Nonprofit · EIN 72-1282316
HEMOPHILIA FEDERATION OF AMERICA INC
Tax-exempt · WASHINGTON, DC 20002
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $4,510,978 | $4,033,073 | $477,905 | $7,886,811 | $1,575,788 | $6,311,023 |
| December 31, 2023 | 990 | $5,110,030 | $5,927,594 | -$817,564 | $7,762,326 | $1,998,763 | $5,763,563 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $766,135
- of which government grants
- $419,849
- Membership dues
- $21,108
- Program service revenue
- $3,536,874
- Investment income
- $207,550
- Other revenue
- $419
Expenses
- Grants and similar amounts paid
- $175,435
- Compensation of officers, directors and key employees
- $233,658
- Other salaries and wages
- $1,541,366
- Salaries, compensation and benefits (total)
- $2,036,185
- Professional fundraising fees
- $0
- Legal fees
- $17,395
- Accounting fees
- $174,667
- Occupancy
- $119,605
- Travel
- $236,751
- Program services (functional)
- $2,966,474
- Management and general (functional)
- $837,700
- Fundraising (functional)
- $228,899
Balance sheet and other
- Total assets, start of year
- $7,762,326
- Total assets, end of year
- $7,886,811
- Total liabilities, end of year
- $1,575,788
- Net assets, end of year
- $6,311,023
- Publicly traded securities
- $5,251,273
- Net assets without donor restrictions
- $6,311,023
- Gross unrelated business income
- $192,500
- Gross receipts
- $4,510,978
- Employees
- 32
- Volunteers
- 20
- Year formed
- 1994
- State of legal domicile
- LA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| DANIEL KELSEY | PRESIDENT AND CEO Officer | 40 | $210,526 | $23,132 |
| NASSIM GALE | VP OF COMMUNICATIONS Highest-paid employee | 40 | $108,836 | $12,620 |
| PATRICIA BROWN | VP OF MEETINGS, SERVICES AND DEI Highest-paid employee | 40 | $112,660 | $7,883 |
| JANET CHUPKA | VP OF EDUCATION Highest-paid employee | 40 | $106,279 | $7,036 |
| DAVE ROGERS | VP OF DEVELOPMENT Highest-paid employee | 40 | $102,644 | $7,214 |
| LUCAS RUNION | CHAIR Trustee or director, Officer | 3 | $0 | $0 |
| DIANE LIMA | VICE-CHAIR (START 4/24) Trustee or director, Officer | 3 | $0 | $0 |
| THOMAS WALLACE | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| ANNE-LOUISE WIRTHLIN | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| LYNNE CAPRETTO | DIRECTOR AND MOAC LIAISON Trustee or director | 1 | $0 | $0 |
| SHANTHI HEGDE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID HUSKIE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| RENITA JOHNSON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ASHLEY LACY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DANIEL MIKKOLA | DIRECTOR Trustee or director | 1 | $0 | $0 |
5 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| GENEVA OSTEEN | DIRECTOR (START 4/24) Trustee or director | 1 | $0 |
| JOE PUGLIESE | DIRECTOR (START 4/24) Trustee or director | 1 | $0 |
| PATRICIA SCHAKE | DIRECTOR (START 4/24) Trustee or director | 1 | $0 |
| KAILEY TOWNSEND | DIRECTOR (START 4/24) Trustee or director | 1 | $0 |
| TRACY CLEGHORN | PAST CHAIR Officer | 1 | $0 |
990 for the year ended December 31, 2023: 14 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| DANIEL KELSEY | PRESIDENT AND CEO - AS OF 04/2023 Officer | 40 | $140,373 | $17,729 |
| BARBRA KAVANAUGH | INTERIM CEO - UNTIL 04/2023 Officer | 40 | $69,924 | $0 |
| LUCAS RUNION | CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| JOSEPH MARKOWITZ | VICE-CHAIR Trustee or director, Officer | 1 | $0 | $0 |
| ANNE-LOUISE WIRTHLIN | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| GEORGE STONE | TREASURER - UNTIL 11/2023 Trustee or director, Officer | 1 | $0 | $0 |
| THOMAS WALLACE | TREASURER - AS OF 11/2023 Trustee or director, Officer | 1 | $0 | $0 |
| LYNNE CAPRETTO | DIRECTOR AND MOAC LIAISON Trustee or director | 1 | $0 | $0 |
| MARIA CHAVEZ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID HUSKIE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| RENITA JOHNSON | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DIANE LIMA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DANIEL MIKKOLA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| TRACY CLEGHORN | PAST CHAIR Officer | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 999 N CAPITOL ST NE STE 301, WASHINGTON, DC 20002-4950
- In care of
- % HEMOPHILIA FEDERATION OF AMERICA
- Principal officer (990 for 2024)
- DANIEL KELSEY, 999 NORTH CAPITOL STREET NE 301, WASHINGTON, DC 20001
- Signed the 990
- DANIEL KELSEY, PRESIDENT AND CEO
- Phone
- (202) 675-6984
- Return prepared by
- GELMAN ROSENBERG & FREEDMAN
Mission
HEMOPHILIA FEDERATION OF AMERICA IS A NATIONAL NONPROFIT ORGANIZATION THAT ASSISTS, EDUCATES, AND ADVOCATES FOR THE BLEEDING DISORDERS COMMUNITY.
Program accomplishments
- SYMPOSIUM CONFERENCE - A NATIONAL ANNUAL COMMUNITY-CERTIFICATION EDUCATIONAL CONFERENCE EVENT THAT DRAWS HUNDREDS OF PATIENTS AND THEIR FAMILIES.THIS CONFERENCE IS A PLACE WHERE COMMUNITY MEMBERS COME TOGETHER TO SHARE INFORMATION, LEARN ABOUT NEW ADVANCEMENT, AND BUILD A NETWORK OF SUPPORT.Expenses $999,591 · grants $64,162 · revenue $3,339,176
- OUTREACH - HELPS INDIVIDUALS WITH BLEEDING DISORDERS AND THEIR CAREGIVERS LEARN HOW TO BECOME ADVOCATES ON THEIR OWN BEHALF THROUGH IN-PERSON AND ONLINE TRAINING, TOOL KITS, AND WEB RESOURCES. EDUCATION AND TOOLS ARE PROVIDED TO PARTICIPATE IN MONITORING, LEARNING TO SELF-ADVOCATE, AND EDUCATING ABOUT FEDERAL AND STATE PUBLIC POLICIES THAT IMPACT THE LIVES OF PEOPLE LIVING WITH BLEEDIDNG DISORDERS. SOCIAL AND PRINT MEDIA ARE ACTIVELY UTILIZED TO EXTEND OUTREACH EFFORTS AND BRING COMMUNITY TOGETHER. FOUR PROGRAMS ARE INCLUDED IN OUTREACH: BLOOD BROTHERHOOD, BLOOD SISTERHOOD, HFA FAMILIES, AND OUTREACH EDUCATION.Expenses $593,853 · grants $36,000
- OTHER ACTIVITIES - PROVIDES EDUCATIONAL AND ARTISTIC SCHOLARSHIPS TO MEMBERS OF THE BLEEDING DISORDERS COMMUNITY, A RESOURCE GUIDE FOR THE CONSUMERS, AND MAINTAINS A WEBSITE WITH INFORMATION ABOUT THE ORGANIZATION'S PROGRAMS AND SERVICES. THE ORGANIZATION ALSO PUBLISHES A QUARTERLY NEWSLETTER CALLED "DATELINE FEDERATION". IN ADDITION, THE ORGANIZATION COVERS THE COST OF ATTENDANCE TO MEETINGS OF THE DEPARTMENT OF HEALTH AND HUMAN SERVICES, THE BLOOD PRODUCTS ADVISORY COMMITTEE OF THE FDA, AND THE ADVISORY COMMITTEE ON BLOOD SAFETY AND AVAILABILITY, AND PARTICIPATION IN CONFERENCES AT THE INVITATION OF THE CENTER FOR DISEASE CONTROL.Expenses $522,688 · grants $16,000
- GEARS FOR GOOD CHARITY BIKE RIDE - ENCOURAGES PEOPLE WITH BLEEDING DISORDERS TO LIVE HEALTHY, ACTIVE LIFESTYLES. GEARS FOR GOOD IS A CHARITY BIKE RIDE OFFERED TO RAISE FUNDS FOR THE HELPING HANDS PROGRAM. RIDERS ENJOY MEETING NEW PEOPLE AND BUILDING STRONGER FRIENDSHIPS ALONG THE WAY WHILE RAISING FUNDS FOR THIS IMPORTANT CAUSE.Expenses $357,420 · grants $2,535
- HFA RESEARCH - A COMMUNITY CENTERED, COMMUNITY FOCUSED, AND COMMUNITY DRIVEN PROGRAM AIMED AT IMPROVING THE LIVES OF BLEEDING DISORDERS COMMUNITY MEMBERS. RESEARCH TOPICS ARE IDENTIFIED BY THE COMMUNITY POPULATION AND FOCUSED ON PATIENT/COMMUNITY DATA. DATA IS COLLECTED NATIONALLY ONLINE AS WELL AS LOCALLY THROUGH HFA'S 50-PLUS MEMBER ORGANIZATIONS ACROSS THE COUNTRY.Expenses $304,007 · grants $9,500 · revenue $5,198
- HELPING HANDS - DESIGNED TO ESTABLISH A RAPID, NON-INVASIVE SOURCE OF RELIEF FOR EMERGENCY SITUATIONS FOR INDIVIDUALS AND FAMILIES IN THE BLEEDING DISORDERS COMMUNITY. EACH APPLICATION IS GIVEN CAREFUL CONSIDERATION AS TO THE PERSONAL CIRCUMSTANCES, WHILE ENSURING A MINIMUM INVASION OF PRIVACY FOR COMMUNITY MEMBERS. THE PROGRAM ALSO ASSISTS INDIVIDUALS WITH THE COSTS OF MEDICALLY NECESSARY ITEMS AND DURABLE MEDICAL EQUIPMENT.Expenses $188,915 · grants $47,238
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 72-1282316
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2000
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E70)
- Assets (IRS master file)
- $7,886,811
- Income (IRS master file)
- $4,510,978
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $4,510,978 | $4,033,073 | $7,886,811 | XML |
| 990-T | December 2024 | – | – | – | IRS |
| 990 | December 2023 | $5,110,030 | $5,927,594 | $7,762,326 | XML |
| 990-T | December 2023 | – | – | – | IRS |
| 990 | December 2022 | $5,559,810 | $5,864,407 | $6,691,676 | IRS |
| 990-T | December 2022 | – | – | – | IRS |
| 990 | December 2021 | $5,485,594 | $4,525,339 | $9,019,153 | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 72-1282316).
Questions about HEMOPHILIA FEDERATION OF AMERICA INC
- What is the EIN of HEMOPHILIA FEDERATION OF AMERICA INC?
- The employer identification number (EIN) of HEMOPHILIA FEDERATION OF AMERICA INC is 72-1282316.
- Is HEMOPHILIA FEDERATION OF AMERICA INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2000.
- Are donations to HEMOPHILIA FEDERATION OF AMERICA INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HEMOPHILIA FEDERATION OF AMERICA INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HEMOPHILIA FEDERATION OF AMERICA INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HEMOPHILIA FEDERATION OF AMERICA INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of HEMOPHILIA FEDERATION OF AMERICA INC?
- The 990 for the year ended December 31, 2024 names DANIEL KELSEY.
- Who are the officers and directors of HEMOPHILIA FEDERATION OF AMERICA INC?
- The 990 for the year ended December 31, 2024 lists 20 people; 5 received compensation from the organization, the highest $210,526 (DANIEL KELSEY, PRESIDENT AND CEO).
- How much revenue does HEMOPHILIA FEDERATION OF AMERICA INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $4,510,978, expenses of $4,033,073 and total assets of $7,886,811 at year end.
Other nonprofits in WASHINGTON
- RISANT HEALTH INC EIN 92-3467590 · last filed 990 for 2024
- CHILDRENS HOSPITAL EIN 53-0196580 · last filed 990 for 2025
- MEDICAL FACULTY ASSOCIATES INC EIN 52-2220700 · last filed 990 for 2025
- HOWARD UNIVERSITY HOSPITAL CORP EIN 87-3454381 · last filed 990 for 2025
- CHILDRENS NATIONAL EIN 52-1640403 · last filed 990 for 2025
- UNITY HEALTH CARE INC EIN 52-1572431 · last filed 990 for 2024
- CHILDRENS HOSPITAL FOUNDATION EIN 52-1640402 · last filed 990 for 2025
- NATIONAL COMMITTEE FOR QUALITY ASSURANCE EIN 52-1191985 · last filed 990 for 2025
All nonprofits in WASHINGTON · District of Columbia · Health care