Nonprofit · EIN 52-2164838
INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC
Tax-exempt · SAN JOSE, CA 95125
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $101,101 | $62,186 | $38,915 | $114,958 | $0 | $114,958 |
| December 31, 2024 | 990 | $43,322 | $56,081 | -$12,759 | $76,043 | $0 | $76,043 |
| December 31, 2023 | 990 | $95,006 | $96,907 | -$1,901 | $88,802 | $0 | $88,802 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $101,094
- Program service revenue
- $0
- Investment income
- $7
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $3,140
- Travel
- $10,393
- Program services (functional)
- $62,186
Balance sheet and other
- Total assets, start of year
- $76,043
- Total assets, end of year
- $114,958
- Total liabilities, end of year
- $0
- Net assets, end of year
- $114,958
- Net assets without donor restrictions
- $114,958
- Gross receipts
- $101,101
- Employees
- 0
- Year formed
- 2021
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JENNY JACKSON | PRESIDENT Trustee or director, Officer | 2 | $0 |
| ABBY LINDENBER | VICE PRESIDE Trustee or director, Officer | 2 | $0 |
| DANIELLE FORSMAN | TREASURER Trustee or director, Officer | 2 | $0 |
| NATHAN HUBBARD | SECRETARY Trustee or director, Officer | 2 | $0 |
| DARKO JAMNIK | MEMBER Trustee or director | – | $0 |
| CAGDAS CANBOLAT | MEMBER Trustee or director | – | $0 |
| LAUREL GREGIER | MEMBER Trustee or director | – | $0 |
| ERIN HUBBARD | MEMBER Trustee or director | – | $0 |
| FERNANDO FERNANDEZ | MEMBER Trustee or director | – | $0 |
| LAMA KHALIL-QASHOU | MEMBER Trustee or director | – | $0 |
| TAREG QASHOU | MEMBER Trustee or director | – | $0 |
990 for the year ended December 31, 2024: 13 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CAROLYN PAISLEY-DEW | PRESIDENT Trustee or director, Officer | – | $0 |
| DANIELLE FORSMAN | TREASURER Trustee or director, Officer | – | $0 |
| SARAH FORSMAN | MEMBER Trustee or director | – | $0 |
| DARKO JAMNIK | MEMBER Trustee or director | – | $0 |
| HUSSAIN PEERAN | MEMBER Trustee or director | – | $0 |
| LAMA KHALIL-QASHOU | MEMBER Trustee or director | – | $0 |
| LAUREL GREGIER | MEMBER Trustee or director | – | $0 |
| PATRICIA GRIBEL | MEMBER Trustee or director | – | $0 |
| TAREG QASHOU | MEMBER Trustee or director | – | $0 |
| CAGDAS CANBOLAT | MEMBER Trustee or director | – | $0 |
| ABBY MELONE | MEMBER Trustee or director | – | $0 |
| NATHAN HUBBARD | SECRETARY Trustee or director, Officer | – | $0 |
| ERIN HUBBARD | MEMBER Trustee or director | – | $0 |
990 for the year ended December 31, 2023: 15 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CAROLYN PAISLEY-DEW | PRESIDENT Trustee or director, Officer | – | $0 |
| DANIELLE FORSMAN | TREASURER Trustee or director, Officer | – | $0 |
| SARAH FORSMAN | MEMBER Trustee or director, Officer | – | $0 |
| DARKO JAMNIK | MEMBER Trustee or director | – | $0 |
| HUSSAIN PEERAN | MEMBER Trustee or director | – | $0 |
| LAMA KHALIL-QASHOU | MEMBER Trustee or director | – | $0 |
| LAUREL GREGIER | MEMBER Trustee or director | – | $0 |
| PATRICIA GRIBEL | MEMBER Trustee or director | – | $0 |
| TAREG QASHOU | MEMBER Trustee or director | – | $0 |
| CAGDAS CANBOLAT | MEMBER Trustee or director | – | $0 |
| ABBY MELONE | MEMBER Trustee or director | – | $0 |
| MARK STARK | MEMBER Trustee or director | – | $0 |
| JOHN FORMAN | MEMBER Trustee or director | – | $0 |
| PAM TOBEY | MEMBER Trustee or director | – | $0 |
| JENNY NOBLE | MEMBER Trustee or director | – | $0 |
Address and contacts
- Address (IRS master file)
- 1302 LINCOLN AVE STE 205, SAN JOSE, CA 95125-3015
- In care of
- % PAUL MURPHY
- Principal officer (990 for 2025)
- DANIELLE FORSMAN, PO BOX 683, TURNERSVILLE, NJ 08012
- Signed the 990
- DANIELLE FORSMAN, TREASURER
- Phone
- (856) 693-3258
- Website
- WWW.ISMRD.ORG
- Return prepared by
- THE GAEL KNIGHT COMPANY
California records
California keeps its own records of charities and corporations. Search them by EIN 52-2164838 or by the name INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC.
- Attorney General, Registry of Charities and Fundraisers
- Registration status and filed reports (CT-TR-1, RRF-1)
- Secretary of State, bizfile Online
- Corporation status, entity number, agent for service
- Franchise Tax Board
- Entity status letter (state tax exemption, good standing)
Mission
THE INTERNATIONAL SOCIETY OF MANNOSIDOSIS AND RELATED DISEASES IS AN INTERNATIONALLY FOCUSED ORGANIZATION WHOSE MISSION IS TO ADVOCATE FOR FAMILIES AFFECTED BY ONE OF THE GLYCOPROTEIN STORAGE DISEASES:ALPHA MANNOSIDOSIS, ASPARTYLGLUCOSAMINURIA, BETA-MANNOSIDOSIS, FUCOSIDOSIS, GALACTOSIALIDOSIS,MUCOLIPIDOSIS II (I-CELL DISEASE), MUCOLIPIDOSIS III (PSEUDO-HURIER POLYDYSTROPHY), SCHINDLER DISEASE AND SIALIDOSIS. THESE DISEASES ARE THE ULTRA-ORPHANS OF THE LYSOSOMAL STORAGE DISEASE FAMILY, WHICH ENCOMPASS OVER 40 SIMILAR DISORDERS, AND CURRENTLY HAVE FEW TREATMENTS BEYOND SYMPTOMATIC CARE.ISMRD'S ADVOCACY EFFORTS ARE NOT LIMITED BY BORDERS, LANGUAGE, RACE OR RELIGION.
Program accomplishments
- TO ADVOCATE FOR FAMILIES AFFECTED BY ONE OF THE GLYCOPROTEIN STORAGE DISEASES.Expenses $62,186
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 52-2164838
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1999
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H80)
- Assets (IRS master file)
- $114,958
- Income (IRS master file)
- $101,101
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $101,101 | $62,186 | $114,958 | XML |
| 990 | December 2024 | $43,322 | $56,081 | $76,043 | XML |
| 990 | December 2023 | $95,006 | $96,907 | $88,802 | XML |
| 990 | December 2022 | $10,535 | $9,515 | $90,703 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 52-2164838).
Questions about INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC
- What is the EIN of INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC?
- The employer identification number (EIN) of INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC is 52-2164838.
- Is INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1999.
- Are donations to INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC?
- The 990 for the year ended December 31, 2025 names DANIELLE FORSMAN.
- Who are the officers and directors of INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC?
- The 990 for the year ended December 31, 2025 lists 11 people; 0 received compensation from the organization.
- How much revenue does INTERNATIONAL SOCIETY FOR MANNOSIDOSIS & RELATED DISEASE INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $101,101, expenses of $62,186 and total assets of $114,958 at year end.
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