Skip to main content
IRS-authorized e-file provider · not the IRS

Nonprofit · EIN 82-2964680

KRABBE CONNECT

Tax-exempt · ROSEMOUNT, MN 55068

Financials

$295K$192K2023$314K$189K2024
Revenue Expenses · by fiscal year end
Financials of KRABBE CONNECT by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$314,070$189,329$124,741$507,394$5,782$501,612
December 31, 2023990$295,064$192,224$102,840$378,470$1,447$377,023
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$145,026
Program service revenue
$0
Investment income
$0
Net income from fundraising events
$169,044
Other revenue
$169,044

Expenses

Grants and similar amounts paid
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Accounting fees
$275
Travel
$545
Program services (functional)
$157,122
Management and general (functional)
$32,207

Balance sheet and other

Total assets, start of year
$378,470
Total assets, end of year
$507,394
Total liabilities, end of year
$5,782
Net assets, end of year
$501,612
Net assets without donor restrictions
$332,392
Net assets with donor restrictions
$169,220
Gross receipts
$349,388
Employees
0
Year formed
2017
State of legal domicile
MN

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
STACY PIKE-LANGENFELDPRESIDENT
Officer
14$0
DONNA SCHROEDERVICE PRESIDE
Officer
3$0
CARLYLE KIRBOTREASURER
Officer
9$0
WENDY ZIELENSECRETARY
Officer
2$0
MEGAN RENZELEGAL ADVISO
Trustee or director
2$0
DAVID COOPERDIRECTOR
Trustee or director
3$0
TAMMY WILSONDIRECTOR
Trustee or director
2$0
HINA MALIKDIRECTOR
Trustee or director
2$0
AMY WHITEDIRECTOR
Trustee or director
2$0
LESA BRACKBILLDIRECTOR
Trustee or director
2$0
990 for the year ended December 31, 2023: 10 people
NameTitleHours / weekCompensation
MEGAN RENZELEGAL ADVISOR
Trustee or director
2$0
DAVID COOPERDIRECTOR
Trustee or director
3$0
TAMMY WILSONDIRECTOR
Trustee or director
2$0
HINA MALIKDIRECTOR
Trustee or director
2$0
AMY WHITEDIRECTOR
Trustee or director
2$0
LESA BRACKBILLDIRECTOR
Trustee or director
2$0
STACY PIKE LANGENFELDPRESIDENT
Officer
14$0
CARLYLE KIRBOTREASURER
Officer
9$0
WENDY ZIELENSECRETARY
Officer
2$0
DONNA SCHROEDERVICE PRESIDENT
Officer
3$0

Address and contacts

Address (IRS master file)
PO BOX 264, ROSEMOUNT, MN 55068-0264
In care of
% STACY PIKE
Mailing address (990-N for 2018)
13130 AULDEN AVE, Rosemount MN 55068
Principal officer (990 for 2024)
STACY PIKE-LANGENFELD, PO BOX 264, ROSEMOUNT, MN 55068
Principal officer (990-N for 2018)
Anne Rugari, PO Box 2313, Palm Harbor FL 34682
Signed the 990
STACY PIKE-LANGENFELD, PRESIDENT
Phone
(612) 387-3424
Return prepared by
BENNETT & COMPANY PC

Mission

KRABBECONNECT WILL BE THE SOURCE OF COMPREHENSIVE INFORMATION AND ACCESS TO RESOURCES FOR FAMILIES WITH KRABBE DISEASE.

990 for the year ended December 31, 2024

Program accomplishments

  • PATIENT ENGAGEMENT: PROVIDING INFORMATION AND RESOURCES FOR KRABBE DESEASE THROUGH KRABBECONNECT WEBSITE, FACEBOOK, AND SOCAL MEDIA CHANNELS. ENGAGEMENT WITH FAMILIES AFFECTED BY THE DIESASE BY OFFERING SUPPORT AND CONNECTIONS FOR MANAGING CARE OF THE PATIENTS. RESOURCES INCLUDE CONTACT INFORMATION FOR CLINICAL EXPERTS, EXPERTS IN RESEARCH, CURRENT RESEARCH LITERATURE VIA THE RESOURCE LIBRARY, AND OPPORTUNITIES FOR CLINICAL TRIALS IN THE DISEASE SPACE. KRABBECONNECT ALSO INTERACTS WITH THE COMMUNITY THROUGH OUR INTERNATIONAL LIAISON, OUTREACH DIRECTOR AND PATIENT ENGAGEMENT MANAGER.
    Expenses $17,211
  • PATIENT ADVOCACY AND ADVANCEMENT: BOARD MEMBERS ROUTINELY ATTEND CONFERENCES AND MEETINGS THAT INVOLVE THE RATE DISEASE COMMUNITY TO SUPPORT THE NEEDS OF THE KRABBE PATIENTS AND THEIR FAMILIES. KRABBECONNECT ALSO PARTICIPATES IN NETWORKING OPPORTUNITIES WITH OTHER ADVOCACY FOUNDATIONS JOINING TOGETHER TO HAVE A VOICE FOR THE PATIENTS. KRABBECONNECT MAINTAINS MEMBERSHIP WITH SERVERAL LARGE ORGANIZATIONS, I.E. NORD, GLOBAL GENES, ULF, WORLD LYSOSOMAL STORAGE DISEASE TO ENHANCE THE ADVOCACY AND EDUCATION OF KRABBE DISEASE.
    Expenses $1,332
  • RESEARCH AND DEVELOPMENT: KRABBECONNECT PRODUCED A POSTER TO DISCUSS THE PATIENT BURDEN OF KRABBE DISEASE. RESEARCH CONDUCTED TO COLLECT DATA FROM PATIENTS TO CAPTURE THE UNMET NEEDS IN THE KRABBE COMMUNITY. THE RESEARCH WILL SERVE AS A TOOL TO CLINICIANS, SCIENTISTS, RESEARCHERS, AND INDUSTRY TO HELP WITH THE ADVANCEMENT OF NEW NOVEL TREATMENTS IN THE KRABBE DISEASE SPACE. KRABBECONNECT IS WORKING TO CREATE A PATIENT REGISTRY AND PATIENT FOCUSED DRUG DEVELOPMENT MEETING WITH THE FDA TO SUPPORT RESEARCH AND ADVANCEMENTS IN TREATING KRABBE DISEASE.
    Expenses $114,406
  • OTHER PROGRAM SERVICES
    Expenses $24,173

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
82-2964680
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2018
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$507,394
Income (IRS master file)
$349,388

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$314,070$189,329$507,394IRS
990December 2023$295,064$192,224$378,470XML
990December 2022$201,297$106,635$280,117IRS
990December 2021–––IRS
990December 2020–––IRS
990-N for 2018
Officer: Anne Rugari
December 31, 2018≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-2964680).

Questions about KRABBE CONNECT

What is the EIN of KRABBE CONNECT?
The employer identification number (EIN) of KRABBE CONNECT is 82-2964680.
Is KRABBE CONNECT tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2018.
Are donations to KRABBE CONNECT tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does KRABBE CONNECT file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of KRABBE CONNECT due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did KRABBE CONNECT last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of KRABBE CONNECT?
The 990 for the year ended December 31, 2024 names STACY PIKE-LANGENFELD.
Who are the officers and directors of KRABBE CONNECT?
The 990 for the year ended December 31, 2024 lists 10 people; 0 received compensation from the organization.
How much revenue does KRABBE CONNECT have?
On its 990 for the year ended December 31, 2024 it reported revenue of $314,070, expenses of $189,329 and total assets of $507,394 at year end.

Other nonprofits in ROSEMOUNT

All nonprofits in ROSEMOUNT · Minnesota · Voluntary health associations and medical disciplines