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Nonprofit · EIN 83-3342162

DYRK1A SYNDROME US

Tax-exempt · OTSEGO, MI 49078

Financials

$59K$84K2023$46K$93K2024$47K$173K2025
Revenue Expenses · by fiscal year end
Financials of DYRK1A SYNDROME US by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$46,834$173,309-$126,475$422,927$44,018$378,909
December 31, 2024990$45,794$93,094-$47,300$505,384$0$505,384
December 31, 2023990$59,197$84,494-$25,297$552,684$0$552,684
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$46,775
Program service revenue
$0
Investment income
$0
Net income from fundraising events
$59
Other revenue
$59

Expenses

Grants and similar amounts paid
$81,265
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Legal fees
$9,650
Accounting fees
$4,549
Travel
$2,152
Program services (functional)
$154,028
Management and general (functional)
$19,281

Balance sheet and other

Total assets, start of year
$505,384
Total assets, end of year
$422,927
Total liabilities, end of year
$44,018
Net assets, end of year
$378,909
Gross receipts
$46,834
Employees
0
Volunteers
10
Year formed
2019
State of legal domicile
MI

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
ADRIANNE APODACASECRETARY
Trustee or director, Officer
–$0
AMY J CLUGSTONPRESIDENT
Trustee or director, Officer
–$0
ANA DOWNEYDIRECTOR
Trustee or director
–$0
SARAH GLASSDIRECTOR
Trustee or director
–$0
PRISCILLA GUZMANTREASURER
Trustee or director, Officer
–$0
CAROLLE O'NEILDIRECTOR
Trustee or director
–$0
KATIE WATSONDIRECTOR
Trustee or director
–$0
990 for the year ended December 31, 2024: 7 people
NameTitleHours / weekCompensation
ADRIANNE APODACASECRETARY
Trustee or director, Officer
–$0
AMY J CLUGSTONPRESIDENT
Trustee or director, Officer
–$0
ANA DOWNEYDIRECTOR
Trustee or director
–$0
SARAH GLASSDIRECTOR
Trustee or director
–$0
PRISCILLA GUZMANTREASURER
Trustee or director, Officer
–$0
CAROLLE O'NEILDIRECTOR
Trustee or director
–$0
KATIE WATSONDIRECTOR
Trustee or director
–$0
990 for the year ended December 31, 2023: 8 people
NameTitleHours / weekCompensation
ASHLEY ALLENDIRECTOR
Trustee or director
–$0
ADRIANNE APODACASECRETARY
Trustee or director, Officer
–$0
AMY J CLUGSTONPRESIDENT
Trustee or director, Officer
–$0
ANA DOWNEYDIRECTOR
Trustee or director
–$0
SARAH GLASSDIRECTOR
Trustee or director
–$0
JOHNA GRAVESDIRECTOR
Trustee or director
–$0
PRISCILLA GUZMANTREASURER
Trustee or director, Officer
–$0
BRAXTON WEBBDIRECTOR
Trustee or director
–$0

Address and contacts

Address (IRS master file)
1745 LORNA LANE ST, OTSEGO, MI 49078-8719
In care of
% AMY CLUGSTON
Mailing address (990-N for 2020)
1745 Lorna Lane, Otsego MI 49078
Principal officer (990 for 2025)
AMY J CLUGSTON, 1745 LORNA LANE, OTSEGO, MI 49078
Principal officer (990-N for 2020)
Amy Clugston, 1745 Lorna Lane, Otsego MI 49078
Signed the 990
AMY J CLUGSTON, PRESIDENT
Phone
(269) 492-4790
Return prepared by
TKH GROUP PC

Mission

DYRK1A SYNDROME US IS A NON-PROFIT 501(C)3, TAX EXEMPT ORGANIZATION WITH A MAIN PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR THOSE AFFECTED BY DYRK1A SYNDROME THROUGH SUPPORT, RDUCATION, RESEARCH AND COLLABORATION

990 for the year ended December 31, 2025

Program accomplishments

  • DYKR1A SYNDROME FAMILY SUPPORT & EDUCATION.
    Expenses $55,646
  • EDUCATION AND OUTREACH TO CLINICAL AND SCIENTIFIC COMMUNITIES ABOUT DYRK1A SYNDROME
    Expenses $98,382 · grants $81,265

What it must file and when

IRS records say it files Form 990-N (e-Postcard). Gross receipts normally $50,000 or less. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
83-3342162
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2019
Accounting year ends
December
Files
Form 990-N (e-Postcard)
Category (NTEE)
Medical research (H20)
Assets (IRS master file)
$422,927
Income (IRS master file)
$46,834

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$46,834$173,309$422,927IRS
990December 2024$45,794$93,094$505,384IRS
990December 2023$59,197$84,494$552,684XML
990December 2022$187,908$51,356$577,981IRS
990December 2021–––IRS
990-TDecember 2021–––IRS
990-N for 2020
Officer: Amy Clugston
December 31, 2020≤ $50,000 receipts––e-Postcard
990-N for 2019
Officer: Amy Clugston
December 31, 2019≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 83-3342162).

Questions about DYRK1A SYNDROME US

What is the EIN of DYRK1A SYNDROME US?
The employer identification number (EIN) of DYRK1A SYNDROME US is 83-3342162.
Is DYRK1A SYNDROME US tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
Are donations to DYRK1A SYNDROME US tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does DYRK1A SYNDROME US file?
Form 990-N (e-Postcard). Gross receipts normally $50,000 or less.
When is the next return of DYRK1A SYNDROME US due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did DYRK1A SYNDROME US last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of DYRK1A SYNDROME US?
The 990 for the year ended December 31, 2025 names AMY J CLUGSTON.
Who are the officers and directors of DYRK1A SYNDROME US?
The 990 for the year ended December 31, 2025 lists 7 people; 0 received compensation from the organization.
How much revenue does DYRK1A SYNDROME US have?
On its 990 for the year ended December 31, 2025 it reported revenue of $46,834, expenses of $173,309 and total assets of $422,927 at year end.

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