Nonprofit · EIN 77-0324654
NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC
Tax-exempt · SPRINGFIELD, IL 62704
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| May 31, 2025 | 990 | $4,611,461 | $4,347,793 | $263,668 | $3,466,501 | $676,312 | $2,790,189 |
| May 31, 2024 | 990 | $4,112,403 | $4,283,585 | -$171,182 | $3,259,159 | $800,102 | $2,459,057 |
Financial details: 990 for the year ended May 31, 2025
Revenue
- Contributions, gifts and grants
- $3,686,955
- of which government grants
- $3,666,955
- Program service revenue
- $802,259
- Investment income
- $105,804
- Net gain from sales of assets
- $17,694
- Other revenue
- $16,443
Expenses
- Grants and similar amounts paid
- $392,746
- Compensation of officers, directors and key employees
- $789,916
- Other salaries and wages
- $1,073,642
- Salaries, compensation and benefits (total)
- $2,228,542
- Professional fundraising fees
- $0
- Legal fees
- $11,989
- Occupancy
- $44,729
- Travel
- $142,985
- Depreciation
- $55,233
- Program services (functional)
- $3,447,164
- Management and general (functional)
- $900,629
Balance sheet and other
- Total assets, start of year
- $3,259,159
- Total assets, end of year
- $3,466,501
- Total liabilities, end of year
- $676,312
- Net assets, end of year
- $2,790,189
- Land, buildings and equipment
- $278,375
- Publicly traded securities
- $1,574,644
- Net assets without donor restrictions
- $2,790,189
- Gross receipts
- $4,676,469
- Employees
- 14
- Volunteers
- 453
- Year formed
- 1987
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended May 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| BETSY KOHLER THRU 11142024 | EXECUTIVE DIRECTOR Officer | 37.5 | $260,803 | $15,305 |
| KAREN KNIGHT | EXECUTIVE DIRECTOR Officer | 37.5 | $163,770 | $40,383 |
| CHARLIE BLACKBURN | CHIEF OPERATING OFFICER Officer | 37.5 | $171,778 | $25,041 |
| STEPHANIE HILL | ASSOCIATE DIRECTOR Officer | 37.5 | $170,956 | $22,362 |
| CASTINE CLERKIN | PROGRAM MANAGER Highest-paid employee | 37.5 | $133,169 | $29,954 |
| JIM HOFFERKAMP | PROGRAM MANAGER Highest-paid employee | 37.5 | $139,505 | $23,350 |
| ADELE HILEMAN | CONTROLLER Highest-paid employee | 37.5 | $137,019 | $25,134 |
| LORI HAVENER | PROGRAM MANAGER Highest-paid employee | 37.5 | $125,497 | $30,063 |
| FERNANDA SILVA MICHELS | PROGRAM MANAGER Highest-paid employee | 37.5 | $107,979 | $20,208 |
| WENDY ALDINGER | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| ERIC DURBIN | PRESIDENT-ELECT Trustee or director, Officer | 1 | $0 | $0 |
| KEVIN WARD | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| LORI SWAIN | SMO REPRESENTATIVE Trustee or director | 1 | $0 | $0 |
| VALERIE SOMMA | REP AT LARGE Trustee or director | 1 | $0 | $0 |
| JOSHUA MAZURYK | REP AT LARGE Trustee or director | 1 | $0 | $0 |
4 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LIHUA LIU | REP AT LARGE Trustee or director | 1 | $0 |
| BOZENA MORAWSKI | REP AT LARGE Trustee or director | 1 | $0 |
| LORI KOCH | REP AT LARGE Trustee or director | 1 | $0 |
| SARAH NASH | REP AT LARGE Trustee or director | 1 | $0 |
990 for the year ended May 31, 2024: 18 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| BETSY KOHLER | EXECUTIVE DIRECTOR Officer | 37.5 | $241,942 | $20,119 |
| CHARLIE BLACKBURN | CHIEF OPERATING OFFICE Officer | 37.5 | $164,954 | $23,894 |
| STEPHANIE HILL | ASSOCIATE DIRECTOR Officer | 37.5 | $164,036 | $21,155 |
| KAREN KNIGHT | CHIEF OF REGISTRY DEVELOPMENT Highest-paid employee | 37.5 | $146,592 | $37,365 |
| CASTINE CLERKIN | PROGRAM MANAGER Highest-paid employee | 37.5 | $129,052 | $28,182 |
| ADELE HILEMAN | CONTROLLER Highest-paid employee | 37.5 | $132,260 | $24,183 |
| JIM HOFFERKAMP | PROGRAM MANAGER Highest-paid employee | 37.5 | $134,063 | $22,209 |
| FERNANDA SILVA MICHELS | PROGRAM MANAGER Highest-paid employee | 37.5 | $103,512 | $19,006 |
| WENDY ALDINGER | PRESIDENT Trustee or director | 1 | $0 | $0 |
| WINNY ROSHALA | PAST-PRESIDENT Trustee or director | 1 | $0 | $0 |
| KEVID WARD | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| LORI SWAIN | SMO REPRESENTATIVE Trustee or director | 1 | $0 | $0 |
| MONIQUE HERNANDEZ | REP-AT-LARGE Trustee or director | 1 | $0 | $0 |
| JOSHUA MAZURYK | REP-AT-LARGE Trustee or director | 1 | $0 | $0 |
| LIHUA LIU | REP-AT-LARGE Trustee or director | 1 | $0 | $0 |
| BOZENA MORAWSKI | REP-AT-LARGE Trustee or director | 1 | $0 | $0 |
| LORI KOCH | REP-AT-LARGE Trustee or director | 1 | $0 | $0 |
| SARAH NASH | REP-AT-LARGE Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 2050 W ILES AVE STE A, SPRINGFIELD, IL 62704-4194
- Principal officer (990 for 2024)
- KAREN KNIGHT, 2050 W ILES STE A, SPRINGFIELD, IL 62704
- Signed the 990
- CHARLIE BLACKBURN, CHIEF OPERATING OFFICER
- Phone
- (217) 698-0800
- Website
- WWW.NAACCR.ORG
- Return prepared by
- SIKICH LLC
Mission
NAACCR INC. IS A COLLABORATIVE UMBRELLA ORGANIZATION FOR CANCER REGISTRIES, GOVERNMENTAL AGENCIES, PROFESSIONAL ASSOCIATIONS AND PRIVATE GROUPS IN NORTH AMERICA INTERESTED IN ENHANCING THE QUALITY AND USE OF CANCER REGISTRY DATA.
Program accomplishments
- NCI CONTRACT - THE PURPOSE OF THE NCI CONTRACT IS TO ENHANCE NATIONAL CANCER SURVEILLANCE EFFORTS IN THREE SPECIFIC AREAS: 1. STRENGTHEN THE NATIONAL CAPACITY FOR COLLECTING, ANALYZING, AND USING COMPARABLE CANCER REGISTRY DATA FOR CANCER SURVEILLANCE AND RESEARCH. 2. DEVELOP AND IMPROVE METHODS FOR ASSESSING THE QUALITY AND COMPARABILITY OF CANCER REGISTRY DATA. THIS INCLUDES, BUT IS NOT LIMITED TO TIMELINESS, COMPLETENESS, AND ACCURACY. 3. IMPROVE THE EFFICIENCY AND QUALITY OF REGISTRY OPERATIONS THROUGH PROMOTING ESTABLISHED STANDARDS, DISSEMINATING TECHNICAL INFORMATION, AND FACILITATING COLLAOBRATION AMONG FEDERAL, STATE, PROVINCIAL AND LOCAL REGISTRY PROFESSIONALS.Expenses $1,207,908 · revenue $74,697
- NATIONAL CHILDHOOD CANCER REGISTRY (NCCR) - THE PURPOSE OF THIS TASK ORDER IS TO CREATE A COORDINATING CENTER SUPPORTING THE NCCR - AN AGGREGATED NATIONAL LEVEL CHILDHOOD CANCER PATIENT DATABASE IN PARTNERSHIP WITH MANY LEADING PEDIATRIC ONCOLOGY ORGANIZATIONS ACROSS THE U.S.Expenses $926,062 · grants $339,700 · revenue $57,267
- CONFERENCES AND WEBINARS -NON-FEDERAL PROGRAMS INCLUDING A YEAR- LONG MONTHLY WEBINAR SERIES SUPPORTING AND TRAINING IN CASE ABSTRACTING AND PROCESSING OF CANCER RECORDS PROVIDING CONTINUING EDUCATION CREDITS TO THE CANCER REGISTRAR COMMUNITY. ALSO INCLUDES THE NAACCR ANNUAL CONFERENCE WHICH IS THE ANNUAL SCIENTIFIC MEETING OF THE CANCER SURVEILLANCE COMMUNITY EITHER IN-PERSON OR VIRTUALLY. ADDITIONAL WORKSHOP COURSES ARE USUALLY PROVIDED AS ADJACENT EVENTS. ODS EXAM PREP AND REVIEW WEBINAR SERIES IS ALSO PROVIDED THREE TIMES PER YEAR WITH LIVE INTERACTIVE INSTRUCTION.Expenses $574,961 · revenue $641,086
- THE PURPOSE OF THE VIRTUAL POOLED REGISTRY CANCER LINKAGE SYSTEM (VPR-CLS) PROJECT SHALL EXPAND INTO A SCALED-UP EFFORT TO FACILITATE LINKAGES WITH CENTRAL CANCER REGISTRIES USING THE VPR-CLS. IT WILL ALSO CONTINUE TO REFINE A CAPACITY SIMILAR TO THE NATIONAL DEATH INDEX WITHOUT THE NEED TO CREATE AN AGGREGATED NATIONAL LEVEL CANCER PATIENT DATABASE. THE VPR-CLS WILL PROVIDE RESEARCHERS WITH A SINGLE LOCATION AND STANDARD PROCESSES FOR AN INITIAL LINKAGE BEHIND THE FIREWALL OF MULTIPLE REGISTRIES, RECEIPT OF MATCH COUNTS, STREAMLINED APPLICATION PROCESS FOR RELEASE OF INDIVIDUAL-LEVEL REGISTRY DATA, AND TRACKING OF STUDY STATUS ACROSS REGISTRIES.Expenses $343,771 · grants $53,046 · revenue $21,259
- CDC COOPERATIVE AGREEMENT - THE TITLE OF THE PROGRAM IS THE NATIONAL PARTNERSHIPS TO PROMOTE CANCER SURVEILLANCE STANDARDS AND SUPPORT DATA QUALITY AND OPERATIONS OF NATIONAL PROGRAM OF CANCER REGISTRIES, EDUCATION, STANDARDS, AND TRANSLATION. NAACCR WORKS COLLABORATIVELY WITH NPCR LEADERSHIP TO SUPPORT THE DEVELOPMENT, PROMOTION, MAINTENANCE, AND COMMUNICATION OF DATA STANDARDS FOR POPULATION-BASED CENTRAL CANCER REGISTRATION. IMPROVE CENTRAL CANCER REGISTRY OPERATIONS THROUGH THE DEVELOPMENT AND DISSEMINATION OF DOCUMENTED BEST PRACTICES. INCREASE REPORTING VIA ELECTRONIC MECHANISMS AND MEANINGFUL USE IMPLETMENTATION.Expenses $394,462 · revenue $24,393
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in May, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | May 31, 2026 | October 15, 2026 | Not on file |
| 2024 | May 31, 2025 | October 15, 2025 | 990 on file |
| 2023 | May 31, 2024 | October 15, 2024 | 990 on file |
IRS record
- EIN
- 77-0324654
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1994
- Accounting year ends
- May
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Community improvement and capacity building (S80Z)
- Assets (IRS master file)
- $3,466,501
- Income (IRS master file)
- $4,676,469
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | May 2025 | $4,611,461 | $4,347,793 | $3,466,501 | XML |
| 990 | May 2024 | $4,112,403 | $4,283,585 | $3,259,159 | XML |
| 990 | May 2023 | $4,139,331 | $4,368,211 | $3,234,313 | IRS |
| 990 | May 2022 | – | – | – | IRS |
| 990 | May 2021 | – | – | – | IRS |
| 990 | May 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 77-0324654).
Questions about NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC
- What is the EIN of NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC?
- The employer identification number (EIN) of NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC is 77-0324654.
- Is NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1994.
- Are donations to NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC due?
- The return for tax year 2025 (the year ending May 31, 2026) is due October 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended May 2025.
- Who is the principal officer of NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC?
- The 990 for the year ended May 31, 2025 names KAREN KNIGHT.
- Who are the officers and directors of NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC?
- The 990 for the year ended May 31, 2025 lists 19 people; 9 received compensation from the organization, the highest $260,803 (BETSY KOHLER THRU 11142024, EXECUTIVE DIRECTOR).
- How much revenue does NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES INC have?
- On its 990 for the year ended May 31, 2025 it reported revenue of $4,611,461, expenses of $4,347,793 and total assets of $3,466,501 at year end.
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