Nonprofit · EIN 61-1581848
INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC
Tax-exempt · BURNSVILLE, MN 55306
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $504,220 | $160,613 | $343,607 | $483,425 | $38,062 | $445,363 |
| June 30, 2024 | 990-EZ | $134,293 | $25,987 | $108,306 | $173,619 | $0 | $173,619 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $503,220
- Membership dues
- $7,451
- Program service revenue
- $0
- Investment income
- $1,000
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $25,000
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $3,850
- Accounting fees
- $3,263
- Travel
- $885
- Depreciation
- $613
- Program services (functional)
- $132,833
- Management and general (functional)
- $27,780
Balance sheet and other
- Total assets, start of year
- $173,619
- Total assets, end of year
- $483,425
- Total liabilities, end of year
- $38,062
- Net assets, end of year
- $445,363
- Publicly traded securities
- $209,893
- Net assets without donor restrictions
- $92,344
- Net assets with donor restrictions
- $353,019
- Gross receipts
- $504,220
- Employees
- 0
- Volunteers
- 200
- Year formed
- 2011
- State of legal domicile
- IN
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Olivier Piguet | President / Treasurer / Secretary Trustee or director, Officer | 4 | $0 |
| Jonathan Rohrer | President-Elect Trustee or director, Officer | 1 | $0 |
| Howie Rosen | Chair Finance Trustee or director | 1.5 | $0 |
| Leonardo De Souza | Chair-Elect Finance Trustee or director | 1.5 | $0 |
| Manuela Neumann | Chair Program & Site Trustee or director | 1.5 | $0 |
| David Irwin | Chair-Elect Program & Site Trustee or director | 1.5 | $0 |
| Kyrana Tsapkini | Chair Publications Trustee or director | 1.5 | $0 |
| Brigid Ryan | Chair-Elect Publications Trustee or director | 1.5 | $0 |
| David Casalod | Executive Director Officer | 4 | $0 |
| Tessa Benitez | Associate Executive Director Officer | 1 | $0 |
990-EZ for the year ended June 30, 2024: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| John van Swieten | President | 2 | $0 |
| Olivier Piguet | President-Elect | 1 | $0 |
| Chiadi Onyike | Chair Finance/Membership Committee | 1 | $0 |
| Howie Rosen | Elect Finance/Membership Committe | 1 | $0 |
| Ian MacKenzie | Chair Prog/Site/Selection Committee | 1 | $0 |
| Manuela Neumann | Elect Prog/Site/Selection Committee | 1 | $0 |
| Carmela Tartaglia | Chair Publication/Commun Committee | 1 | $0 |
| Kyrana Tsapkini | Elect Publication/Commun Committee | 1 | $0 |
| Bernardino Ghetti | Treasurer/Secretary | 2 | $0 |
| David Casalod | Executive Director | 2 | $0 |
| Tessa Benitez | Associate Executive Director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 14305 SOUTHCROSS DR W STE 100, BURNSVILLE, MN 55306-7006
- Principal officer (990 for 2024)
- David Casalod, 14305 Southcross Dr W Ste 100, Burnsville, MN 55306
- Signed the 990
- Olivier Piguet, President
- Phone
- (952) 683-1878
- Website
- www.isftd.org
- Return prepared by
- Abdo LLP
Mission
To lead global efforts in understanding and treating frontotemporal dementias by advancing breakthrough research, fostering interdisciplinary collaboration, supporting emerging scientists, and promoting excellence in educational initiatives.
Program accomplishments
- ISFTD organized and hosted the 2024 International ALS-FTD Workshop in Amsterdam, convening 150 FTD professionals to advance understanding and collaboration in the FTD and ALS fields. ISFTD also launched a new strategic planning initiative, expanded educational offerings through webinars, and began developing support programs for early- and mid-career researchers.Expenses $132,833 · grants $25,000 · revenue $7,451
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 61-1581848
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2013
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G96)
- Assets (IRS master file)
- $483,425
- Income (IRS master file)
- $504,220
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $504,220 | $160,613 | $483,425 | IRS |
| 990-EZ | June 2024 | $134,293 | $25,987 | $173,619 | IRS |
| 990-EZ | June 2023 | – | – | – | IRS |
| 990-EZ | June 2022 | – | – | – | IRS |
| 990-EZ | June 2021 | – | – | – | IRS |
| 990-EZ | June 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 61-1581848).
Questions about INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC
- What is the EIN of INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC?
- The employer identification number (EIN) of INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC is 61-1581848.
- Is INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2013.
- Are donations to INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC?
- The 990 for the year ended June 30, 2025 names David Casalod.
- Who are the officers and directors of INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC?
- The 990 for the year ended June 30, 2025 lists 10 people; 0 received compensation from the organization.
- How much revenue does INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $504,220, expenses of $160,613 and total assets of $483,425 at year end.
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