Nonprofit · EIN 84-4654297
SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC
Tax-exempt · WOBURN, MA 01888
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $133,392 | $356,884 | -$223,492 | $575,441 | $1,255 | $574,186 |
| December 31, 2023 | 990 | $288,814 | $126,464 | $162,350 | $797,678 | $0 | $797,678 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $101,213
- Program service revenue
- $0
- Investment income
- $32,179
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $1,196
- Compensation of officers, directors and key employees
- $170,000
- Salaries, compensation and benefits (total)
- $225,460
- Professional fundraising fees
- $0
- Legal fees
- $5,621
- Accounting fees
- $3,050
- Occupancy
- $3,381
- Travel
- $57
- Program services (functional)
- $295,677
- Management and general (functional)
- $33,711
- Fundraising (functional)
- $27,496
Balance sheet and other
- Total assets, start of year
- $797,678
- Total assets, end of year
- $575,441
- Total liabilities, end of year
- $1,255
- Net assets, end of year
- $574,186
- Net assets without donor restrictions
- $574,186
- Gross receipts
- $133,392
- Employees
- 1
- Volunteers
- 8
- Year formed
- 2020
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Eszter Hars | CEO Officer | 35 | $170,000 | $42,500 |
| Indrani Chatterjee | Member Trustee or director | 1 | $0 | $0 |
| Dora Erdos | Member Trustee or director | 1 | $0 | $0 |
| Marcelo G DeCastro | Secretary Trustee or director, Officer | 1 | $0 | $0 |
| William Chen | Treasurer Trustee or director, Officer | 1 | $0 | $0 |
| Lotien Huang | President Trustee or director, Officer | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Eszter Hars | President Trustee or director, Officer | 35 | $80,000 |
| Indrani Chatterjee | Member Trustee or director | 1 | $0 |
| Dora Erdos | Member Trustee or director | 1 | $0 |
| Marcelo G DeCastro | Secretary Trustee or director, Officer | 1 | $0 |
| William Chen | Treasurer Trustee or director, Officer | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 462 WASHINGTON ST UNIT 2441, WOBURN, MA 01888-8018
- In care of
- % ESZTER HARS
- Mailing address (990-N for 2020)
- PO Box 2441, Woburn MA 01888
- Principal officer (990 for 2024)
- Eszter Hars, PO Box 2441, Woburn, MA 01888
- Principal officer (990-N for 2020)
- Eszter Hars, PO Box 2441, Woburn MA 01888
- Signed the 990
- ESZTER HARS, CEO
- Phone
- (617) 329-1838
- Website
- www.sdsalliance.org
- Return prepared by
- Mullins PC
Mission
Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a US-based nonprofit organization serving the global SDS community to improve and save the lives of people affected by SDS by focusing on research and therapy development.
Program accomplishments
- The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder. Programs include overlapping efforts in Research & Development (currently focused on research tools, infrastructure, and translation) and Patient Voice (including the collection and communication of patient experiences, unmet needs, and priorities) to support research.Expenses $295,677 · grants $1,196
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 84-4654297
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2020
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $575,441
- Income (IRS master file)
- $133,392
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $133,392 | $356,884 | $575,441 | IRS |
| 990 | December 2023 | $288,814 | $126,464 | $797,678 | XML |
| 990 | December 2022 | $336,751 | $102,768 | $635,328 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-N for 2020 Officer: Eszter Hars | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-4654297).
Questions about SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC
- What is the EIN of SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC?
- The employer identification number (EIN) of SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC is 84-4654297.
- Is SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2020.
- Are donations to SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC?
- The 990 for the year ended December 31, 2024 names Eszter Hars.
- Who are the officers and directors of SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC?
- The 990 for the year ended December 31, 2024 lists 6 people; 1 received compensation from the organization, the highest $170,000 (Eszter Hars, CEO).
- How much revenue does SHWACHMAN-DIAMOND SYNDROME ALLIANCE INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $133,392, expenses of $356,884 and total assets of $575,441 at year end.
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