023 | $2,608,663 | $3,394,109 | $4,700,238 | XML |
| 990 | December 2022 | $1,602,191 | $541,741 | $4,507,425 | IRS |
| 990 | December 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 85-2221062).
Questions about ALK POSITIVE INCORPORATED
- What is the EIN of ALK POSITIVE INCORPORATED?
- The employer identification number (EIN) of ALK POSITIVE INCORPORATED is 85-2221062.
- Is ALK POSITIVE INCORPORATED tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to ALK POSITIVE INCORPORATED tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ALK POSITIVE INCORPORATED file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ALK POSITIVE INCORPORATED due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ALK POSITIVE INCORPORATED last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of ALK POSITIVE INCORPORATED?
- The 990 for the year ended December 31, 2025 names KIRK SMITH.
- Who are the officers and directors of ALK POSITIVE INCORPORATED?
- The 990 for the year ended December 31, 2025 lists 15 people; 3 received compensation from the organization, the highest $205,600 (KENNETH CULVER, DOR & CLINICAL AFFAIRS, ED 11/25).
- How much revenue does ALK POSITIVE INCORPORATED have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $3,836,237, expenses of $2,887,928 and total assets of $6,855,964 at year end.
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