Nonprofit · EIN 81-4269135
NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC
Tax-exempt (reinstated) · DURHAM, NC 27703
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $25,174 | $29,152 | -$3,978 | $1,064 | $1,758 | -$694 |
| December 31, 2024 | 990-EZ | $40,000 | $122,787 | -$82,787 | $3,956 | $672 | $3,284 |
| December 31, 2023 | 990-EZ | $170,927 | $138,777 | $32,150 | $86,071 | – | $86,071 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $25,174
Expenses
- Compensation of officers, directors and key employees
- $26,574
- Professional fees and payments to contractors
- $28,332
- Other expenses
- $820
- Program services (functional)
- $26,902
Balance sheet and other
- Total assets, start of year
- $3,956
- Total assets, end of year
- $1,064
- Total liabilities, end of year
- $1,758
- Net assets, end of year
- -$694
- Cash, savings and investments
- $326
- Gross receipts
- $25,174
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TARA J BRITT | PRESIDENT | 40 | $26,574 |
990-EZ for the year ended December 31, 2024: 1 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TARA J BRITT | PRESIDENT | 40 | $85,200 |
990-EZ for the year ended December 31, 2023: 1 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TARA J BRITT | PRESIDENT | 40 | $20,500 |
Address and contacts
- Address (IRS master file)
- 501 FINSBURY ST APT 304, DURHAM, NC 27703-8218
- Signed the 990-EZ
- TARA J BRITT, PRESIDENT
- Phone
- (919) 417-6130
- Website
- RDII.ORG
- Return prepared by
- JOHN D THORNTON CPA PLLC
Mission
TO FOCUS ON EDUCATING, ENGAGING, AND EQUIPPING THE RARE DISEASE COMMUNITY. THROUGH POLICY, TOOLS, AND DATA WE ACHIEVE A HIGHER QUALITY OF LIFE, ACCELERATING DIAGNOSIS AND ENABLING ACCESS AND TREATMENT.
Program accomplishments
- TO PROVIDE EDUCATION AND MENTORING OPPORTUNITIES TO THE RARE DISEASE COMMUNITYExpenses $26,574
- TO PROVIDE EDUCATIONAL AND MENTORING OPPORTUNITIES TO THE RARE DISEASE COMMUNITYExpenses $328
What it must file and when
IRS records say it files Form 990-N (e-Postcard). Gross receipts normally $50,000 or less. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 81-4269135
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2020
- Accounting year ends
- December
- Files
- Form 990-N (e-Postcard)
- Category (NTEE)
- Medical research (H12)
- Assets (IRS master file)
- $1,064
- Income (IRS master file)
- $25,174
Revocation and reinstatement
- Exemption revoked
- May 15, 2019
- Posted by the IRS
- August 12, 2019
- Reinstated
- Effective May 15, 2019
From the IRS automatic revocation list: organizations that did not file a required return or e-Postcard for three consecutive years.
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $25,174 | $29,152 | $1,064 | IRS |
| 990-EZ | December 2024 | $40,000 | $122,787 | $3,956 | XML |
| 990-EZ | December 2023 | $170,927 | $138,777 | $86,071 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-4269135).
Questions about NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC
- What is the EIN of NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC?
- The employer identification number (EIN) of NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC is 81-4269135.
- Is NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC tax-exempt?
- Yes. The IRS revoked its exemption on May 15, 2019 and reinstated it effective May 15, 2019.
- Are donations to NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC file?
- Form 990-N (e-Postcard). Gross receipts normally $50,000 or less.
- When is the next return of NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC?
- The 990-EZ for the year ended December 31, 2025 lists 1 person; 1 received compensation from the organization, the highest $26,574 (TARA J BRITT, PRESIDENT).
- How much revenue does NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $25,174, expenses of $29,152 and total assets of $1,064 at year end.
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