Nonprofit · EIN 83-0665732
NATIONAL COUNCIL ON SEVERE AUTISM
Tax-exempt · SAN JOSE, CA 95159
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $160,443 | $190,994 | -$30,551 | $220,448 | $137 | $220,311 |
| December 31, 2024 | 990-EZ | $154,190 | $115,794 | $38,396 | $250,862 | – | $250,862 |
| December 31, 2023 | 990-EZ | $148,876 | $68,657 | $80,219 | $212,466 | – | $212,466 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $116,876
- Program service revenue
- $33,664
- Investment income
- $9,423
- Other revenue
- $480
Expenses
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $119,195
- Printing, publications and postage
- $804
- Other expenses
- $70,995
- Program services (functional)
- $185,450
Balance sheet and other
- Total assets, start of year
- $250,862
- Total assets, end of year
- $220,448
- Total liabilities, end of year
- $137
- Net assets, end of year
- $220,311
- Cash, savings and investments
- $220,448
- Gross receipts
- $160,443
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jill Escher | President | 15 | $0 |
| Amy Lutz | Vice President | 5 | $0 |
| Gloria Satriale | Secretary | 3 | $0 |
| Mark Kendall | Treasurer | 3 | $0 |
990-EZ for the year ended December 31, 2024: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jill Escher | President | 15 | $0 |
| Amy Lutz | Vice President | 5 | $0 |
| Gloria Satriale | Secretary | 3 | $0 |
| Denise Lombardi | Treasurer | 3 | $0 |
990-EZ for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jill Escher | President | 15 | $0 |
| Amy Lutz | Vice President | 5 | $0 |
| Gloria Satriale | Secretary | 3 | $0 |
| Denise Lombardi | Treasurer | 3 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 26853, SAN JOSE, CA 95159-6853
- Mailing address (990-N for 2021)
- PO BOX 26853, SAN JOSE CA 95159
- Principal officer (990-N for 2021)
- Jill Escher, PO BOX 26853, SAN JOSE CA 95159
- Signed the 990-EZ
- Jill Escher, President
- Phone
- (408) 314-1655
- Website
- ncsautism.org
- Return prepared by
- FITZPATRICK & TUCKER INC
California records
California keeps its own records of charities and corporations. Search them by EIN 83-0665732 or by the name NATIONAL COUNCIL ON SEVERE AUTISM.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
TO PURSUE RECOGNITION, POLICY AND SOLUTIONS FOR THE SURGING POPULATION OF INDIVIDUALS, FAMILIES AND CAREGIVERS AFFECTED BY SEVERE FORMS OF AUTISM AND RELATED DISORDERS
Program accomplishments
- Recognition & Awareness: In 2025, the National Council on Severe Autism (NCSA) significantly expanded its national reach and engagement through strategic digital communications and infrastructure investment. NCSA delivered 187,914 newsletters to subscribers nationwide, amplifying information and advocacy on issues affecting individuals and families impacted by severe autism. On Facebook, NCSA achieved a net gain of 8,022 followers (+32.7%) with 72.9% of growth driven by Reels and 27.1% driven by Posts. Total followers at year-end reached 32,857. NCSA also invested in upgrading media relations and advocacy software, enhancing tools for the reach and influence of our National Grassroots Network. Through its Authentic Awareness Video Campaign, NCSA gave caregivers an accessible platform to publish first-person videos of their families stories, which were featured across NCSAs website, social media, and YouTube channel. In December, NCSA also ran an artwork campaign that named a person with severe autism as its Artist of the Year for 2026, highlighting the creativity, individualism, and beauty beyond the bounds of words for individuals with severe autism. In 2025, NCSA earned over 1,000 media mentions with an estimated reach exceeding 3.18 billion, and was featured in multiple national publications including but not limited to Disability Scoop, Politico, Newsweek, The New York Times, The Washington Times, NPR, News Nation, and BBC.Expenses $64,685
- Policy & Advocacy: In 2025, NCSA strengthened its policy infrastructure and expanded its National Grassroots Network (NGN), nearing 2,000 members nationwide. NCSA hired its first Legal and Policy Fellow for the 202526 academic year. The NGN held monthly meetings for state chairs to address national issues, while state chapters convened virtually to discuss state-specific priorities. NCSA held its first D.C. fly-in event, with 131 advocates representing 30 states holding more than 150 meetings with congressional offices. NCSA conducted a national survey of family caregivers of individuals with severe autism and published the results via webinar and also PDF on our website. In September, NCSA held its first Voices for the Voiceless Advocacy Week, which included 4.5 hours of online pre-training. 162 participants took part, meeting with legislators in an accessible format. The organization is continuing plans for the 2026 in-person fly-in in July and two virtual fly-ins in the spring and fall. NCSA launched its book club for social engagement and civics/advocacy training in 2025 with 30 registrants in the spring and 42 registrants in the fall. Multiple chapters participated in advanced advocacy at the state level, including testifying at legislative hearings, drafting and promoting specific legislation, and participating in multi-group disability conferences. State chapters have made significant progress on caregiver support, group home safety, and health care access. NCSA onboarded new national leadership volunteers as coordinators in Community Engagement, Government Affairs, Public Relations, Development and Digital Content. NCSA leadership continues to engage in targeted meetings with ACL, HHS, NIH, and CMS on matters most important to our community such as housing, equitable representation, research priorities, and funding allocations. Members attended INSAR and other relevant conferences, and the organization continues to collaborate with other nonprofit advocacy groups to find areas of common ground with an attitude of including diverse views to eliminate the long-standing discrimination and exclusion of severe autism in mainstream discourse.Expenses $88,185
- Solutions & Resources: NCSA hosted webinars on topics including exploring the complexities of epilepsy and seizures in autism, integrated health care, innovative housing, hospital care for special care, and understanding development & behavior. NCSA hosted a podcast discussing the similar disparities and discourse between the communities of severe autism and severe mental illness, addressing the harms that ensued from monolithic modern policy that sanitizes disability, and discussing the realities of the types of supports and collaborations that may bring real solutions to these marginalized populations. NCSA families served as significant cohort segments for studies such as Quality of Life of Mothers of Severely Autistic Children Under the Age of 22 by Chele Weiglein (Liberty University); Caregiver Adherence to Behavioral Recommendations by the PCORI-Awarded SPARC project, and Parents Caring for Autistic Adults by Jess Wellington (Penn State University). NCSA proudly supported promising research for Understanding Severity of SIB by Joseph Patrick Boyle (UC Davis) and co-hosted Supporting People with Autism and Catatonia through Education and Support (SPACES) with Autism Science Foundation and Autism Speaks. The NCSA Board of Directors published three new formal position statements in 2025: Medicaid and Healthcare Access, Applied Behavior Analysis, and Medicaid HCBS Settings Rule.Expenses $32,580
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 83-0665732
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2019
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G84)
- Assets (IRS master file)
- $220,448
- Income (IRS master file)
- $160,443
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $160,443 | $190,994 | $220,448 | XML |
| 990-EZ | December 2024 | $154,190 | $115,794 | $250,862 | XML |
| 990-EZ | December 2023 | $148,876 | $68,657 | $212,466 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-N for 2021 Officer: Jill Escher | December 31, 2021 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2020 Officer: Jill Escher | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2019 Officer: Jill Escher | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 83-0665732).
Questions about NATIONAL COUNCIL ON SEVERE AUTISM
- What is the EIN of NATIONAL COUNCIL ON SEVERE AUTISM?
- The employer identification number (EIN) of NATIONAL COUNCIL ON SEVERE AUTISM is 83-0665732.
- Is NATIONAL COUNCIL ON SEVERE AUTISM tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
- Are donations to NATIONAL COUNCIL ON SEVERE AUTISM tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NATIONAL COUNCIL ON SEVERE AUTISM file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NATIONAL COUNCIL ON SEVERE AUTISM due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NATIONAL COUNCIL ON SEVERE AUTISM last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of NATIONAL COUNCIL ON SEVERE AUTISM?
- The 990-N for 2021 names Jill Escher.
- Who are the officers and directors of NATIONAL COUNCIL ON SEVERE AUTISM?
- The 990-EZ for the year ended December 31, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does NATIONAL COUNCIL ON SEVERE AUTISM have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $160,443, expenses of $190,994 and total assets of $220,448 at year end.
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