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Nonprofit · EIN 81-4459237

HEART VALVE VOICE US

Tax-exempt · WASHINGTON, DC 20003

Financials

$256K$232K2023$234K$234K2024
Revenue Expenses · by fiscal year end
Financials of HEART VALVE VOICE US by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$233,521$234,377-$856$139,817$2,500$137,317
December 31, 2023990$256,261$232,389$23,872$151,932$13,759$138,173
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$146,621
Program service revenue
$86,900
Investment income
$0
Other revenue
$0

Expenses

Grants and similar amounts paid
$1,000
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Legal fees
$8,700
Accounting fees
$10,000
Occupancy
$2,022
Travel
$12,386
Program services (functional)
$137,804
Management and general (functional)
$51,672
Fundraising (functional)
$44,901

Balance sheet and other

Total assets, start of year
$151,932
Total assets, end of year
$139,817
Total liabilities, end of year
$2,500
Net assets, end of year
$137,317
Net assets without donor restrictions
$137,317
Gross receipts
$233,521
Employees
0
Volunteers
13
Year formed
2016
State of legal domicile
DC

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
DONNETTE SMITHCHAIR
Trustee or director, Officer
2$0
TERESA WRIGHT-JOHNSONVICE CHAIR
Trustee or director, Officer
2$0
SUE PESCHIN THRU 624SECRETARY
Trustee or director, Officer
2$0
NORM LINSKY THRU 624TREASURER
Trustee or director, Officer
2$0
CHRISTINA REKASHDIRECTOR
Trustee or director
2$0
CHANDRA BRANHAMDIRECTOR
Trustee or director
2$0
ELIZABETH PERPETUA DNPDIRECTOR
Trustee or director
2$0
DAVID ANDELMANDIRECTOR
Trustee or director
2$0
WAYNE BATCHELORDIRECTOR
Trustee or director
2$0
DONALD MAYDIRECTOR
Trustee or director
2$0
MARK RUSSO MDDIRECTOR
Trustee or director
2$0
MARILYN SERAFINIDIRECTOR
Trustee or director
2$0
VINOD THOURANIDIRECTOR
Trustee or director
2$0
LINDSAY VIDENIEKSEXECUTIVE DIRECTOR (THRU SEP 2024)
Officer
2$0
KARISSA CHARLESEXECUTIVE DIRECTOR (FROM OCT 2024)
Officer
2$0
990 for the year ended December 31, 2023: 15 people
NameTitleHours / weekCompensationOther / benefits
JOHN LEWISEXECUTIVE DIRECTOR (THRU 4/2023)
Officer
40$43,349$8,414
DONNETTE SMITHCHAIR
Trustee or director, Officer
2$0$0
TERESA WRIGHT-JOHNSONVICE CHAIR
Trustee or director, Officer
2$0$0
SUE PESCHINSECRETARY
Trustee or director, Officer
2$0$0
NORM LINSKYTREASURER
Trustee or director, Officer
2$0$0
CHRISTINA REKASHDIRECTOR
Trustee or director
2$0$0
CHANDRA BRANHAMDIRECTOR
Trustee or director
2$0$0
ELIZABETH PERPETUA DNPDIRECTOR
Trustee or director
2$0$0
DAVID ANDELMANDIRECTOR
Trustee or director
2$0$0
WAYNE BATCHELORDIRECTOR
Trustee or director
2$0$0
DONALD MAYDIRECTOR
Trustee or director
2$0$0
MARK RUSSO MDDIRECTOR
Trustee or director
2$0$0
MARILYN SERAFINIDIRECTOR
Trustee or director
2$0$0
VINOD THOURANIDIRECTOR
Trustee or director
2$0$0
LINDSAY VIDENIEKSEXECUTIVE DIRECTOR (FROM 8/2023)
Officer
2$0$0

Address and contacts

Address (IRS master file)
100 M ST SE STE 600, WASHINGTON, DC 20003-3648
In care of
% MR CHRIS MAY
Principal officer (990 for 2024)
KARISSA CHARLES, 100 M ST SE 600, WASHINGTON, DC 20003
Signed the 990
KARISSA CHARLES, EXECUTIVE DIRECTOR
Phone
(703) 929-3706
990-N for 2016 filed under this EIN
Most likely by a chapter, club or affiliate (it says receipts are normally $50,000 or less). Officer: CHRIS MAY, 601 13TH ST NW, WASHINGTON DC 20005. Mailing address: 700 5TH ST NW 2ND FLOOR, WASHINGTON DC 20001. Website: http://www.heartvalvevoice-us.org/
Return prepared by
WEGNER CPAS LLP

Mission

HEART VALVE VOICE US IS A NONPROFIT PATIENT ADVOCACY ORGANIZATION. WE ADVOCATE FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE.

990 for the year ended December 31, 2024

Program accomplishments

  • PATIENT COMMUNITY BUILDING AND AWARENESS: HEART VALVE VOICE BUILT THE MY VALVE MY VOICE PATIENT COMMUNITY AND DEVELOPED RELATED SOCIAL MEDIA, VIDEO, AND OTHER CAMPAIGNS TO ENGAGE PATIENTS AND RAISE AWARENESS OF HEART VALVE DISEASE. THIS WAS FUNDED BY AN EVERY HEARTBEAT MATTERS GRANT FROM THE EDWARDS LIFESCIENCES FOUNDATION.VALVE IN RESEARCH: WITH A EUGENE WASHINGTON ENGAGEMENT AWARD FROM THE PATIENT CENTERED OUTCOMES RESEARCH INSTITUTE. HEART VALVE VOICE US INITIATED A VIRTUAL TRAINING PROGRAM FOR PATIENTS TO BECOME RESEARCH ADVISORS.
    Expenses $137,804 · grants $1,000 · revenue $86,900

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
81-4459237
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2017
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$139,817
Income (IRS master file)
$233,521

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$233,521$234,377$139,817XML
990December 2023$256,261$232,389$151,932XML
990December 2022$358,043$373,741$124,851IRS
990December 2021–––IRS
990December 2020–––IRS
990December 2018–––IRS
990-N for 2016
Officer: CHRIS MAY
Filed under this EIN, most likely by a chapter or affiliate
December 31, 2016≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-4459237).

Questions about HEART VALVE VOICE US

What is the EIN of HEART VALVE VOICE US?
The employer identification number (EIN) of HEART VALVE VOICE US is 81-4459237.
Is HEART VALVE VOICE US tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2017.
Are donations to HEART VALVE VOICE US tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does HEART VALVE VOICE US file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of HEART VALVE VOICE US due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did HEART VALVE VOICE US last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of HEART VALVE VOICE US?
The 990 for the year ended December 31, 2024 names KARISSA CHARLES.
Who are the officers and directors of HEART VALVE VOICE US?
The 990 for the year ended December 31, 2024 lists 15 people; 0 received compensation from the organization.
How much revenue does HEART VALVE VOICE US have?
On its 990 for the year ended December 31, 2024 it reported revenue of $233,521, expenses of $234,377 and total assets of $139,817 at year end.

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