Nonprofit · EIN 65-0585415
ALPHA-1 FOUNDATION INC
Also known as ALPHANET
Tax-exempt · CORAL GABLES, FL 33134
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $13,755,427 | $13,980,782 | -$225,355 | $47,454,771 | $3,427,861 | $44,026,910 |
| June 30, 2024 | 990 | $11,614,380 | $10,093,036 | $1,521,344 | $44,464,081 | $2,581,193 | $41,882,888 |
| June 30, 2023 | 990 | $10,453,299 | $8,547,943 | $1,905,356 | $37,662,654 | $2,157,188 | $35,505,466 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $10,167,916
- Program service revenue
- $329,000
- Investment income
- $3,211,865
- Net rental income
- $6,844
- Net gain from sales of assets
- $2,237,481
- Net income from fundraising events
- $39,802
- Other revenue
- $46,646
Expenses
- Grants and similar amounts paid
- $3,199,012
- Compensation of officers, directors and key employees
- $477,503
- Other salaries and wages
- $1,699,523
- Salaries, compensation and benefits (total)
- $2,627,386
- Professional fundraising fees
- $0
- Legal fees
- $547,398
- Accounting fees
- $95,093
- Occupancy
- $11,819
- Travel
- $469,748
- Depreciation
- $4,707
- Program services (functional)
- $11,790,701
- Management and general (functional)
- $1,065,170
- Fundraising (functional)
- $1,124,911
Balance sheet and other
- Total assets, start of year
- $44,464,081
- Total assets, end of year
- $47,454,771
- Total liabilities, end of year
- $3,427,861
- Net assets, end of year
- $44,026,910
- Land, buildings and equipment
- $147,738
- Publicly traded securities
- $42,752,962
- Net assets without donor restrictions
- $41,418,273
- Net assets with donor restrictions
- $2,608,637
- Gross unrelated business income
- $329,000
- Gross receipts
- $26,580,492
- Employees
- 23
- Volunteers
- 300
- Year formed
- 1995
- State of legal domicile
- FL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SCOTT SANTARELLA | PRESIDENT AND CEO Officer | 40 | $352,414 | $25,089 |
| RANDEL H PLANT | SENIOR DIRECTOR OF RESEARCH PROGRAMS Highest-paid employee | 40 | $158,473 | $22,920 |
| ANGELA T MCBRIDE | SENIOR DIRECTOR OF CORPORATE RELATIONS Highest-paid employee | 40 | $135,996 | $21,725 |
| JEANNE KUSHNER | SENIOR DIRECTOR OF COMMUNICATIONS Highest-paid employee | 40 | $110,591 | $29,808 |
| LINDA RODRIGUEZ | SENIOR DEVELOPMENT DIRECTOR Highest-paid employee | 40 | $136,689 | $3,028 |
| ADRIANA ARCE | SEN DIRECTOR OF EXECUTIVE OPERATIONS & SCIENTIFIC EVENTS Highest-paid employee | 40 | $107,310 | $17,264 |
| MARK B DELVAUX | CFO Officer | 10 | $100,000 | $0 |
| CATHERINE VERNON | DIRECTOR/SECRETARY (AS OF 10/2024) Trustee or director, Officer | 4 | $0 | $0 |
| FRED C WALSH | VICE CHAIR (THRU 9/2024) Trustee or director, Officer | 8 | $0 | $0 |
| JON HAGSTROM | CHAIR Trustee or director, Officer | 8 | $0 | $0 |
| KENNETH IRVINE | TREASURER Trustee or director, Officer | 8 | $0 | $0 |
| PEGGY IVERSON | SECRETARY (THRU 10/2024)/VICE CHAIR (AS OF 10/2024) Trustee or director, Officer | 8 | $0 | $0 |
| VIRGINIA CLARK | PHYSICIAN DIRECTOR Trustee or director, Officer | 8 | $0 | $0 |
| ALICE TURNER | DIRECTOR (AS OF 7/2024) Trustee or director | 4 | $0 | $0 |
| ANN KNEBEL | DIRECTOR Trustee or director | 4 | $0 | $0 |
4 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DARRELL KOTTON | DIRECTOR Trustee or director | 4 | $0 |
| ERIN CARR | DIRECTOR (AS OF 7/2024) Trustee or director | 4 | $0 |
| JENNIFER JOPP | DIRECTOR Trustee or director | 4 | $0 |
| MARK BRANTLY | DIRECTOR Trustee or director | 4 | $0 |
990 for the year ended June 30, 2024: 18 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Scott Santarella | President and CEO Officer | 40 | $330,774 | $25,323 |
| Randel H Plant | Sen Dir Research Progs Highest-paid employee | 40 | $143,033 | $12,642 |
| Angela T McBride | Sen Dir Corp Relations Highest-paid employee | 40 | $127,368 | $18,601 |
| Linda Rodriguez | Development Director Highest-paid employee | 40 | $122,295 | $6,436 |
| Jeanne Kushner | Sr Dir of Communications Highest-paid employee | 40 | $100,532 | $27,513 |
| Darrell Kotton | Director Trustee or director | 4 | $0 | $0 |
| Virginia Clark | Physician Director Trustee or director, Officer | 8 | $0 | $0 |
| Fred C Walsh | Vice Chair Trustee or director, Officer | 8 | $0 | $0 |
| Jennifer Jopp | Director Trustee or director | 4 | $0 | $0 |
| Jon Hagstrom | Chair Trustee or director, Officer | 8 | $0 | $0 |
| Kenneth Irvine | Treasurer Trustee or director, Officer | 8 | $0 | $0 |
| Peggy Iverson | Secretary Trustee or director, Officer | 8 | $0 | $0 |
| Ann Knebel | Director Trustee or director | 4 | $0 | $0 |
| Noel G McElvaney | Director Trustee or director | 4 | $0 | $0 |
| Faron Schonfeld | Director Trustee or director | 4 | $0 | $0 |
| Mark Brantly | Director Trustee or director | 4 | $0 | $0 |
| Catherine Vernon | Director Trustee or director | 4 | $0 | $0 |
| Mark B Delvaux | CFO Officer | 10 | $0 | $0 |
990 for the year ended June 30, 2023: 18 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| SCOTT SANTARELLA | President and CEO Officer | 40 | $315,753 | $13,332 |
| RANDEL H PLANT | Sen Dir Research Progs Highest-paid employee | 40 | $134,428 | $11,935 |
| ANGELA T MCBRIDE | Sen Dir Corp Relations Highest-paid employee | 40 | $120,202 | $16,321 |
| LINDA RODRIGUEZ | Development Director Highest-paid employee | 40 | $113,589 | $2,578 |
| MARK B DELVAUX | CFO Officer | 10 | $0 | $0 |
| DARRELL KOTTON | Director Trustee or director | 4 | $0 | $0 |
| VIRGINIA CLARK | Physician Director Trustee or director, Officer | 8 | $0 | $0 |
| FRED C WALSH | Vice Chair Trustee or director, Officer | 8 | $0 | $0 |
| JENNIFER JOPP | Director Trustee or director | 4 | $0 | $0 |
| JON HAGSTROM | Chair Trustee or director, Officer | 8 | $0 | $0 |
| MARTIN R ZAMORA | Director Emeritus Trustee or director | 4 | $0 | $0 |
| KENNETH IRVINE | Treasurer Trustee or director, Officer | 8 | $0 | $0 |
| PEGGY IVERSON | Secretary Trustee or director, Officer | 8 | $0 | $0 |
| ANN KNEBEL | Director Trustee or director | 4 | $0 | $0 |
| NOEL G MCELVANEY | Director Trustee or director | 4 | $0 | $0 |
| FARON SCHONFELD | Director Trustee or director | 4 | $0 | $0 |
| MARK BRANTLY | Director Trustee or director | 4 | $0 | $0 |
| CATHERINE VERNON | Director Trustee or director | 4 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 3300 PONCE DE LEON BLVD, CORAL GABLES, FL 33134-7211
- In care of
- % MARK DELVAUX
- Principal officer (990 for 2024)
- SCOTT SANTARELLA, 3300 PONCE DE LEON BLVD, CORAL GABLES, FL 331347211
- Signed the 990
- SCOTT SANTARELLA, PRESIDENT AND CEO
- Phone
- (305) 567-9888
- Website
- ALPHA1.ORG
- Return prepared by
- BDO USA
Mission
THE ALPHA-1 FOUNDATION IS COMMITTED TO FINDING A CURE FOR ALPHA-1 ANTITRYPSIN DEFICIENCY AND TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY ALPHA-1 WORLDWIDE.
Program accomplishments
- ALPHA-1 RESEARCH NETWORK: THE ALPHA-1 RESEARCH INFRASTRUCTURE PROVIDES SUPPORT FOR A NETWORK OF ALPHA-1 INVESTIGATORS WORLDWIDE. IT IS ONE OF THE FOUNDATION'S MOST VALUABLE ASSETS AND INCLUDES THE DNA & TISSUE BANK, THERAPEUTIC DEVELOPMENT NETWORK, AND CLINICAL RESOURCE CENTERS. THE FOUNDATION'S MISSION IS SERVED BY SCIENTIFIC MEETINGS THAT BRING TOGETHER STAKEHOLDERS WITH THE INTENT TO PROMOTE SCIENTIFIC DISCOVERY, IDENTIFY NEW APPROACHES TO THE DETECTION OF ALPHA-1, AND EDUCATE PHYSICIANS AND PATIENTS ON ALPHA-1. THE ALPHA-1 GRANTS AND AWARDS PROGRAM IS THE HEART OF THE FOUNDATION'S RESEARCH ACTIVITIES AND HAS ESTABLISHED ITSELF AS THE WORLDWIDE LEADER OF ALPHA-1 RESEARCH SUPPORT.Expenses $5,839,029 · grants $2,950,012
- ALPHA-1 NATIONAL CONFERENCE: THE 34TH ANNUAL ALPHA-1 NATIONAL EDUCATIONAL CONFERENCE WAS HELD ON JUNE 6-8, 2025. AS THE LARGEST ANNUAL GATHERING OF THE ALPHA-1 COMMUNITY, THE NATIONAL CONFERENCE PROVIDES IMPORTANT OPPORTUNITIES FOR NETWORKING, EDUCATION, AND ADVOCACY. THE SPEAKERS INCLUDED SOME OF THE LEADING CLINICIANS AND RESEARCHERS IN THE ALPHA-1 FIELD TO BRING INCREDIBLE SUBJECT MATTER EXPERTISE AND EDUCATION TO THE COMMUNITY. THE PROGRAM COVERED A WIDE RANGE OF MEDICAL EDUCATION AND SUPPORTIVE TOPICS TO INFORM, EMPOWER AND MOTIVATE PATIENTS TO TAKE CHARGE OF THEIR HEALTH. THE LAST SIX YEARS OF PRESENTATIONS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE AT WWW.ALPHA1.ORG.Expenses $1,305,234
- ALPHA-1 REGISTRY AND ACT STUDY: THE RESEARCH REGISTRY IS A CONFIDENTIAL DATABASE OF DIAGNOSED ALPHAS AND CARRIERS WILLING AND ABLE TO PARTICIPATE IN RESEARCH STUDIES AND CLINICAL TRIALS FOR NEW THERAPIES. IT IS COMPRISED OF BOTH PATIENT SUPPORTED AND CLINICAL DATA. THE REGISTRY REPRESENTS THE LARGEST COHORT OF ALPHAS IN THE WORLD. THE GOAL OF THE ALPHA-1 CODED TESTING (ACT) STUDY IS TO PROVIDE A WAY FOR THOSE AT RISK, INCLUDING FAMILY MEMBERS OF DIAGNOSED ALPHAS, TO LEARN THEIR GENOTYPE. THE STUDY INCLUDES A RESEARCH QUESTIONNAIRE, A FINGERSTICK TESTING KIT, AND IS FREE AND CONFIDENTIAL.Expenses $641,781 · grants $249,000
- ALPHA-1 EDUCATION DAYS PROVIDE ACCESS TO CURRENT MEDICAL INFORMATION AND RESOURCES TO HUNDREDS OF ALPHAS, THEIR FAMILIES, AND CAREGIVERS.Expenses $526,408
- OTHER ALPHA-1 SERVICES INCLUDE PATIENT EDUCATION (MATERIALS, WEBSITE, ETC), A PATIENT SUPPORT NETWORK, AND A TARGETED DETECTION PROGRAM.Expenses $2,435,566
- THE MISSION OF ALPHA-1 GLOBAL IS TO DEVELOP A COLLABORATIVE GLOBAL NETWORK OF ALPHA-1 PATIENT LEADERS, PHYSICIANS, AND RESEARCHERS.Expenses $411,454
- THE ALPHA-1-TO-ONE MAGAZINE IS DESIGNED TO INFORM THE COMMUNITY OF RESEARCH DEVELOPMENTS, EDUCATION, ADVOCACY AND FUNDRAISING OPPORTUNITIES.Expenses $349,323
- THE FOUNDATION'S PUBLIC POLICY PROGRAM MONITORS RELEVANT LEGISLATION AND REGULATORY ISSUES AND PUBLICIZES THE FOUNDATION'S POSITIONS ON SUCH ISSUES.Expenses $281,906
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 65-0585415
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1996
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E70)
- Assets (IRS master file)
- $47,454,771
- Income (IRS master file)
- $26,580,492
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $13,755,427 | $13,980,782 | $47,454,771 | IRS |
| 990-T | June 2025 | – | – | – | IRS |
| 990 | June 2024 | $11,614,380 | $10,093,036 | $44,464,081 | IRS |
| 990-T | December 2023 | – | – | – | IRS |
| 990 | June 2023 | $10,453,299 | $8,547,943 | $37,662,654 | XML |
| 990-T | June 2023 | – | – | – | IRS |
| 990 | June 2022 | $10,890,084 | $6,364,206 | $35,496,616 | IRS |
| 990-T | June 2022 | – | – | – | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990-T | June 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 65-0585415).
Questions about ALPHA-1 FOUNDATION INC
- What is the EIN of ALPHA-1 FOUNDATION INC?
- The employer identification number (EIN) of ALPHA-1 FOUNDATION INC is 65-0585415.
- Is ALPHA-1 FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1996.
- Are donations to ALPHA-1 FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ALPHA-1 FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ALPHA-1 FOUNDATION INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ALPHA-1 FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of ALPHA-1 FOUNDATION INC?
- The 990 for the year ended June 30, 2025 names SCOTT SANTARELLA.
- Who are the officers and directors of ALPHA-1 FOUNDATION INC?
- The 990 for the year ended June 30, 2025 lists 19 people; 7 received compensation from the organization, the highest $352,414 (SCOTT SANTARELLA, PRESIDENT AND CEO).
- How much revenue does ALPHA-1 FOUNDATION INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $13,755,427, expenses of $13,980,782 and total assets of $47,454,771 at year end.
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