Nonprofit · EIN 81-2216511
TATTON BROWN RAHMAN SYNDROME COMMUNITY INC
Tax-exempt · STANFORDVILLE, NY 12581
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $349,738 | $329,642 | $20,096 | $781,995 | $91,327 | $690,668 |
| December 31, 2024 | 990 | $270,669 | $399,562 | -$128,893 | $691,528 | $20,956 | $670,572 |
| December 31, 2023 | 990 | $309,002 | $333,744 | -$24,742 | $868,444 | $68,979 | $799,465 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $314,482
- Program service revenue
- $12,870
- Investment income
- $22,386
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $84,000
- Compensation of officers, directors and key employees
- $76,000
- Other salaries and wages
- $62,472
- Salaries, compensation and benefits (total)
- $158,246
- Professional fundraising fees
- $0
- Accounting fees
- $12,339
- Travel
- $12,571
- Program services (functional)
- $267,977
- Management and general (functional)
- $34,502
- Fundraising (functional)
- $27,163
Balance sheet and other
- Total assets, start of year
- $691,528
- Total assets, end of year
- $781,995
- Total liabilities, end of year
- $91,327
- Net assets, end of year
- $690,668
- Net assets without donor restrictions
- $667,290
- Net assets with donor restrictions
- $23,378
- Gross receipts
- $349,738
- Employees
- 2
- Volunteers
- 16
- Year formed
- 2017
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Jill Kiernan | Executive Director Officer | 40 | $76,000 | $2,280 |
| Kacee Richter | President Trustee or director, Officer | 10 | $0 | $0 |
| Kerry Grens | Vice President Trustee or director, Officer | 5 | $0 | $0 |
| Erin Rooker | Marketing Manager Trustee or director, Officer | 5 | $0 | $0 |
| Robert Thibodeau | Director Trustee or director | 1 | $0 | $0 |
| Tim Bernier | Treasurer Trustee or director, Officer | 5 | $0 | $0 |
| Zoe Wisnoski | Secretary Trustee or director, Officer | 1 | $0 | $0 |
| Monic Bejano | Director Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2024: 8 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Jill Kiernan | Executive Director Officer | 40 | $76,650 | $2,280 |
| Robert Thibodeau | Director Trustee or director | 1 | $0 | $0 |
| Zoe Wisnoski | Director Trustee or director | 1 | $0 | $0 |
| Monic Bejano | Director Trustee or director | 1 | $0 | $0 |
| Kacee Richter | President Trustee or director, Officer | 10 | $0 | $0 |
| Kerry Grens | Vice President Trustee or director, Officer | 5 | $0 | $0 |
| Erin Rooker | Marketing Manager Trustee or director, Officer | 5 | $0 | $0 |
| Thomas Watson | Treasurer Trustee or director, Officer | 5 | $0 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Jill Kiernan | Executive Director Officer | 40 | $73,433 | $2,185 |
| Jennifer York Isaacs | Secretary Trustee or director, Officer | 5 | $0 | $0 |
| Thomas Watson | Treasurer Trustee or director, Officer | 5 | $0 | $0 |
| Kacee Richter | President Trustee or director, Officer | 10 | $0 | $0 |
| Kerry Grens | Vice President Trustee or director, Officer | 5 | $0 | $0 |
| Erin Rooker | Marketing Manager Trustee or director, Officer | 5 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 122 HUNNS LAKE RD, STANFORDVILLE, NY 12581-5510
- In care of
- % JILL KIERNAN
- Mailing address (990-N for 2019)
- 122 Hunns Lake Road, Stanfordville NY 12581
- Principal officer (990 for 2025)
- Jill Kiernan, 122 Hunns Lake Road, Stanfordville, NY 12581
- Principal officer (990-N for 2019)
- Jill Rae Kiernan, 122 Hunns Lake Road, Stanfordville NY 12581
- Signed the 990
- JILL KIERNAN, Executive Director
- Phone
- (845) 264-3016
- Website
- tbrsyndrome.org
- Return prepared by
- Mullins PC
Mission
TBRS Community aims to support all families affected by TBRS and advance research toward interventions.
Program accomplishments
- Research: TBRS-funded research led to potentially lifesaving clinical discoveries, improving monitoring for key health risks. Through our biorepository (45 patient samples) and funded TBRS models, we removed barriers for scientists by providing essential tools for biomarker discovery and treatment development. These efforts have made it easier and faster for researchers to step into TBRS studies, expanding research participation and increasing treatment development potential.Expenses $115,642 · grants $84,000
- Collaborative Research Network: Over the past year, the TBRS Community expanded its Collaborative Research Network (CRN) by fostering cross-disciplinary partnerships, centralizing data, and prioritizing patient-driven research goals. We increased the TBRS Patient Registry to over 200 participants, making it a vital resource for scientific discovery. Additionally, we developed a strategic research roadmap to guide efforts toward clinical outcomes and ensure open access to data, accelerating the path toward effective treatments.Expenses $95,845
- Education: In the past year, the TBRS Community delivered critical education and advocacy programs, including: Raising awareness of seizures, cardiac concerns, and cancer risks through scientific publications and advocacy efforts. Launching a Future Planning Series with expert-led sessions on long-term care, financial planning, and adult services, supporting families in making informed decisions. Hosting family education webinars, social groups, and parent support networks, strengthening community connections and equipping families with research and clinical insights.Expenses $56,490 · revenue $12,870
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 81-2216511
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2017
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G20)
- Assets (IRS master file)
- $781,995
- Income (IRS master file)
- $349,738
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $349,738 | $329,642 | $781,995 | XML |
| 990 | December 2024 | $270,669 | $399,562 | $691,528 | XML |
| 990 | December 2023 | $309,002 | $333,744 | $868,444 | XML |
| 990 | December 2022 | $165,360 | $157,087 | $832,865 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-N for 2019 Officer: Jill Rae Kiernan | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-2216511).
Questions about TATTON BROWN RAHMAN SYNDROME COMMUNITY INC
- What is the EIN of TATTON BROWN RAHMAN SYNDROME COMMUNITY INC?
- The employer identification number (EIN) of TATTON BROWN RAHMAN SYNDROME COMMUNITY INC is 81-2216511.
- Is TATTON BROWN RAHMAN SYNDROME COMMUNITY INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2017.
- Are donations to TATTON BROWN RAHMAN SYNDROME COMMUNITY INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does TATTON BROWN RAHMAN SYNDROME COMMUNITY INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of TATTON BROWN RAHMAN SYNDROME COMMUNITY INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did TATTON BROWN RAHMAN SYNDROME COMMUNITY INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of TATTON BROWN RAHMAN SYNDROME COMMUNITY INC?
- The 990 for the year ended December 31, 2025 names Jill Kiernan.
- Who are the officers and directors of TATTON BROWN RAHMAN SYNDROME COMMUNITY INC?
- The 990 for the year ended December 31, 2025 lists 8 people; 1 received compensation from the organization, the highest $76,000 (Jill Kiernan, Executive Director).
- How much revenue does TATTON BROWN RAHMAN SYNDROME COMMUNITY INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $349,738, expenses of $329,642 and total assets of $781,995 at year end.
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