Nonprofit · EIN 77-0552005
KENNEDYS DISEASE ASSOCIATION
Tax-exempt · ATLANTA, GA 30318
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $745,674 | $1,099,089 | -$353,415 | $532,282 | $335,569 | $196,713 |
| December 31, 2024 | 990 | $679,008 | $669,795 | $9,213 | $879,080 | $328,952 | $550,128 |
| December 31, 2023 | 990 | $454,537 | $499,149 | -$44,612 | $761,855 | $245,940 | $515,915 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $740,506
- Program service revenue
- $0
- Investment income
- $23,556
- Net income from fundraising events
- -$18,388
- Other revenue
- -$18,388
Expenses
- Grants and similar amounts paid
- $991,831
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $57,871
- Accounting fees
- $14,680
- Travel
- $867
- Program services (functional)
- $1,003,105
- Management and general (functional)
- $24,238
- Fundraising (functional)
- $71,746
Balance sheet and other
- Total assets, start of year
- $879,080
- Total assets, end of year
- $532,282
- Total liabilities, end of year
- $335,569
- Net assets, end of year
- $196,713
- Publicly traded securities
- $352,167
- Net assets without donor restrictions
- $160,553
- Net assets with donor restrictions
- $36,160
- Gross receipts
- $764,062
- Employees
- 0
- Volunteers
- 162
- Year formed
- 2000
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TERRY THOMPSON | PRESIDENT Trustee or director, Officer | 20 | $0 |
| JAMESON PARKER | VICE PRESIDE Trustee or director, Officer | 5 | $0 |
| JOHN LAUBER | TREASURER Trustee or director, Officer | 20 | $0 |
| KATHY THOMPSON | SECRETARY Trustee or director, Officer | 15 | $0 |
| NICK HOLDGATE | BOARD MEMBER Trustee or director | 3 | $0 |
| RON MOFFETT | BOARD MEMBER Trustee or director | 8 | $0 |
| LEW MYERS | BOARD MEMBER Trustee or director | 12 | $0 |
| STEVEN RITTMASTER | BOARD MEMBER Trustee or director | 2 | $0 |
| PETE SARIANO | BOARD MEMBER Trustee or director | 3 | $0 |
| JOAN SORENSEN | BOARD MEMBER Trustee or director | 4 | $0 |
| DALE TRAXLER | BOARD MEMBER Trustee or director | 2 | $0 |
| RANDY SOO HOO | FORMER BOARD Trustee or director | 6 | $0 |
| SIMON HILL | FORMER BOARD Trustee or director | 6 | $0 |
990 for the year ended December 31, 2024: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TERRY THOMPSON | PRESIDENT Trustee or director, Officer | 20 | $0 |
| JAMESON PARKER | VICE PRESIDE Trustee or director, Officer | 5 | $0 |
| JOHN LAUBER | TREASURER Trustee or director, Officer | 12 | $0 |
| KATHY THOMPSON | SECRETARY Trustee or director, Officer | 20 | $0 |
| STEVEN RITTMASTER | BOARD MEMBER Trustee or director | 2 | $0 |
| RON MOFFETT | BOARD MEMBER Trustee or director | 3 | $0 |
| SIMON HILL | BOARD MEMBER Trustee or director | 6 | $0 |
| DALE TRAXLER | BOARD MEMBER Trustee or director | 2 | $0 |
| JOAN SORENSEN | BOARD MEMBER Trustee or director | 4 | $0 |
| RANDY SOO HOO | BOARD MEMBER Trustee or director | 6 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| TERRY THOMPSON | PRESIDENT Trustee or director, Officer | 20 | $0 |
| JAMESON PARKER | VICE PRESIDE Trustee or director, Officer | 5 | $0 |
| DAVID YELTON JAN - NOV | TREASURER Trustee or director, Officer | 5 | $0 |
| SIMON HILL | SECRETARY, D Trustee or director, Officer | 2 | $0 |
| JOHN LAUBER DEC | TREASURER Trustee or director, Officer | 2 | $0 |
| RON MOFFET | DIRECTOR Trustee or director | 15 | $0 |
| KATHY THOMPSON | DIRECTOR,SEC Trustee or director, Officer | 2 | $0 |
| STEVEN RITTMASTER | DIRECTOR Trustee or director | 2 | $0 |
| DALE TRAXLER | DIRECTOR Trustee or director | 2 | $0 |
| RANDY SOOHOO | DIRECTOR Trustee or director | 2 | $0 |
| JOAN SORENSEN | DIRECTOR Trustee or director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 1445 WOODMONT LN NW UNIT 1805, ATLANTA, GA 30318-2866
- In care of
- % SUSANNE WAITE
- Principal officer (990 for 2025)
- TERRY THOMPSON, 1445 WOODMONT LN NW UNIT 1805, ATLANTA, GA 30318
- Signed the 990
- TERRY THOMPSON, PRESIDENT
- Phone
- (855) 532-7762
- Website
- WWW.KENNEDYSDISEASE.ORG
- Return prepared by
- COLE NEWTON & DURAN CPAS
Mission
TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY).
Program accomplishments
- TO FURTHER RESEARCH TO FIND A CURE AND/OR TREATMENT FOR KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY).Expenses $931,000 · grants $931,000
- TO PROVIDE SUPPORT FOR THOSE WHO HAVE, OR ARE A CARRIER OF, KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY) AND THEIR FAMILY MEMBERS AND CAREGIVERS.Expenses $8,209
- TO PROVIDE EDUCATION AND INFORMATION REGARDING KENNEDY'S DISEASE (SPINAL AND BULBAR MUSCULAR ATROPHY).Expenses $63,896 · grants $60,831
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 77-0552005
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2000
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H50)
- Assets (IRS master file)
- $532,282
- Income (IRS master file)
- $764,062
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $745,674 | $1,099,089 | $532,282 | XML |
| 990 | December 2024 | $679,008 | $669,795 | $879,080 | IRS |
| 990 | December 2023 | $454,537 | $499,149 | $761,855 | XML |
| 990 | December 2022 | $349,920 | $195,977 | $764,527 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 77-0552005).
Questions about KENNEDYS DISEASE ASSOCIATION
- What is the EIN of KENNEDYS DISEASE ASSOCIATION?
- The employer identification number (EIN) of KENNEDYS DISEASE ASSOCIATION is 77-0552005.
- Is KENNEDYS DISEASE ASSOCIATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2000.
- Are donations to KENNEDYS DISEASE ASSOCIATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does KENNEDYS DISEASE ASSOCIATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of KENNEDYS DISEASE ASSOCIATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did KENNEDYS DISEASE ASSOCIATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of KENNEDYS DISEASE ASSOCIATION?
- The 990 for the year ended December 31, 2025 names TERRY THOMPSON.
- Who are the officers and directors of KENNEDYS DISEASE ASSOCIATION?
- The 990 for the year ended December 31, 2025 lists 13 people; 0 received compensation from the organization.
- How much revenue does KENNEDYS DISEASE ASSOCIATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $745,674, expenses of $1,099,089 and total assets of $532,282 at year end.
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