Nonprofit · EIN 52-1841165
ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE
Tax-exempt · BETHESDA, MD 20814
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $622,219 | $1,535,415 | -$913,196 | $3,524,087 | $265,047 | $3,259,040 |
| December 31, 2023 | 990 | $1,821,908 | $835,586 | $986,322 | $4,410,233 | $485,271 | $3,924,962 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $493,178
- Program service revenue
- $0
- Investment income
- $116,970
- Other revenue
- $12,071
Expenses
- Grants and similar amounts paid
- $250,500
- Compensation of officers, directors and key employees
- $41,779
- Other salaries and wages
- $285,582
- Salaries, compensation and benefits (total)
- $394,647
- Professional fundraising fees
- $0
- Legal fees
- $622,157
- Accounting fees
- $32,323
- Occupancy
- $8,699
- Travel
- $27,726
- Depreciation
- $5,231
- Program services (functional)
- $286,218
- Management and general (functional)
- $970,291
- Fundraising (functional)
- $278,906
Balance sheet and other
- Total assets, start of year
- $4,410,233
- Total assets, end of year
- $3,524,087
- Total liabilities, end of year
- $265,047
- Net assets, end of year
- $3,259,040
- Land, buildings and equipment
- $20,376
- Publicly traded securities
- $1,951,450
- Net assets without donor restrictions
- $631,110
- Net assets with donor restrictions
- $2,627,930
- Gross receipts
- $622,219
- Employees
- 50
- Volunteers
- 14
- Year formed
- 1992
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MELANIE WELLS | CEO Officer | 3.75 | $330,016 | $40,423 |
| AMY BROWER | ASSOCIATE PROJECT DIRECTOR, NBS Highest-paid employee | 0 | $183,984 | $36,236 |
| CHRIS PITRO | CFO Officer | 1.5 | $210,362 | $9,657 |
| KATHLEEN MORAN | DIRECTOR OF COMMUNICATIONS Highest-paid employee | 1.5 | $183,490 | $35,835 |
| KARL MOELLER | DIRECTOR OF DEVELOPMENT Key employee | 35 | $180,322 | $32,441 |
| ALEXIS MORGAN | COO Key employee | 1.5 | $163,083 | $24,803 |
| LYNN FLEISHER | GENERAL COUNSEL Highest-paid employee | 1 | $182,000 | $1,607 |
| JANE DAHLROTH | SNR DIRECTOR OF MEETINGS & EXHIBITS Highest-paid employee | 0 | $148,064 | $32,253 |
| MICHELLE MCCLURE | DIRECTOR OF PUBLIC POLICY Highest-paid employee | 0 | $149,992 | $17,566 |
| NANCY MENDELSOHN | PRESIDENT Trustee or director, Officer | 3 | $0 | $0 |
| BRUCE KORF | PAST PRESIDENT Trustee or director, Officer | 3 | $0 | $0 |
| BRYNN LEVY | PRESIDENT-ELECT Trustee or director, Officer | 3 | $0 | $0 |
| SARAH ELSEA | TREASURER Trustee or director, Officer | 3 | $0 | $0 |
| MADHURI HEGDE | SECRETARY Trustee or director, Officer | 3 | $0 | $0 |
| SUCHETA BHATT | DIRECTOR Trustee or director | 1 | $0 | $0 |
8 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| KATIE JOHANSEN TABER | DIRECTOR Trustee or director | 1 | $0 |
| MARILYN JONES | DIRECTOR Trustee or director | 1 | $0 |
| JAMES LU | DIRECTOR Trustee or director | 1 | $0 |
| RONG MAO | DIRECTOR Trustee or director | 1 | $0 |
| HARRY OSTRER | DIRECTOR Trustee or director | 1 | $0 |
| ALEKSANDAR RAJKOVIC | DIRECTOR Trustee or director | 1 | $0 |
| LISA SHAFFER | DIRECTOR Trustee or director | 1 | $0 |
| DAVID TILSTRA | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 18 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MELANIE WELLS | COO THEN CEO (EFFECTIVE APR. 2023) Officer | 3.75 | $295,935 | $18,227 |
| LYNN FLEISHER | LEGAL COUNSEL Highest-paid employee | 1 | $210,000 | $0 |
| NANCY J MENDELSOHN | PRESIDENT Trustee or director, Officer | 3 | $0 | $0 |
| BRUCE KORF | IMMEDIATE PAST PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| SUCHETA BHATT | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SARAH ELSEA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| NASHA FITTER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| NADHURI HEGDE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| EVAN JONES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BRYNN LEVY | DIRECTOR Trustee or director | 1 | $0 | $0 |
| RONG MAO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MATT RABINOWITZ | DIRECTOR Trustee or director | 1 | $0 | $0 |
| ALEX RAJKOVIC | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID TILSTRA | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVID WHITEMAN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SUSAN KLUGMAN | EX-OFFICIO REPRESENTATIVE Trustee or director | 1 | $0 | $0 |
| MIRA IRONS | EX-OFFICIO REPRESENTATIVE Trustee or director | 1 | $0 | $0 |
| MARC WILLIAMS | EX-OFFICIO REPRESENTATIVE Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 7101 WISCONSIN AVE STE 1101, BETHESDA, MD 20814-4837
- Principal officer (990 for 2024)
- MELANIE WELLS, 7101 WISCONSIN AVENUE 990, BETHESDA, MD 20814
- Signed the 990
- MELANIE WELLS, CEO
- Phone
- (301) 718-2014
- Website
- WWW.ACMGFOUNDATION.ORG
- Return prepared by
- GELMAN ROSENBERG & FREEDMAN
Mission
SUPPORT THE AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS' (ACMG) EDUCATIONAL MISSION TO "TRANSLATE GENES INTO HEALTH" BY RAISING FUNDS TO ATTRACT THE NEXT GENERATION OF MEDICAL GENETICISTS AND GENETIC COUNSELORS, TO SPONSOR IMPORTANT RESEARCH AND TO PROMOTE INFORMATION ABOUT MEDICAL GENETICS.
Program accomplishments
- SUMMER GENETICS SCHOLARS PROGRAM: IN 2024 THERE WERE 11 SUMMER SCHOLARS ENROLLED IN THE SUMMER GENETICS SCHOLARS PROGRAM. ACMG FOUNDATION TREATMENT GUIDELINES DEVELOPMENT FUND: THE ACCELERATION OF SCIENTIFIC DISCOVERY OVER THESE LAST FEW YEARS HAS PUT INCREASING DEMANDS ON THE ACMG TO INTENSIFY ITS WORK IN THE DEVELOPMENT OF PRACTICE GUIDELINES, PARTICULARLY TO BE ABLE TO RESPOND QUICKLY AS NEW THERAPEUTICS FOR GENETIC DISEASES EMERGE.THE ACMG FOUNDATION, ON BEHALF OF ACMG, HAS ESTABLISHED A FUND TO DEVELOP AND DISSEMINATE BEST-PRACTICE GUIDELINES THAT RESPOND TO AND INCORPORATE FREQUENT, NEW SCIENTIFIC DISCOVERIES IN THE DIAGNOSIS, MANAGEMENT, AND TREATMENT OF GENETIC CONDITIONS, FROM DETECTION THROUGH NEWBORN SCREENING TO COMMON PROBLEMS OF ADULTHOOD.DAY OF CARING: THE DAY OF CARING IS AN EVENT WHERE FUNDS ARE RAISED TO PROVIDE BICYCLES AND HELMETS TO CHILDREN WITH GENETIC DISEASES. LOCAL GENETICS ORGANIZATIONS ARE TAPPED TO FIND RECIPIENTS AND AN EVENT IS HELD DURING THE ACMG ANNUAL MEETING TO PRESENT THESE BICYCLES.THE PURPOSE OF THE PFIZER/ACMG FOUNDATION'S "TRANSLATIONAL GENOMICS SCHOLARS" AWARD PROGRAM IS TO ADVANCE EDUCATION, RESEARCH AND STANDARDS OF PRACTICE IN MEDICAL GENETICS, AND TO DEVELOP AND EXPAND CLINICAL AND LABORATORY EXPERTISE IN MEDICAL GENETICS IN THE UNITED STATES. IT ALSO SEEKS TO INITIATE AND DEVELOP A BROAD-BASED INFRASTRUCTURE FOR INDUSTRY FUNDING OF HIGH QUALITY PROJECTS IN THE FIELDS OF MEDICAL GENETICS.OTHER AWARDS AND FELLOWSHIPS:- SANOFI CORPORATION FELLOWSHIP- TAKEDA CORPORATION FELLOWSHIPExpenses $286,218 · grants $250,500
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 52-1841165
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Supporting organization (509(a)(3))
- Donations deductible (Pub 78)
- Supporting organization of unknown type
- Exempt since
- 1993
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $3,524,087
- Income (IRS master file)
- $622,219
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $622,219 | $1,535,415 | $3,524,087 | XML |
| 990 | December 2023 | $1,821,908 | $835,586 | $4,410,233 | XML |
| 990 | December 2022 | $1,409,009 | $758,603 | $3,370,243 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 52-1841165).
Questions about ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE
- What is the EIN of ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE?
- The employer identification number (EIN) of ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE is 52-1841165.
- Is ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1993.
- Are donations to ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE tax-deductible?
- Yes. It is listed in IRS Publication 78 (Supporting organization of unknown type).
- Which annual return does ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE?
- The 990 for the year ended December 31, 2024 names MELANIE WELLS.
- Who are the officers and directors of ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE?
- The 990 for the year ended December 31, 2024 lists 23 people; 9 received compensation from the organization, the highest $330,016 (MELANIE WELLS, CEO).
- How much revenue does ACMG FOUNDATION FOR GENETIC AND GENOMIC MEDICINE have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $622,219, expenses of $1,535,415 and total assets of $3,524,087 at year end.
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