Nonprofit · EIN 81-2235818
PURA SYNDROME FOUNDATION
Tax-exempt · BERWICK, ME 03901
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $256,460 | $107,971 | $148,489 | $555,907 | $15,059 | $540,848 |
| December 31, 2024 | 990-EZ | $94,004 | $68,968 | $25,036 | $389,883 | $15,059 | $374,825 |
| December 31, 2023 | 990-EZ | $46,366 | $71,578 | -$25,212 | $364,848 | $15,059 | $349,789 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $255,301
- Program service revenue
- $0
- Investment income
- $1,159
- Net gain from sales of assets
- $1,150
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $827
- Program services (functional)
- $92,871
- Management and general (functional)
- $15,100
Balance sheet and other
- Total assets, start of year
- $389,883
- Total assets, end of year
- $555,907
- Total liabilities, end of year
- $15,059
- Net assets, end of year
- $540,848
- Net assets without donor restrictions
- $540,848
- Gross receipts
- $256,460
- Employees
- 0
- Volunteers
- 8
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Eva Tucker | Co President Trustee or director, Officer | 20 | $0 |
| Elizabeth Astridge | Co President Trustee or director, Officer | 20 | $0 |
| Melissa Vaught | Vice President Trustee or director, Officer | 10 | $0 |
| Kris Magill | Secretary Trustee or director, Officer | 10 | $0 |
| Damon Fisher | Treasurer Trustee or director, Officer | 10 | $0 |
| Celena Lozano | At Large Trustee or director | 10 | $0 |
| Eva Kittay | At Large Trustee or director | 10 | $0 |
| Nancy Boccia | At Large Trustee or director | 10 | $0 |
| Kevin Roche | Ex-Officio Trustee or director | 1 | $0 |
990-EZ for the year ended December 31, 2024: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Elizabeth Astridge | Co-President | 20 | $0 |
| Eva Tucker | Co-President | 20 | $0 |
| Melissa Vaught | Vice President | 10 | $0 |
| Damon Fisher | Treasurer | 10 | $0 |
| Eva Kittay | At Large | 10 | $0 |
| Nancy Boccia | At Large | 10 | $0 |
990-EZ for the year ended December 31, 2023: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Eva Tucker | Co-President | 20 | $0 |
| Liz Astridge | Co-President | 20 | $0 |
| Damon Fisher | Treasurer | 10 | $0 |
| Melissa Vaught | At Large | 10 | $0 |
| Mel Wardaugh | At Large | 10 | $0 |
| Caroline Thorpe | At Large | 10 | $0 |
| Eva Kittay | At Large | 10 | $0 |
| Nancy Boccia | At Large | 10 | $0 |
Address and contacts
- Address (IRS master file)
- 3 LITTLE HARBOR RD, BERWICK, ME 03901-2456
- In care of
- % HEATHER BOWLE
- Principal officer (990 for 2025)
- Damon Fisher, 3 Little Harbor Road, Berwick, ME 03901
- Signed the 990
- Damon Fisher, Treasurer
- Phone
- (512) 413-2460
- Website
- purasyndrome.org
- 990-N for 2016 filed under this EIN
- Most likely by a chapter, club or affiliate (it says receipts are normally $50,000 or less). Officer: Damon Fisher, 129 Shelf Rock Road, Driftwood TX 78619. Mailing address: 3 Little Harbor Road, Berwick ME 03901. Website: www.purasyndrome.org
- Return prepared by
- MONTEMAYOR BRITTON BENDER CAREY PC
Mission
To serve, educate, and fund research for families coping with the effects of PURA Syndrome.
Program accomplishments
- Medical and research professionals and other interested attendees from around the world to gather together. Families and medical specialists had the chance to meet each other, sharing information and ideas.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 81-2235818
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2016
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H11)
- Assets (IRS master file)
- $555,907
- Income (IRS master file)
- $256,460
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $256,460 | $107,971 | $555,907 | IRS |
| 990-EZ | December 2024 | $94,004 | $68,968 | $389,883 | IRS |
| 990-EZ | December 2023 | $46,366 | $71,578 | $364,848 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2019 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
| 990-N for 2016 Officer: Damon Fisher Filed under this EIN, most likely by a chapter or affiliate | December 31, 2016 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-2235818).
Questions about PURA SYNDROME FOUNDATION
- What is the EIN of PURA SYNDROME FOUNDATION?
- The employer identification number (EIN) of PURA SYNDROME FOUNDATION is 81-2235818.
- Is PURA SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2016.
- Are donations to PURA SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does PURA SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of PURA SYNDROME FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did PURA SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of PURA SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2025 names Damon Fisher.
- Who are the officers and directors of PURA SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 9 people; 0 received compensation from the organization.
- How much revenue does PURA SYNDROME FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $256,460, expenses of $107,971 and total assets of $555,907 at year end.
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